Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
EIN: 11-2519726
BASED: New York, NY, United States
CHARITY WEBSITE: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) was founded 30 years ago and is the only national non-profit organization dedicated to funding research and supportive services for those affected with Epidermolysis Bullosa (EB).
EB is a devastating and sometimes fatal rare genetic condition that affects 1 out of every 50,000 live births. Patients with EB have skin so fragile that any rubbing, friction or slight trauma can cause severe blistering and sores - inside and outside their bodies.
- The cost of specialized bandages can exceed $10,000 per month
- Of those born with EB in 2010, 21% are no longer with us
- EB children may have as many as 6 surgical procedures a year just so they can swallow
There is NO cure and the only treatment is wound care, bandaging and pain management.
Some of DebRA’s services include:
• EB Nurse Educator, who manages more than 3,000 inquiries annually, provides medical expertise, referrals and directs patients to available resources.
• The Wound Care Clearinghouse that provides free medical supplies to patients.
• The Family Crisis Fund that offers financial assistance to families to help alleviate the hardship of unreimbursed medical costs.
Please visit www.debra.org & Like us on Facebook www.facebook.com/debraofamerica
Contact: events@debra.org
DebRA's mission is to alleviate the inherent daily stress of living with "the worst disease you've never heard of."
until there’s a cure…there’s DebRA
$43,665
$ RAISED| Michael Jekogian | $10 |
| Steve, Lynn and Alli Jekogian | $100 |
| ocprincess | $10 |
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| Anonymous | $250 |
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| Billy, Joanna, & Parker Shirley | $50 |
| Isaacson Concrete & Excavating | $100 |
| Holly Johnson | $20 |



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