Rett Syndrome Research Trust
|
CROWDRISE : Jul 10, 2010
EIN: 26-0687439
BASED: Trumbull, CT, United States
CHARITY WEBSITE: www.rsrt.org
WHAT WE DO:EIN: 26-0687439
BASED: Trumbull, CT, United States
CHARITY WEBSITE: www.rsrt.org
The goal of the Rett Syndrome Research Trust is to deliver clinical trials of a novel treatment strategy within five years.
Welcome to the Rett Syndrome Research Trust. We are a 501(c)(3) nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. The strength of the Trust is based on the guidance of founders and advisors who are largely responsible for the major advances in Rett research over the past decade.
In February of 2007, the journal Science published a paper by Adrian Bird, Ph.D., demonstrating the reversal of Rett Syndrome in mature mouse models with late stage disease. This remarkable and unexpected result has established a new paradigm for Rett Syndrome and other neuropsychiatric conditions, such as autism and schizophrenia.
The obvious and urgent question the Trust seeks to answer is whether symptoms can be reversed, and normal function restored, in people suffering with Rett Syndrome and MECP2 spectrum disorders. To this end, the Trust has convened a series of international think tanks and developed a comprehensive, strategic portfolio of projects, including the first foray into drug discovery for Rett Syndrome. This plan was developed in concert with, and will be executed by, distinguished scientists who are thought-leaders in their fields.
Neither the government, through the National Institutes of Health (NIH), nor pharmaceutical companies can be relied upon to finance the work that lies ahead. NIH funding mechanisms are not designed to quickly support highly innovative exploration. Pharmaceutical companies will only engage once early drug discovery and clinical development have been undertaken.
A private effort is essential if treatments and cures are to be developed in a time frame that the devastating nature of this disorder demands. RSRT is catalyzing such an effort and invites you to join our cause.
DONATE
$29,177
$ RAISED
DONATIONS
| Mary Pat Smith | $100 |
| Craig Calzaretta | $100 |
| greg wagner | $25 |
| Frank and Fran Leva | $100 |
| The Tyrrell Family | $100 |
| Anonymous | $50 |
| Anonymous | $100 |
| The Leahy's | $100 |
| The Ferrone Family | $50 |
| Brian Alcock | $30 |
| Larsens | $25 |
| D'Auria family | $10 |
| Dennehy Family | $25 |
| The McGovern Family | $20 |
| Christop... Smith | $20 |
| Mary Kate Smith | $20 |
| Dan Smith | $15 |
| AMO | $25 |
| Angela Coppa | $100 |
| Lauren Amanda | $100 |
| Casey Gillan | $50 |
| Devon | $25 |
| Abuelos Rassi | $100 |
| Niki Rees | $25 |
| The Laskoskis | $25 |
| Mai La | $50 |
| Alex | $25 |
| Michael Shuman | $50 |
| Jason Franklin | $25 |
| Rich Feldman | $50 |
| Andrew Ryan | $101 |
| Elizabeth Cassano | $100 |
| Susan McDermott | $25 |
| Aimee and Albert Fini | $200 |
| Lori Carbone | $50 |
| The Stickley Family | $100 |
| The Pucci family | $25 |
| The Episalla Family | $40 |
| Carissa Williamson | $25 |
| Hatch | $50 |
| The Sussmann Family | $50 |
| The Boucher Family Mahwah, NJ | $100 |
| The Welshoff Family | $100 |
| Kate Kelly Kelly | $100 |
| Kathleen Gillen | $50 |
| Keefer | $50 |
| Theresa Bailey-P... | $25 |
| Amy & Jim Wapshare | $25 |
| Stefanie and Manny Gutierrez | $50 |
| The Mascolin... | $50 |
| Brendan & Arah | $50 |
| The Mascolin... | $50 |
| The Agliones | $56 |
| chris & gang | $100 |
| Jennifer Galarneau | $100 |
| THE CASTELLANO FAMILY | $50 |
| Jim & Patty Sussmann | $125 |
| Kathleen Cotter | $20 |
| The Lynch Family | $50 |
| Papa Christop... | $50 |
| Trish and Eddie Boles | $50 |
| The Boylan Family | $50 |
| The Loughran Family | $50 |
| TIM MC BRIDE | $150 |
| The Zach's | $50 |
| The DeLuise Family | $50 |
| Shust Family | $25 |
| Mom | $262 |
| Uncle Jack | $652 |
| The LaRosa Family | $50 |
| Kara and Paul Mueller and family | $50 |
| Tom and Ann Wade | $100 |
| Anonymous | $200 |
| Ivan J Garel-Jo... | $100 |
| the firestone family | $100 |
| Anonymous | $300 |
| The Reilly Family | $25 |
| Brenda Martino | $25 |
| Julie Haley | $40 |
| Jason Guberman | $25 |
| Marina L.K. | $30 |
| The Milsteins | $100 |
| Mary & John Conlin | $100 |
| Fauvre Family | $200 |
| anderson family | $100 |
| The Childress Family | $50 |
| The Hindshaw Family | $100 |
| The Brandt family | $500 |
| The Webb Family | $20 |
| Tristan Garel-Jo... | $200 |
| The Thomas Family | $100 |
| The Gianopulos family | $500 |
| Julian Garel-Jo... | $200 |
| Lazenby/... family | $100 |
| The Ramsey Family | $25 |
| Roest family from Kenya! | $50 |
| The McCallion family | $50 |
| Fiona and Bruce | $30 |
| Robert | $30 |
| The Epstein Family | $500 |
| Sebastian Garel-Jo... | $20 |
| The Domingue... Family | $50 |
| Robert Baltazar | $25 |
| The Pajaczko... Family | $30 |
| The Denny family | $100 |
| Victoria | $50 |
| Becca | $11 |
| The Coluzzi family | $100 |
| Linda Steinman | $250 |
| Amy Baker and Juan Montoya | $100 |
| carol lee | $20 |
| The Smith Family | $300 |
| Andrea Kelley | $20 |
| Cynthia Shapiro | $50 |
| The Crime Expert in NY | $50 |
| Elvia Flores | $25 |
| C L DeWerd | $25 |
| Brian Zagorski | $50 |
| Valle & Wehage | $125 |
| Emily Brecher | $100 |
| Becky Batol | $25 |
| Karen Grant-Se... | $50 |
| Spencer and Harry Newman | $25 |
| Donna Redier Linsk | $152 |
| The Cox's | $50 |
| Frances and Steve Berman | $100 |
| Kayte, Tim and Georgie | $30 |
| The Ellingtons | $40 |
| Muir Family | $50 |
| Jeanine Barmonde | $50 |
| Jennifer Fu Depery | $50 |
| Anonymous | $2,500 |
| Big Buddha | $50 |
| Rebecca Rakowitz | $25 |
| Marsha and Paul Rothschild | $250 |
| Karen Kiyak | $100 |
| Angela Proske and Ted Burns | $100 |
| Allan and Cathy Proske | $200 |
| Aimee Wood | $50 |
| Lee and Tara Reeves | $50 |
| The Sherman Family | $100 |
| Kerry & Phil Markert | $50 |
| Kim Strobino | $100 |
| Laura Chang | $100 |
| Debby & Chris Vellozzi | $25 |
| The Squillante Family | $100 |
| Katie & Tom Roche | $25 |
| Anonymous | $50 |
| The Grenauer Family | $100 |
| Leslie Brodbeck O'Connor | $60 |
| Lisa Talbot (mom to Julia who was born with microcep... | $50 |
| Meredith Geller | $50 |
| Stacy DeWalt | $100 |
| Mandy Hooper Larkin & Family | $50 |
| Robert and Maya Palmer | $100 |
| Drew and Stephanne Proske | $100 |
| Cara Yarashas Maser & Family | $25 |
| Ruby Randol | $100 |
| The Riker Family | $25 |
| The Kellehers | $50 |
| Anna & Maddie Mitchell (+Dad) | $500 |
| Anonymous | $25 |
| The Hayman Family | $250 |
| Anonymous | $50 |
| Gallaghers | $100 |
| The Bancrofts | $50 |
| Rebecca Pritts | $50 |
| Jen, Doug & Siena Doran | $100 |
| The Cornell Family | $25 |
| The Casano Family | $100 |
| Brenda Frank & Albert Malmfelt | $100 |
| Marc Kitay | $100 |
| Sheila Smith | $50 |
| Rachel, David, Nathan & Micah | $100 |
| Sejal Patel | $100 |
| lynne hiriak | $50 |
| Jeff & Leila | $150 |
| Kim, Blake, Sky & Brooke | $150 |
| susan saraf | $50 |
| Scott L. Braziller | $25 |
| Jen and Tommy Lopez | $36 |
| Figueiredo Family | $50 |
| renee o'brien | $100 |
| Doi Curry family | $50 |
| Diane Tenerell... | $25 |
| The Outcault | $50 |
| Anonymous | $100 |
| Matt and Clay | $100 |
| Debbie Pappas | $50 |
| paul,mar... and madison barr longmeadow ma | $25 |
| Jennifer DeSimone | $20 |
| Krasnigor Family | $100 |
| John Gregory | $100 |
| Kelly & Anthony Burton | $25 |
| Harry & Judy Sharlach | $100 |
| Lauren Giugliano | $100 |
| Michelle Dauchy | $20 |
| Tim Brennan & Janine Earhardt | $100 |
| Liz Durand | $200 |
| 100 | $100 |
| Missy, Roo & Will | $100 |
| The Dennis Family | $200 |
| Jordan Family | $30 |
| Maureen Levelis | $50 |
| Nancy and Kevin Lawe | $50 |
| Courtney Robins | $100 |
| Lisa Buzin | $10 |
| Grey, Ford + Loewe Epstein | $50 |
| Neil & Jenny Giardino | $100 |
| Chet and Beverly Forman | $250 |
| Ben & Vanessa Loh | $20 |
| Duncan Brown | $200 |
| John Cannon | $50 |
| Kathianne Robins & Dennis Stern | $100 |
| Craig, Wendy and Cameron McRobb | $100 |
| Sandy | $20 |
| Anonymous | $40 |
| Grands in PA | $50 |
| Hilda Gonzalez | $50 |
| Alex & Beth deLarich... | $50 |
| Charlotte and Fin | $200 |
| Kelly and Ed McCarthy | $75 |
| Jim and Kristen Horn | $50 |
| Geeta & Naresh Motiani | $50 |
| Marc, Jill, Andrew & Hilary | $150 |
| The Westover Family | $250 |
| The Puga Family | $100 |
| Hal and Tara Newell | $100 |
| Kara and John Torre | $50 |
| Melissa, Chris & Alexandro | $25 |
| Anonymous | $100 |
| Anonymous | $50 |
| Jon Brooks | $50 |
| Robyn Rosenblum | $50 |
| Lynn | $100 |
| Lori Rassas | $50 |
| Anonymous | $50 |
| Hassan | $100 |
| Alec Farr | $100 |
| Michelle | $100 |
| Denise Quattrochi | $50 |
| Bill Hibsher | $50 |
| Kerryanne & David Terry | $50 |
| Anonymous | $250 |
| Angus | $20 |
| jill | $100 |
| Shima | $50 |
| McCloskey Lee Family | $100 |
| Diana and Lawrence Barber | $50 |
| Eric Cobb | $150 |
| Jennifer Jackson | $100 |
| Lorraine | $50 |
| Ann Burdick | $50 |
| Robert and Maya Palmer | $50 |
| Anonymous | $50 |
| Amy Rothschild | $36 |
| Randy | $50 |
| The Ginchansky Family | $54 |
| Stacy Schiller | $36 |
| The Garvin Family | $150 |
| Grey & Tracie | $100 |
| Charity Morris | $50 |
| Brian Turoff | $36 |
| St. Martin's Press | $250 |
| Elisabeth | $50 |
| Mary Karen & Dave O'Shaugh... | $150 |
| Molly | $100 |
| aliza and ari cohen | $25 |
| Mary Karen O'Shaugh... | $150 |
| Lara Feoktist... | $20 |
| Steve & Denise Sweeney | $100 |
| Catherine Bertoldi | $25 |
| Erin Ormond | $20 |
| Gary Bab | $35 |
| MC | $500 |
| Chaeri | $50 |
| Deborah Hoffman Toffler | $25 |
| Martha Patricia Moreau | $100 |
| Richelieu | $15 |
| O'Sullivan Family | $30 |
| michele stella | $50 |
| Iraida O'Callag... | |
| Adrian Esteban | $30 |
| Rachel & JP Bolen | $100 |
| The Fahmi Fahmi | |
| The Mazzacano Family | $50 |
| Pat Tully | |
| Fred & Elsie Lowell | $20 |
| Jen and Andy Faber | $36 |
| Barbara and Tom Moleta | $50 |
| Barbara and Ron Lerner | |
| Ev and Mel Silverst... | |
| Arlene & Ira Cohen | |
| Debra Crespi | $250 |
| Kori Dryhurst Coates | $50 |
| paul & joyce moskowitz | $36 |
| merle and Billy winters | |
| Kate McCabe | $100 |
| Matt & Sue Bilt | $36 |
| Mimi & Joel Schlosberg | |
| Linda Ferraro | $50 |
| Ellen Cohn | $36 |
| Jocess Franciosa | $100 |
| The Fontana Family | $50 |
| The Becchine... Family | $75 |
| Blattner Family | $36 |
| Juliana Regan AbouAssi | $25 |
| Irene and Jack Halperin | |
| Cindy and Wayne Mack | $40 |
| Susan Kasper Cabrera | $54 |
| ANDY & ROE GERGEL | |
| LORI GERGEL | |
| The Popowitz Family | $50 |
| The Magerowski Family | $25 |
| Pula and Tom Brucker | $50 |
| Alyce and Ira Furman | $50 |
| Dr Janice Montague | |
| Steve & Judy Reichman | $50 |
| Janet & Michael Klein | $50 |
| The Carrichner Family | $40 |
| Maritza Fundora | $25 |
| Anonymous | |
| Paula & Matt | $50 |
| Ann & Bruce Landau | $180 |
| Carlos Banegas | $50 |
| Michael & Cindi Breen | $250 |
| Robin Fritz | $50 |
| Stephanie Merton Dahlquist | |
| nancy barasch | $50 |
| Michelle Autiero | $50 |
| Deb, Tom, Jessie & Harry | $200 |
| Martinez Family | $50 |
| Michelle Autiero | $100 |
close
close
