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Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.'s Primary Photo
Dystrophic Epidermolysis Bullosa Research Association of America, Inc. Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
CROWDRISE : Jun 23, 2010
EIN: 11-2519726
BASED: New York, NY, United States

CHARITY WEBSITE: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
WHAT WE DO:

Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) was founded 30 years ago and is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB).

EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births.  Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores - inside and outside their bodies.

  • The cost of specialized bandages can exceed $10,000 per month
  • Of those born with EB in 2010, 21% are no longer with us
  • EB children may have as many as 6 surgical procedures a year just so they can swallow

There is NO cure and the only treatment is wound care, bandaging and pain management.

 

Some of DebRA’s services include:

EB Nurse Educator, who manages more than 3,000 inquiries annually, provides medical expertise, referrals and directs patients to available resources.

• The Wound Care Clearinghouse that provides free medical supplies to patients.

• The Family Crisis Fund that offers financial assistance to families to help alleviate the hardship of unreimbursed medical costs.

Please visit www.debra.org & Like us on Facebook www.facebook.com/debraofamerica

Contact: events@debra.org

 

DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."

until there’s a cure…there’s DebRA

$43,665

$ RAISED
DONATIONS
Michael Jekogian $10
Steve, Lynn and Alli Jekogian $100
ocprincess $10
Eric Birnbaum $200
Meredith Berman $25
The Roberts Family $300
Richard Hulnick $25
Allison, Jonathan, Jake and Noa Greenberg $100
David Gelfond $150
Scott Walker $100
Jamie & Taylor Jernigan $50
The Rauch Family $50
Ingrid & Gary Cade $50
Go Tripp!  
The Jervay's $25
Kevin Douglass $30
Lynn and John Folger $20
Norman Robinson $40
Rachel Seeger $25
Kerri Provenza  
Nicole & jeremy $50
Markus Ojanen $50
KARISSA CARIMI $50
Jim & Carol Shoemaker (Karissa Carimi's parents) $100
Vincent & Sheila Provenza $50
Anonymous $200
Anonymous $10
Cassidy Family $100
Anonymous  
Char Thian $20
The Langston Fam $25
Amy and Jeff Giroir $50
The Blackford family $200
The Delsa Family $20
Anonymous $100
David and Katie Witter $100
Anonymous $20
Liz Sherwin $50
Brown Family $50
Steve Griggs $25
Lanehart Family $50
Daryl and Kelly Fink $100
Wayne Watkins $20
Kevin Allman $25
Earl and June Tregre $50
Melissa and Trent Overholt $50
Hulsey Family $50
Zachary, Brandt, Brooks Blanchard $50
CASTRO FAMILY $25
Rayne, Brent, Ashleigh, Baileigh and Jaxon Becnel $20
Mitch & Jennifer Holliday  
Kelli and Gordon McCloskey $25
The Cattan Family $50
Anonymous  
Arlinda and Bruce Kiger $25
Massage Envy Lafayette $25
Amber Poirrier $50
The Baek Family  
Jeremy Jernigan $100
Anonymous $100
Syan Rhodes $50
Felicia $20
Jonathan & Stacie $50
betsy $20
Fletcher Mackel $100
The Hartman Family $100
Melinda $20
Beth Gleason $25
Paul Brandus $25
Shelly Carter $10
Anna, Lane, Emmett, and Sarah Grace Holland $50
The Meany Family $50
Lipps Family $100
Margie Holland $25
CrowdRise $25
Richard & Patti Hart $50
Jenny Finnerman $25
Beth Gleason $50
Hope Cresie And Chad Michael Heintze $50
Ty & Alexis $10
Kayla Landry, Isabella & Kayden $30
Pietz family $10
Southern Cuts, Inc $250
Beth Marquar $25
Mark Biggs $20
Ted Waitt  
Anonymous $100
Cindy Helm $50
Shawn and Ruthie Potter $25
Chris Audler $100
DIANNE COTHERN $50
Veronica Sandifer, Madilyn and Marley $20
Anonymous $30
Beth Robertson Marks $50
Bob & Erin Hotard $100
Meagan Hoffman  
Marco $50
Gary Wiener $250
Anonymous $25
The Newall Family $20
Sarah "Mimi" Sky $100
Anonymous $50
Sanders Family $100
Matty's Mom $25
Carey & Pamela Bennett $100
Anonymous  
Jennifer, Mikie, and Presley Dupree $10
Kent Riecke $20
Catherine Jernigan (10) & Calleigh Eskew (17mths)  
Anonymous $25
Travis & Jennifer Green $50
Shannon Weeks Probst $50
The Hooper family  
Stacey, Wayne & Mackenzie Page $50
Shannon Youman $10
Kalli Peterman $100
Rickey & Davi Keller $50
Christie Pevey  
Brittany... and Avery $30
Jennifer Taylor $10
Dena Joanos $20
Jamie Rando $20
Chez Whimsy Boutique $10
The Walker Family $100
Ada, Ian, Job and Ela Sheppard $25
Paul Youman $100
Danielle Smith $50
JENNIFER, CASEY, & BRECK REMONDET $40
Richelle $25
Sarah & Adam Scalise $100
Juliette Carmo $50
Harper and Hudson Sweeny  
Betty Moore $25
Anonymous $25
Tony Drake $50
The Rice Family $50
The Aitken Family $50
McCarthy Family $25
Denise Rowell $30
Jamie Flinn $100
Melody LeBlanc $25
Angela $50
Luke Gleason $20
Angie Hebert $20
betty&da... robicheaux $50
MHall $50
Anonymous  
Ryan and Ella Comeaux $50
Vicki Allen $25
The Zeringue Family $25
Carson and Tatum Hammell $50
Kimberly G. $50
Art Arnold $25
Moriarty's $75
Elizabeth and Jack $50
Karin LeJeune $150
John and Pat Potter $25
Kayla Gallagher $30
The Dietzway Family $75
CORAL $20
Caroline Stevens  
Gloria $50
Ryan $30
Nancy and Eddie Richard $50
THE CORD GROUP $100
Buddy & Charleen Dickson $200
Karon and Tommy Hale $25
The Ashcraft family, Ponchato... LA $50
Coastal Dredging Company, Inc. $100
Greg & Nicole Goodwin $100
Beachcor... Bar & Grill $200
Dornice Dycus $50
Warren $20
Ashley McGee $25
Rikki Provenzano $20
Christine Haley $10
Elizabeth Bowen $50
Donna Seiler $25
Rodney Thoulion $25
Jessica & Josh Richardson $50
Becky & Alan Ripps $10
Neil Birkhoff $25
April Accomando  
The Huerstel's $25
Josh,Can... and Cade Starns $100
Dawn Crippin $100
Hunter and Presley $25
Celeste Elizabeth $50
Lori Reynolds $40
Jay McGee $25
Mark. and Angee McDonald $25
Mandy Jones $20
Rylee and CJ $25
Bill & Paula Smith $25
Amy Hughes $25
Don & Ann Fernandes $25
Adam Richards $25
Lea Wilson Jones $25
Gina & Junior Betancou... & Family  
Chloe Schwanz $20
Anonymous $25
Kathleen Fuoss $25
Jim Mora $50
Phil & Karen Reginelli $25
Selective Insurance Company of America $50
Darren Ball $25
Kimberly, Mickey & Clark $25
RJ Percy $50
Rick Percy $100
Sherry Robards-... $25
Nikkole Swearingen $30
Randy & Liz Butts $50
Karen Colliver $25
Kristin Urycki $25
Shawn Gordon $25
Will McGee $100
Brent K $25
Anonymous $20
The Barlow Family $200
The Rodgers Family $25
Wendy $100
Kim Riggs $50
Tarrin Pelton $25
Elizabeth Lahey  
Nick and Ashley Segal $100
Anonymous  
Jeff Niepagen $50
David Underkof... $26
Ardian, Amy and Adriana Ramadani $25
Joe and Peggy Miller $25
Bonnie Baudean $25
Tabitha Aucoin $20
Tabitha Aucoin $20
Alexandra & Logan Yates $25
Helene C. $25
Olivia & Brady $25
Ben and Tanya Rings $50
Rozi Schoen $20
Aaron, Bonnie, and Austin Rader $100
Holly Guenther $10
Jen Falk $25
Kelly $20
Christine Bailey $50
Dayna Lubbers $10
Gina $25
Karen Horn $25
The Kotzbeck Family $10
Ethan Murray $50
Frank Niepagen $100
Deanna Crane $15
The Shannons $40
The Varnam Family $50
Marlene Ziegler $20
Reeve $50
Joey LaMarca $50
Crystal Greene $75
Jacob Byrd $50
Maggie Broussard $30
Your Arkansas Family $50
Clem $27
kris & dale harding $100
Austin Lindsay $10
Danny Williams $20
Trish & Charlie  
Anonymous $150
Cord Blood America $100
Isabelle Wilson $10
Anonymous $20
William and Jack Stutzenb...  
Steve Bellman $20
Sharon Kell $100
The Guerin Family $25
The Oltmann Family $10
Ahumada family $60
Doris Kelley $30
Cox & Withey Families $25
Richard e barr $15
Matthew 5-16 $50
carolyn bourgeois $20
Amy Mc Kowen $20
Alexis Joliat $25
Jill Y $50
Mark Fairhurst  
Benefield Family $25
Cindy Sakotas $100
Raye $50
FRANK "D" $20
Mary Lipani $100
The Brunet Family $50
Brian Trower $25
Susan, Jack and Will $50
Kevin Carpenter $25
tim and vicki lorenz $100
Gary Amy and Lucas  
Kevin Marino $10
Melissa Futrell $50
Leigh Bonfanti $10
Ryan & Michelle Kropog $100
Tina Davis $100
Ellora's Cave Publishing $1,000
Tutu $50
The Ballard Family $50
Jeff and Erin Brechtel $25
Phil Sauder $25
Anna Jensen $50
Katie Porche $50
Ashley Porche $10
Tina Simoneaux $25
Brandy & Jimmy randolph $75
Olivia Liptak $25
Anonymous $27
Kathy Cummings $25
maggie and cody gauthreaux $20
Mackel Family $10
Saba Stucco, LLC $100
Rhonda Ford $25
Mellie $20
Allen and Cindy Porche $100
Illya Tietzel  
Melva Maureen Williams $25
Barbara & Peggy $25
Jessica & Brad Humphreys $25
Ray & Dianne Williams $20
Mila Cognevich $25
Anonymous $50
Anonymous $200
Anonymous $1,000
Jane Brignac $20
Kayla $20
The Hope Family $50
Carl Wells $20
Anonymous $20
Anonymous $100
Paul & Angela Pevey $100
Liam, Jaylyn, and Christy Johnson $25
Anonymous $100
Jamie Gann $10
Susan James $100
Anonymous $30
Dunnam Family $100
Lori Cage $50
Jocelyn J. Holthouser $100
Dean and Lisa Kohn $75
George & Sue Johnson $25
Rachel Ferrand $25
Troy & Christina Reeves $50
Kraig Komnick $25
Angie Koehlar $40
Dickie & Christy Dupre' $100
Anonymous  
Rob Haddock $300
Kristi Hudson $25
Laura Mullen $50
Tiffany Hebert $10
Donna Dixon White $20
The Mansfield Family $25
Jeff Whitney $30
Paris Commander $50
Shannon Kelly $50
Sherri Bickham $20
Anonymous $25
Mary Ann and Bubba Spell $100
Gerry and Chip Blanchard $100
Scott, Brooks, Beau and Cameron Hellmers $100
Lorie $30
Haven and Kevin Solomon $25
Kathleen Tusa $25
Kim Carey $20
Anonymous $25
Mike & Gail Digby $50
Price Family $30
Sam Williams (via the Michel Family) $25
David & Jean $20
Linda and Dennis Tisdale $50
Saacks Family $25
Tarra M. $10
Kimberly Joubert $100
Sandi $25
Dave & Marlene Haupt $25
Nanette $25
Debbie Delatte $20
Christie White Alsip $100
Albert deBen and Mae Daigle (Almae award) $100
john vaughan $50
Wolfe Family $200
Donna Larsen $25
Cindy and Charlotte $50
Troy Bergeron $20
Brandie King $30
Justin & Emily Williams $50
Bonnie naquin $25
Uncle Brandt and Aunt Lyn $100
Oaklee Bigner $100
Daniel, Megan & Preston $20
Aaron & Ashley $20
Hotstream Family  
Nannie and Frannie McAda $10
Alton Darby $50
Anonymous $20
Jeanine Finley $20
Brandon & Heather Perrin $50
Robert Foster $570
Elina Arroyo $40
Colleen and Robert Winkler $100
Becky Cabrera $25
Sunny C. Schulz $25
Erin & Gabe Crumley $25
Boyd and Jenny Weber $25
Shane & Michele McCarthy $75
Anonymous $50
Gabe "Cajun Sensation" LeBleu $20
Anonymous $20
Amanda Sulcer $50
Anonymous $50
Royal and Diane Kraft  
Lisa Arnoult $25
Rhonda Solomon $50
Pat Hamilton $20
Anne Doucet $25
Mike, Ashley, Alexis and Adam Aime $25
Stephanie Swift $25
Carl and Rene Forbes $25
Mark Romig $100
Marie K. $25
The Burke Family $50
Paw & Oma $25
Jose, Rachael & Landen Gonzalez $20
Shannon Manzella $25
Rebecca Gibbs $25
Walter $20
Save the world $30
Anonymous $24
Double Takes Photogra... $50
Basin Street Records $100
Brittany Schanzbach $25
May-May $25
Anonymous $10
Cortney Brittany Bailey and Cain Brown $50
Bonnie Larche & Family $100
Anonymous $50
Anonymous $100
Beth $25
mary beth hymel $50
John and Jeanne Welt $250
The McGoey Family $100
Patrice Guillot $50
Janis Cuneo $60
Janis Cuneo $60
Janis Cuneo $60
Anonymous $10
Kristen & Thomas Plaisance $50
Michael and Kim Staines $100
The Wells Family $25
Nora Vaden Holmes Insurance Agency, State Farm $150
Bethany Rohrer Fisher $78
A La Carte Foods $100
Travis & Brittany Alford $50
Bette $50
Wayne & Marti Kent $20
Katie Winter $50
Marie Dupre $10
Madeline Guibault $20
Nicole,M... & Aubriana $30
Kris, Tiffany and Kate Brauner $25
Anonymous $100
The Nickens Family $50
Danny & Sharon Lipford $100
Mary Rowe and Lynn Strain $20
The Kelly Gibson Foundation $100
Joan St Pierre $25
Jill Martin $25
Siemny Chhuon $25
Dana White $25
Craven family $100
Chris Dahl & Dixilyn Watkins $25
Cahill Family $25
Dorothy Hotard $100
Michael & Debbie Schanzbach $50
Veronica Kirby $20
for Raimee $50
Braud Family $25
Mauri Capello $25
Lance and Brittany Mcnair $15
Desk Buddy $40
Lambert and Ann Laperouse $100
Anonymous $25
papa g $50
Anonymous $25
Anonymous $30
The Estorge Family $100
Brandon & Jodee Hoover $10
Anonymous $50
Charlene & Pete $50
Elizabeth A. Guilbeau $100
Albert $50
Maggie and Chris LeBato $50
The Rice Family $50
Anonymous $150
The Hunter Family $25
Anonymous $10,000
phil heymann $100
Leah and Jason $50
The Barrios Family $100
Greg Turner $100
Lisa, Justin & Lucy Collins $25
David & Bonnie Anderson $50
Jade Salon $35
Rachel & Owen Bonnette $10
The Mullet Family $25
Anonymous $20
The Movahed Family $20
Fran Simmonds $25
Leah's Nana $25
Anonymous $100
Anonymous  
The Al-Juraid Family $150
Anonymous $100
Alane & Bob Nuzum $100
Navone Family $20
AL & Jane James $10
Lauren & Grant Solis $100
Paul & Elizabeth Miller $30
Daffodil Boutique $10
Mary Grace and Ganny $20
Chris & Nancy Vallot $50
Bob and Marie Villere $100
The McCrosky Family $25
Jared, Christen, Daisy and Reese Rodriguez $20
Larry & JoAnn Levet $50
Anonymous $10
The Nami Family $25
Tracy Gerhardt Family $10
Kerry & Cathy Dufresne $30
Anonymous $50
Sherry Langston $100
Kris BIlger $50
MISS DAWN'S LITTLE ANGELS $50
Carson and Tatum Hammell $25
Paula Holland $50
Anonymous $20
Jaimee Boyd $25
Josiah Strecker $50
Don, Amy, Jacob, and Nay Nay $25
Anonymous $50
Katie Lang $20
Edward and Jane Babin $50
Sylvia & Chris Bellone $25
Mark & Ginger King $50
Robbie and Rachel Quintana $25
The McKinney Family $10
Desi Roth harrison $250
The Noel Family $100
Paula and Frank Lusk $200
Mindy DeBarge $25
The Obletz Family $25
Ishikawas $30
Anonymous $100
Anonymous $100
Aucoin $50
The Thompson Family $50
Anonymous  
Ortiz Family $40
Mike & Rhonda Sheridan $100
Shaun Walker $50
Anonymous $20
Susan & John $50
Kyle and Brett Schatzle $50
Vince and Patti Bova $50
Greg $30
Norris Gremillion $200
Vic Knight $50
Anonymous $25
Gabe and Britni Gesch $100
Dayna Bennett $25
Anonymous $25
anonymous $50
The Melvins $20
Landen Manos $50
Sara $20
Eric, Erica, & Ethan Robertson $50
Anonymous $100
Lauren, William, Thomas & James  
Anonymous $20
heather h. $20
Marsha Stacy and family $10
The Morris Family $100
Anonymous $25
The Iten Family (in Colorado!) $50
The Fleniken Family $25
Anonymous $20
Momma Jeany and Summer Jade Thomas $25
Holly in New Jersey $50
The Boffa Family $25
Tim & Billie Keller $20
Joni, Angel & Lakein $20
Jessica Luck $10
Anonymous $10
Anonymous $100
Mika Henderson $25
Anonymous $100
Anonymous $20
The Kavcak Family (NJ) $20
Anonymous $250
The Lemon Family $10
Anonymous $20
Ryan and Stephanie Nash $50
The Lemone Company, LLC $500
Anita Klein $25
Jeanne, Ben, & Kiera Perkins $30
The Chatellier Family $10
Anonymous $21
Melissa Mularski & Family (Wiscons... $30
Lindsey Galjour $100
The Wise Family $20
The Nasatka's $50
Anonymous  
Tripp Roth $20
Randy & Ashley Franklin $100
Anonymous $10
Anonymous $10
Alyssa Sparks & Mason McAlister $10
Talia $300
Sky rider foundation $20
Jenny C. $20
Kako $50
Trish $50
Angela Steele $20
Billy, Joanna, & Parker Shirley $50
Isaacson Concrete & Excavating $100
Holly Johnson $20

OUR FUNDRAISERS:

 
 
 
 
 
 
 
 

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