Shelby Harris' Fundraiser:

WUNning for Narcolepsy

Shelby's Photo
Shelby's Photo
Shelby's Photo
Shelby's Photo

BENEFITING: WAKE UP NARCOLEPSY INC

ORGANIZER: WAKE UP NARCOLEPSY INC

EVENT: 2013 Boston Marathon

EVENT DATE: Apr 15, 2013

THE STORY:

I am a clinical psychologist and director of the Behavioral Sleep Medicine Program at Montefiore Medical Center's Sleep-Wake Disorders Center in New York City. I often work with patients who have narcolepsy and routinely see how this disorder can dramatically affect patient’s lives and the lives of those around them.

Narcolepsy is a serious neurological disorder with no cure and limited treatment options. It is greatly misunderstood and stigmatized in the general public, with many patients misdiagnosed for 10-15 years before obtaining a proper diagnosis. Many doctors are not well-versed in the symptoms of narcolepsy, and I commonly see patients mislabeled as depressed, bipolar, lazy, or even schizophrenic.

I’ve chosen to run the Boston Marathon with WUN as a way to bring more awareness to narcolepsy, both to the general public as well as the medical and psychiatric field. I'd also like others to understand the various psychosocial stressors that narcolepsy can cause and how it truly is an illness that affects both patients and their families. 

In 2008, I was out of shape, 20 pounds overweight, and about to turn 30. I was always working with my patients on their diet and exercise, but I wasn't doing anything about my own physical health. I needed to make a change and have since run 4 full marathons, raising over $10,000 for the Leukemia and Lymphoma Society as a part of my past training. 

Marathon training is intense, draining, and a major time commitment. I recently contemplated taking a break from full marathons since I’ve been training non-stop for the past 18 months. When I was asked by WUN to run Boston, I knew I couldn’t pass it up. I’m honored to run for WUN as well as my patients who quietly struggle with their illness on an hourly basis.

As tired as I may get juggling work, family (with a toddler!), and running upwards of 45 miles per week, I know my tiredness will eventually dissipate, unlike my patient’s narcolepsy.  

People everywhere living with narcolepsy will benefit from your contribution. Thank you!

DONATE

To This Fundraiser

$4,375

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • David Restivo

    $25

  • Melissa Olsen

    $25

  • MARILYN AND DALE LARSON

    $50

  • Dana & Wayne Gosnell

    $50

  • Penn and Joshua Harris

    $321

  • Jennie, Michael, and Leo Pritzker

    $50

  • Caryl and Mark Freedman

    $100

  • Renee Monderer

    $36

  • COOPER-L... INC.

    $300

  • Yelee Kim

    $100

  • Rene Zweig

    $100

  • Becky Scott

    $50

  • Helene Guss

    $25

  • Michael Quane

    $20

  • phyllis & dan furman

    $50

  • Gene and Diane Gardner

    $100

  • Neomi Shah

    $50

  • Rachel Harris

    $50

  • Copeland Family

    $100

  • Melissa Livingston

    $50

  • Jennifer Marcy

    $20

  • Ted Martin

    $50

  • Karen and Jonathan Harris

    $200

  • Manzi Family

    $25

  • Laurie and Stephan Goldman

    $100

  • Michelle Blackmore

    $25

  • Meryl Pressman

    $50

  • Herzog Family

    $25

  • Marcia and Roger Warren

    $100

  • Emilee Pressman

     

  • Lantz Family

    $25

  • JoAnn and Ed Kitlas

    $50

  • Zimmerman family

    $25

  • Kathleen Hughes-S...

    $50

  • Brian Freedman & Jo Ann Gershaw

    $100

  • The DiMarco family

    $25

  • Robyn Furman & David Goetzl

    $50

  • Abby Bellows

    $18

  • Vatsal & Annalise

    $100

  • Heidi, Eliot, Andrew and Quinn Jamison

    $50

  • Anonymous

    $200

  • Harry Kaplan

    $25

  • Marlo Freedman

    $25

  • PHIL & ELAINE SEVINOR

    $50

  • Mike Samuelson

    $60

  • Simon Rego

    $26

  • Doug & Tracy Trouf

    $25

  • Mary D.

    $25

  • Sue & Scott Bander

    $50

  • Nicky Meehan

    $25

  • Bridget and Dave Decker

    $25

  • John, Cristy, Maddie and Daniel

    $25

  • Nicole Schneider

    $25

  • Anonymous

    $50

  • Michael Krumholz

     

  • Martin Veiner & Margaret Shearon

    $25

  • Carol, Owen, and Ryan Gottlieb

    $25

  • EM KWON

     

  • Anonymous

    $300

  • Erica DeRosa & Andrew Teman

    $50

  • Dr. Thorpy

     

  • Mike Quane

    $50

  • McGuirk/... Family

    $50

  • Lisa Vasilakos

    $25

  • Anne Bartolucci / AIBHS

    $50

  • Laura DeStefanis

    $50

  •  
  •  
  •  
 

88% Raised of $5,000 Goal

Fundraise for this Campaign

Boston Marathon News on Twitter John Hancock on Facebook Go to the 2013 Boston Marathon Event Page

The Team: $56,553 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David Gow

Amount Raised:

$38,655

 

148% Raised of $26,200 Goal

Fundraiser Title

Jared Chrudimsky

Amount Raised:

$4,729

Fundraiser Title

Shelby Harris

Amount Raised:

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Jacqueline Sager

Amount Raised:

$2,623

Fundraiser Title

Stuart Smith

Amount Raised:

$2,192

Fundraiser Title

Scott Graham

Amount Raised:

$2,080

Fundraiser Title

Nancy Chamberlin

Amount Raised:

$1,614

Fundraiser Title

Brian Nist

Amount Raised:

$110

Donor Comments

Laura DeStefanis

Laura DeStefanis

DONATION: $50

1 year ago

Anne Bartolucci / AIBHS

Anne Bartolucci / AIBHS

DONATION: $50

1 year ago

Lisa Vasilakos

Lisa Vasilakos

DONATION: $25

Good Luck Shelby! 1 year ago

McGuirk/Kitlas Family

McGuirk/Kitlas Family

DONATION: $50

1 year ago

Mike Quane

Mike Quane

DONATION: $50

As a former long distance runner (forty years and forty pounds ago) I can only admire what you're doing. Just don't fall asleep at the wall. Best, Mike 1 year ago