Adam Rubin's Fundraiser:

Running the NYC Marathon for ALS Research

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@VoiceDocintheD

What were the Sixers thinking or what not to do as GM http://t.co/dKrYc3Axjr

via Tweet Button 3 weeks ago

THE STORY:

In 2000, a group of neurologists and neuroscientists came together to form what is now known as the Program for Neurology Research & Discovery. Under the direction of Eva L. Feldman, M.D., Ph.D., Russell N. DeJong Professor of Neurology, the group has undertaken research in some of the most complex and challenging fields of disease. From ALS (Lou Gehrig’s disease) to the nerve damage that disables people with diabetes, they have made medical discoveries that are bringing treatments to patients. With a combination of mind power and technical resources found in few other places, the Program for Neurology Research & Discovery is leading the way in translating laboratory discoveries into new patient therapies.

ALS is a disease that results from the death of motor neurons within the brainstem and spinal cord.  It is a progressive disease that usually leads to death within 5 years of diagnosis.  As neurons die, patients lose the ability to voluntarily move body parts, and eventually, to breathe.  When the brainstem is involved, patients lose the ability to speak and swallow.  All the while, patients suffering from this disorder stay completely aware of their bodies deteriorating. It is a horrible disease, and one in dire need of a cure.

We recently lost a wonderful neighbor, Dr. Eric Baron, to the disease process.  He was a brilliant physician, entrepreneur and father.  He battled the disease for 8 years, making every effort to stay alive as long as possible to watch his daughter grow.  He remained positive and determined, and truly touched the heart of all the people around him. He remains an inspiration to me and my family.

I have had the good fortune of working with Dr. Feldman and the Program for Neurology Research and Development for the last 12 years.  My nephew, Zach Kelly, has come all the way from Emory College to work with the lab during the last 2 summers.  You would be hard-pressed to find a more determined and brilliant group of physicians and scientists.  They are all passionate about their work and committed to finding a cure for ALS and other neurological diseases.  Dr. Feldman is currently leading the first human stem-cell trial for the treatment of ALS.

At the young age of 43 (I'm 44 now...aged a year), I have decided to run my 1st marathon.  My nephew Zach is running his first, at the spritely age of 20.  Our hope is to make the experience and vigorous training all the more meaningful by using the opportunity to raise money for this cause.  I hope you can find it in your heart to donate.  Thank you!

If you want to learn more about the Program for neurology research and discovery, visit the following website:  http://www.med.umich.edu/PNRD/About/index.html

If you want to learn more about me, go to www.lakeshoreent.com and click the link to the voice center.

If you want to learn more about Zach...you'll have to talk to him or try to friend him on facebook.

DONATE

To This Fundraiser

$10,323

MONEY RAISED
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  • Seilesh Babu

    $50

  • Dave Fribourg

    $100

  • Linda and Myles Lash

    $50

  • Marjorie Miller

    $50

  • The Radners

    $50

  • Erica McManus

    $25

  • Nick Lukacs

    $25

  • Ian and Leila Joffe

     

  • The Green Family

     

  • Naomi Rubin

    $200

  • Susan Garetz

    $25

  • sarita & danny bagdade

     

  • Sara Ward

    $50

  • Rob and Paula Fishman

    $100

  • Barry Fishman & Teresa McMahon

    $50

  • Michael Pitman

     

  • The Katzenst...

     

  • Todd Lash and Tracy Joe

    $50

  • Marjie and Jordan Field

     

  • Debbie and Howie Herrmann

    $50

  • Jill and Evan Seigerman

    $200

  • Eva Feldman

     

  • Randy Roy

    $50

  • Robyn & Todd Miller

     

  • Joel and Debbie Pearlman

    $50

  • Marie Brown

     

  • The Finkelst... Family

     

  • Todd Proctor MD

     

  • Carol and Steve Lash

     

  • Suzie KIrch

    $50

  • Mike Shearon, Flynn Benefits Group

    $200

  • Joan Lader

     

  • Jayson and Laurie Greenberg

    $50

  • Maria and Jeff Freeman

    $25

  • Mike and Maureen Beaubien

    $100

  • Jamie Beckerman

     

  • Kim Ostrowski and Dan Boxwell

     

  • Kapustin Family

    $200

  • Topf Family

     

  • Gal Shpantzer

     

  • Kat Lynch

    $15

  • Mary and Jeff Topf

     

  • The Drikers

     

  • The Doctoroff Family

    $50

  • Kris Guccione... Smith

     

  • Paul & Cheryl Darmon

    $150

  • Ed & Michelle White & Family

    $100

  • hooberman family

    $125

  • Anthony L. Soave

    $200

  • Amy and Chuck Fox

    $100

  • Mike, Alissa, Sydney, and Ella

    $50

  • Jill Noll and Keith Kaye

     

  • The Morgenst... family

     

  • Jodi and Jeff Michaelson

    $50

  • Ron Scherer

    $50

  • Sugarmans

     

  • Steven Rubin

    $100

  • Labrini Liakonis

     

  • Anthony Baron

    $200

  • Anne and Jefrey Mendelson

    $360

  • Cara and Ira Schlussel

    $50

  • Andy and Jenny Friedman

    $100

  • The Elskens Family

    $91

  • Michael & Margaret Ala

     

  • daniel megler

    $100

  • Michael and Harriet Morse

    $100

  • Andrew Dzul

    $50

  • The Hogikyans

    $100

  • Franki and Jeff Bagdade

     

  • Amy & Eric Ersher

     

  • Craig and Marla Singer

    $25

  • Cheryl Kirouac

    $50

  • Garfield Davies

    $25

  • Michael Rubin and Renee Jolles

    $100

  • Joe and Stacey Lash

     

  • Silvana Tropea

    $50

  • Antoine Abi-Samra

    $50

  • David J. Brown

    $100

  • Verne and Ed Royal

    $50

  • Hoff family

    $100

  • Cherie and Richard Chosid

    $100

  • Anonymous

     

  • Katie and Matt Chosid

     

  • EB Weiss

     

  • Libby Smith

    $100

  • The Cantors

     

  • Don and Gail Lansky

    $50

  • John Andrea & Lillia Rheinlan...

    $50

  • Cyrus T. Elk

    $50

  • The Trepecks

     

  • SANDI WOLFE

    $100

  • Scott Schubiner

    $25

  • Glenn Berger and Jill Friedman

    $100

  • Danny & Jessica Klein

     

  • The Trivax Family

    $36

  • The Goldberger family

    $100

  • Adam and Rebecca Rubin

    $250

  • Emory & Christina Clark

    $100

  • Jayme

    $50

  • Stuart and Lisa Rubin

    $50

SET UP YOUR FUNDRAISER

The Team: $10,323 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Adam Rubin

Amount Raised:

$9,923

Fundraiser Title

Bill and Liz Kelly

Amount Raised:

$200

Fundraiser Title

Anthony Baron

Amount Raised:

$200

Fundraiser Title

Jeff Shafritz

Amount Raised:

$0

Fundraiser Title

Marie Brown

Amount Raised:

$0

Fundraiser Title

Marla Grossman

Amount Raised:

$0

DONORS

Stuart and Lisa Rubin

Stuart and Lisa Rubin

DONATION: $50

5 months ago

Jayme

Jayme

DONATION: $50

Thanks for running for this great cause Adam! 6 months ago

Emory & Christina Clark

Emory & Christina Clark

DONATION: $100

in memory of Peter R. Clark 6 months ago

Adam and Rebecca Rubin

Adam and Rebecca Rubin

DONATION: $250

6 months ago

The Goldberger family

The Goldberger family

DONATION: $100

6 months ago