Adrianne W's Fundraiser:

Jamison/TEAM TSA DISNEY MARATHON

  • Adrianne's Photo

BENEFITING: Tourette Syndrome Association, Inc.

ORGANIZER: Nicole & JJ

EVENT DATE: Jan 10, 2013

THE STORY:

Nicole Dimas wrote -

IT'S NOT JUST ABOUT THE TICS!

JAMISON HAS BEEN ALLOWED A SPOT IN THE 2011 MARATHON AT WALT DISNEY WORLD IN JANUARY. THANKS TO ALL OF YOU, WE RAISED ENOUGH TO COVER REGISTRATION FEES AND THE COST OF HIS RUNS, WALKS, ACTIVITES. A LL DONATIONS WILL GO DIRECTLY TO OUR TSA-SPONSOR PAGE UNTIL THE DATE OF THE MARATHON THEN WILL CONTINUE TO GO TO WWW.TSA-USA.ORG JJ AND I WILL GIVE ALL DONORS GET A TSA-INSPIRE BRACELET!
THE TSA ALSO RECOGNIZES CROWDRISE FOR THEIR CONTRIBUTIONS FROM CROWDRISE THROUGH YOU!
We're trying to raise awareness and bust the myths about Tourette Syndrome. Tourette's Syndrome is so much more than the "tics"
Unfortunately, Hollywood has given TS a bad wrap and and the subject is often misunderstood or taboo.
Over 200,000 (Americans) have TS, including Well known Athletes, Actors, Musicians and my son! It's even believed that Samuel Johnson and Howard Hughes had TS! Look what THEY achieved! Because of the specifics in diagnosing, my son was not officially diagnosed until 5 but started showing signs as early as 2 years old. TS can be difficult to diagnose and even more difficult to understand. It is composed of symptoms such as a series of motor/phonic "tics" Imagine spending your days and nights with the constant retraint of having to hold in a sneeze! Seems impossible, right? That is what children and adults with Tourette's Syndrome face every day. Ts is often (comorbid) with other illnesses such as ADHD/OCD/ODD my son's diangosis included. One condition, Coprolalia, is often present with Tourette's. It is rare and it is also the reason we realized my son may have indeed had Tourettes Syndrome. Coprolalia is usually the only part of Tourette's Syndrome you will see displayed in Hollywood/TV. This causes inappropriate behavior and words. One thing to remember: it CAN NOT BE HELPED AND IT IS IN NO WAY HUMOROUS. Tolerance and Education make the biggest change!Check out WWW.TSA-USA.org or just come to me with any questions. Dr's are great, but until you've sat IN the waiting room, you can't fully understand!
You can also follow me on twitter @nicoledimas

DONATE

To This Fundraiser

$250

MONEY RAISED
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  • Amanda Darby

    $99

  • Adrianne Wonnacott

    $99

  • Nicole and JJ

    $10

  • Adrianne Wonnacott

    $10

  • Michele and Eric Cwiertny

    $11

  • Adrianne Wonnacott

    $11

  • Bala Kolluru

    $10

SET UP YOUR FUNDRAISER

The Team: $1,650 TOTAL RAISED SO FAR

Fundraiser Title

Nicole & JJ

Amount Raised:

$1,234

 

41% Raised of $3,000 Goal

Fundraiser Title

Adrianne W

Amount Raised:

$250

Fundraiser Title

Catherine Newland

Amount Raised:

$50

Fundraiser Title

Amanda Darby

Amount Raised:

$49

Fundraiser Title

LINDA DIMAS

Amount Raised:

$47

Fundraiser Title

Patricia and Riley Harrington

Amount Raised:

$20

Fundraiser Title

Ayesha Ghazanfar

Amount Raised:

$0

Fundraiser Title

Kristin Harrison

Amount Raised:

$0

DONORS

Bala Kolluru

Bala Kolluru

DONATION: $10

3 years ago

Adrianne Wonnacott

Adrianne Wonnacott

DONATION: $11

Match Michelle and Eric, thank you both! 3 years ago

Michele and Eric Cwiertny

Michele and Eric Cwiertny

DONATION: $11

Go, Nicole and JJ!! Thank you, Adrianne!!! 3 years ago

Adrianne Wonnacott

Adrianne Wonnacott

DONATION: $10

Match Nicole and JJ, thank you both. Have a great walk this weekend! 3 years ago

Nicole and JJ

Nicole and JJ

DONATION: $10

Amazing work! What an inspiration! 3 years ago