Brian Nist's Fundraiser:

WUNning for Narcolepsy

Brian's Photo
Brian's Photo
Brian's Photo
Brian's Photo

BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: 2013 Boston Marathon

EVENT DATE: Apr 15, 2013

THE STORY:

 

Brian Nist

Ellicott City, MD 21043

I‘ll be going to the starting line in Hopkinton as a way of educating friends, family, and coworkers about narcolepsy, and to ask for their support in finding a cure for this terrible sleep condition. I learned about the WUNners marathon team from my wife, who is living with narcolepsy.  

I’ve finished six marathons and three ultra-marathons. In Boston, I intend to finish in under 4:30. My toughest race was the 2006 JFK 50-mile run in the Washington, DC, area. Reaching the 25-mile point in the race, realizing I had just run the equivalent of a marathon, the furthest I had ever run at the time. I realized, too, that another marathon distance lay before me. This eye-opener was terribly demoralizing, but finally reaching the finish line was enormously rewarding.

At that moment, thinking back to the, "zombie mode" I was in for many of those last 20+ miles, this may have been the closest I've come to understanding what narcolepsy is like. No ability to focus, concentrate, or think about anything beyond putting one foot in front of the other. Too tired to do the simple math of how many miles I had left to run. Sleeping the whole car ride home, then being awakened but remaining too groggy to make the short walk from the car to the house. Eventually making it inside and wanting nothing more than to curl up on the floor and sleep for days.

I did this to myself by choice, for “fun,” as a challenge. After a few days I returned to normal functioning capacity. But people living with narcolepsy don't have this option. They’ve done nothing wrong, they didn’t ask to feel this way. I think I had a taste of how narcolepsy might feel, if for only a short while, and it was horrible.

By donating today, you’ll be supporting the untiring work of WUN. You’ll be helping people everywhere whose lives have been turned upside down by the debilitating symptoms of narcolepsy.

Thank you!

DONATE

To This Fundraiser

$110

MONEY RAISED
  • Anonymous

    $100

  • Cody McDonnell

    $10

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Fundraise for this Campaign

Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $56,553 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David Gow

Amount Raised:

$38,655

 

148% Raised of $26,200 Goal

Fundraiser Title

Jared Chrudimsky

Amount Raised:

$4,729

Fundraiser Title

Shelby Harris

Amount Raised:

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Jacqueline Sager

Amount Raised:

$2,623

Fundraiser Title

Stuart Smith

Amount Raised:

$2,192

Fundraiser Title

Scott Graham

Amount Raised:

$2,080

Fundraiser Title

Nancy Chamberlin

Amount Raised:

$1,614

Fundraiser Title

Brian Nist

Amount Raised:

$110

Donor Comments

Cody McDonnell

Cody McDonnell

DONATION: $10

1 year ago

Anonymous

ANONYMOUS

DONATION: $100

Good luck...you are doing a great thing! 1 year ago