Marcy Lamonica's Fundraiser:

Team Rett Boston Marathon 2012

Marcy's Photo

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$3,680

MONEY RAISED
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  • Dickie and Katie Nee

    $100

  • Kerry Salvo

    $50

  • Margaret Noone

    $20

  • Mary Nee

    $50

  • Colleen & Gerard

    $100

  • Bridie

    $50

  • Sammy Geist

    $30

  • Margaret and Russ

    $26

  • susan welch fairweat...

    $25

  • Kelly Noone

    $10

  • Grammy and Grampie Nee

    $26

  • Jim & Julie Haskell

    $25

  • Kelly Noone

    $10

  • Walter Crockett

    $100

  • Katie Moriarty

    $10

  • Paul & Mary

     

  • Jasmine Smith

    $25

  • Theresa Huck

    $25

  • Caitlan Nee Abrahamson

    $25

  • Mary and Phil Latini

    $30

  • Mickey and Jan McCarthy

    $100

  • Anne Dudley

    $30

  • Billy Nee

    $26

  • Heather and Michael Concannon

    $200

  • Suzi

    $20

  • Michelle and Craig

    $50

  • The Feeney's

    $20

  • John

     

  • Melissa Centeio

    $20

  • Hickey Family

    $50

  • Dora Gough Rex

    $26

  • Joanne and Chris

    $100

  • Pat, Danielle...

    $100

  • Danielle Roy-Becker

    $30

  • Coleman, Renee, Liam and Alice

    $25

  • Kelly Noone

    $15

  • Ry

    $25

  • Josh & Jill

    $25

  • Michelle Steltzer

    $100

  • Raffle

    $100

  • Molly Hagerman

    $50

  • Maureen Josephsen

    $20

  • Brittney Sullivan

    $26

  • Aunt Judy and Uncle Vic Huck

    $35

  • Allison Konefal

    $50

  • Owen and Eddie Dugas

    $25

  • Ryan Denison

    $50

  • Judith Geva

    $25

  • Christina Ireland

    $50

  • Jill

    $20

  • Charles Flannery

    $20

  • John and Mary Foster

    $25

  • Steven and Cindy Jones

    $50

  • Grace

     

  • Maura

    $20

  • Pat Salvo

    $25

  • Liz O'Donnell

    $25

  • Sis!

    $25

  • Shawn and kathleen findlay and family

    $30

  • Uncle Ronnie and Aunt Mary Costigan

    $50

  • Peter and Bonnie Jo Foley

    $50

  • Dave & Margy Lappin

    $50

  • Joy & Stephen Nee

    $50

  • Peter, Susan, Helen and Nona

    $50

  • Patrick Nee

    $50

  • Paddy and Paul

    $40

  • Don, Rosemary and Cody

    $25

  • Melodie and Jared

    $25

  • Michael and Melissa Nee and Kids

    $50

  • V

    $20

  • maria remington

    $25

  • Emily Ware

    $30

  • Lauren, Dan, and Caroline

    $25

  • Miin and Tom

    $25

  • Larry & Marilyn Konefal

    $25

  • Kristen McRae

    $25

  • Kimberly Chamberl...

    $50

  • Maureen Holden

    $50

  • Dea-Dee Phinney

     

  • Valente family

    $50

  • Chris, Fenway and Franklin

    $50

  • Kathy Lovejoy

    $30

  • Dan & Barb Hebert

    $50

  • Katie and Matt Penny

    $50

  • Anonymous

    $100

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Fundraise for this Campaign

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised:

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised:

$9,752

 

195% Raised of $5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised:

$8,250

Fundraiser Title

christina oliver

Amount Raised:

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised:

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised:

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised:

$6,500

Fundraiser Title

Courtney Railton

Amount Raised:

$6,225

Donor Comments

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Katie and Matt Penny

Katie and Matt Penny

DONATION: $50

You are amazing Marcy! 2 years ago

Dan & Barb Hebert

Dan & Barb Hebert

DONATION: $50

In honor of Annie Nee 2 years ago

Kathy Lovejoy

Kathy Lovejoy

DONATION: $30

Good luck Marcy, thank you for running for my niece Annie. God Bless. 2 years ago

Chris, Fenway and Franklin

Chris, Fenway and Franklin

DONATION: $50

Good luck 2 years ago