Joey Liberman's Fundraiser:

2012 Jerusalem Marathon

Joey's Photo

THE STORY:

JACKSON GABRIEL SILVER FOUNDATION INC wrote -

 


The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. 

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed.  Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

But, there is good news . . .  There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB.  In 2011, JGSF awarded $175,000 in research grants.  

The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.

DONATE

To This Fundraiser

$1,842

MONEY RAISED
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  • alissa and sammy zagha

    $250

  • Shulie and Jack Stroh

    $100

  • Blimie & Joel Strauss

    $100

  • michele and jody bardash

    $100

  • Mom & Dad

    $360

  • Reva and Yumi Borgen

    $100

  • Reichel family

    $100

  • Rachelle and Steven Margulies

    $100

  • Rifkie & Danny Silverman

    $100

  • JBASME

    $236

  • esther and joel bock

    $72

  • The Barels

    $54

  • Robin and Josh Rochlin

    $50

  • Klinger family

    $120

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Fundraise for this Campaign

The Team: $42,825 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David beiss

Amount Raised:

$5,869

Fundraiser Title

Daniel Stroh

Amount Raised:

$3,256

Fundraiser Title

Yoni Levine

Amount Raised:

$2,555

Fundraiser Title

Rachel Motsenyat

Amount Raised:

$1,954

Fundraiser Title

Joey Liberman

Amount Raised:

$1,842

Fundraiser Title

Aliza Selter

Amount Raised:

$1,528

Fundraiser Title

Jack Klein

Amount Raised:

$1,420

Fundraiser Title

Alana Ebin

Amount Raised:

$1,203

Donor Comments

Rifkie & Danny Silverman

Rifkie & Danny Silverman

DONATION: $100

So proud!!! 2 years ago

Rachelle and Steven Margulies

Rachelle and Steven Margulies

DONATION: $100

2 years ago

Reichel family

Reichel family

DONATION: $100

Good luck! We are so proud of you 2 years ago

Reva and Yumi Borgen

Reva and Yumi Borgen

DONATION: $100

2 years ago

Mom & Dad

Mom & Dad

DONATION: $360

We are so proud of you!! 2 years ago