Kristin Harrison's Fundraiser:
Jamison/TEAM TSA DISNEY MARATHON
Team Member:
Kristin
Kristin
BENEFITING: Tourette Syndrome Association, Inc.
ORGANIZER: Nicole & JJ
EVENT DATE: Jan 05, 2012
DEADLINE TO GIVE: Dec 20, 2011
HERE'S THE STORY:
Nicole Dimas wrote -
I am trying to raise awareness and bust the myths about Tourette Syndrome.
Unfortunately, Hollywood has given TS a bad wrap and and the subject is often misunderstood or taboo.
Over 200,000 (Americans) have TS, including MLB stars, Actors, Musicians and my son! Children as young as 4 are able to be diagnosed, but are not due to fear and lack of education. TS can be difficult to diagnose and even more difficult to understand. It is composed of symptoms such as a series of motor/phonic "tics" Imagine spending your days and nights with the constant retraint of having to hold in a sneeze! Seems impossible, right? That is what children and adults with Tourette's Syndrome face every day. Ts is often (comorbid) with other illnesses such as ADHD/OCD/ODD my son included. One condition, Coprolalia, is often present with Tourette's. It is rare and it is also the reason we realized my son may have indeed had Tourettes Syndrome. Coprolalia is usually the only part of Tourette's Syndrome you will see displayed in Hollywood/TV. This causes inappropriate behavior and words. One thing to remember: it CAN NOT BE HELPED. If I had a penny for every apology my son made after a tic, I would not need to raise funds. Tolerance and Education make the biggest change!Check out WWW.TSA-USA.org or email me for more information ndimas78@gmail.com
You can also follow me on twitter @nicoledimas
I will post more information as soon as I understand how this sight works!
ORGANIZER: Nicole & JJ
EVENT DATE: Jan 05, 2012
DEADLINE TO GIVE: Dec 20, 2011
HERE'S THE STORY:
Nicole Dimas wrote -
I am trying to raise awareness and bust the myths about Tourette Syndrome.
Unfortunately, Hollywood has given TS a bad wrap and and the subject is often misunderstood or taboo.
Over 200,000 (Americans) have TS, including MLB stars, Actors, Musicians and my son! Children as young as 4 are able to be diagnosed, but are not due to fear and lack of education. TS can be difficult to diagnose and even more difficult to understand. It is composed of symptoms such as a series of motor/phonic "tics" Imagine spending your days and nights with the constant retraint of having to hold in a sneeze! Seems impossible, right? That is what children and adults with Tourette's Syndrome face every day. Ts is often (comorbid) with other illnesses such as ADHD/OCD/ODD my son included. One condition, Coprolalia, is often present with Tourette's. It is rare and it is also the reason we realized my son may have indeed had Tourettes Syndrome. Coprolalia is usually the only part of Tourette's Syndrome you will see displayed in Hollywood/TV. This causes inappropriate behavior and words. One thing to remember: it CAN NOT BE HELPED. If I had a penny for every apology my son made after a tic, I would not need to raise funds. Tolerance and Education make the biggest change!Check out WWW.TSA-USA.org or email me for more information ndimas78@gmail.com
You can also follow me on twitter @nicoledimas
I will post more information as soon as I understand how this sight works!
close
close
