Ashley Sheets

Royalty Crests
Comments

To leave a comment Login or Signup

Elise Marie
Elise Marie SAYS:
My November vote for you :)
My November vote for you :)
1 year ago
Elise Marie
Elise Marie SAYS:
Here is my September vote fo…
Here is my September vote for you, and for all the hard work you are doing here at Crowdrise. Keep it up
2 years ago
see more  
Shahriar
Shahriar SAYS:
A May Vote sent your way, al…
A May Vote sent your way, along with best wishes. Happy crowdrising.
A return vote would make you the most awesome person ever!
please join or donate if you may and encourage others as well.
Defeat World Hunger: http://www.crowdrise.com/defeatworldhunger
2 years ago
see more  
Herma
Herma SAYS:
Hi Ashley, You just received…
Hi Ashley,
You just received my vote! Good luck with your great projects!
Herma & The Foundation for Antarctic Research Team.
2 years ago
see more  
Linda
Linda SAYS:
Hi...sending you a Vote (100…
Hi...sending you a Vote (100 Impact Points) and wishing you the very best on your fundraising and hoping your Project is a huge success . "One small act of kindness can send a ripple thru the Universe."...(My Project CURE EPILEPSY)
2 years ago
see more  
Ashley Sheets
Springfield, OH United States
CROWDRISING SINCE: Apr 22, 2012
Stuff About Me:

Hi my name is Ashley Sheets. I have three amazing kids at home Travis, Breanna, and Keira. I also have two that are not with me now yet they are in my heart and mind everyday, which names are Destiny, and Ethan .  I also have an amazing better half and his name is Adam besides my kids really the love of my life. Each day I find myself more thankful than the last that I was blessed enough to be a mom and when we lost Ethan last June to Dandy Walker it really opened my eyes and changed my perspective on life as I knew it and I am still changing today, I find comfort in helping others others and I am hoping his memory lives on in the lives of other people with Dandy Walker.

What is Dandy-Walker Syndrome?

 

Dandy-Walker Syndrome is a congenital brain malformation involving the cerebellum (an area at the back of the brain that controls movement) and the fluid-filled spaces around it. The key features of this syndrome are an enlargement of the fourth ventricle (a small channel that allows fluid to flow freely between the upper and lower areas of the brain and spinal cord), a partial or complete absence of the area of the brain between the two cerebellar hemispheres (cerebellar vermis), and cyst formation near the lowest part of the skull. An increase in the size of the fluid spaces surrounding the brain as well as an increase in pressure may also be present.

The syndrome can appear dramatically or develop unnoticed. Symptoms, which often occur in early infancy, include slow motor development and progressive enlargement of the skull. In older children, symptoms of increased intracranial pressure such as irritability and vomiting, and signs of cerebellar dysfunction such as unsteadiness, lack of muscle coordination, or jerky movements of the eyes may occur. Other symptoms include increased head circumference, bulging at the back of the skull, problems with the nerves that control the eyes, face and neck, and abnormal breathing patterns.

Dandy-Walker Syndrome is frequently associated with disorders of other areas of the central nervous system, including absence of the area made up of nerve fibers connecting the two cerebral hemispheres (corpus callosum) and malformations of the heart, face, limbs, fingers and toes.

Is there any treatment?

 

Treatment for individuals with Dandy-Walker Syndrome generally consists of treating the associated problems, if needed. A surgical procedure called a shunt may be required to drain off excess fluid within the brain. This will reduce intracranial pressure and help control swelling. Parents of children with Dandy-Walker Syndrome may benefit from genetic counseling if they intend to have more children.

What is the prognosis?

 

The effect of Dandy-Walker Syndrome on intellectual development is variable, with some children having normal cognition and others never achieving normal intellectual development even when the excess fluid buildup is treated early and correctly. Longevity depends on the severity of the syndrome and associated malformations. The presence of multiple congenital defects may shorten life span.

What research is being done?

 

The NINDS conducts and supports a wide range of studies that explore the complex mechanisms of normal brain development. The knowledge gained from these fundamental studies provides the foundation for understanding abnormal brain development and offers hope for new ways to treat and prevent developmental brain disorders such as Dandy-Walker Syndrome.

 

 

 

Ashley
Sheets

VOTE

CR Impact Points

Click the VOTE button to give Ashley 100 Crowdrise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes.Or do what I do and vote strictly based on height. Come back and Vote every month. CIPs can be redeemed for Crowdrise Rewards and can earn you the highly coveted, highly respected Crowdrise Royalty Status.

CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Ashley this month. Come back next month and vote again if you still love Ashley. Thanks to your vote, Ashley earned 100 Crowdrise Impact Points (CIPs). CIPs can be redeemed for Crowdrise Rewards and can earn you the highly coveted, highly respected Crowdrise Royalty Status.

1,575

Total Impact Points

Share

This page

Ashley Sheets' Fundraisers

American Cancer Society

American Cancer Society

Amount Raised:

$0

For The Love Of Our Kids

For The Love Of Our Kids

Amount Raised:

$0

 

0% Raised of $5,000 Goal