Jerome Van Husen's Fundraiser:

Raising $60K to kick blood cancer's butt for Matt

Jerome's Photo
Jerome's Photo
Jerome's Photo

Jerome

Let’s kick some butt – Bruce Lee style.

via Crowdrise 4 years ago

BENEFITING: The Leukemia & Lymphoma Society

ORGANIZER: Jim

EVENT DATE: Sep 19, 2010

THE STORY:

Christine Cwiertny wrote -

Matt Cwiertny 's family and friends are working to raise $60,000 in Matt's name through the Leukemia & Lymphoma Society's Light the Night Walks and Crowdrise's support. If we raise $60,000, we will be able to direct the funds to an LLS researcher who is working to find cures for Epstein Barr Virus (EBV) induced lymphomas. While researchers know there is a connection between EBV and lymphoma, they are not sure how EBV causes lymphoma and have not found a way to effectively treat EBV or NK T-cell lymphoma, which Matt suffered from.

Matt was a 23 year old graphic designer for Marshall Advertising, who loved Galaxy soccer, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, and Will Ferrell movies, when he got a bad case of mono. We thought nothing of it until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons. While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.

In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, Matt was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high and debilitating his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the impact of the EBV on Matt’s vital organs, and at midnight on October 3, 2009, he passed away with us surrounding him.

Matt handled his illness with grace and humor, never asking "why me?" He lived life to the fullest and for that reason, we want to keep his memory alive

DONATE

To This Fundraiser

$68

MONEY RAISED
  • Vanessa

    $5

  • Christine Cwiertny

    $47

  • Michele and Eric Cwiertny

    $16

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Fundraise for this Campaign

The Team: $26,909 TOTAL RAISED SO FAR

Fundraiser Title

Jim Maziano

Amount Raised:

$21,398

 

36% Raised of $60,000 Goal

Fundraiser Title

Michele and Eric Cwiertny

Amount Raised:

$2,316

Fundraiser Title

Marty Baldwin

Amount Raised:

$627

Fundraiser Title

Marshall Advertising

Amount Raised:

$550

Fundraiser Title

Melanie Triebel

Amount Raised:

$535

Fundraiser Title

Lindsey Vogel

Amount Raised:

$319

Fundraiser Title

Adrianne W

Amount Raised:

$220

Fundraiser Title

Shawna Ogden

Amount Raised:

$127

Donor Comments

Michele and Eric Cwiertny

Michele and Eric Cwiertny

DONATION: $16

Thank you for all of your support, Jerome! You totally ROCK. 3 years ago

Christine Cwiertny

Christine Cwiertny

DONATION: $47

In memory of Matt and with thanks to Jerome for helping to keep his spirt alive. 4 years ago

Vanessa

Vanessa

DONATION: $5

4 years ago