Nicole & JJ's Fundraiser:

Jamison/TEAM TSA DISNEY MARATHON

Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo
Nicole & JJ's Photo

Nicole & JJ

Love and Thanks to all from JJ XO

via Crowdrise 12 months ago

BENEFITING: Tourette Syndrome Association, Inc.

EVENT DATE: Jan 10, 2013

THE STORY:

TEAM TSA at Walt Disney World is being held Jan 1-13, 2013

Thanks to all who have supported and shared our goal, we are now hoping to run in the Walt Disney World 2013 Marathon with TEAM TSA.  All donations go directly to the TSA and our local chapter  has agreed to allow all donations through Crowdrise to go towards Sponsoring JJ and his run!  All offline donations received until the deadline will go towards travelling and accomodations.  Any donations after the 2013 walk will go to the Tourette Syndrome Association.  

Since we started this original project page, we have received so many generous donations and made so many new friends helping spread TS awareness.

JJ, friends, family and I walked at the 1st annual TEAM TSA walk in Corona Park, Queens on May 20, 2012 during National Tourette Syndrome Awareness Month and JJ now strives to be a TSA youth Embassador.

"Back this year will be Dave Pittman, former American Idol contestant, who has TS and he will once again be singing at our dinner and sharing his story. Hell’s Kitchen Season 2 Winner Heather West will also be on the 2013 team. Heather, who has TS, has been a supporter of the TSA for several years and you will really enjoy meeting her! Jaylen Arnold, who started Jaylen’s Challenge for anti-bullying and TS awareness, will also be back this year.  When we know more, we will let you know!"

 To register for the team visit:

http://www.active.com/framed/event_detail.cfm?CHECKSSO=0&EVENT_ID=2015793

Our Story:

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Jamison was diagnosed with Tourette Syndrome at 5 years old (symptoms starting as early as 3 but a full diagnosis is made only after both motor/phonic tics are presenton/off for a year) From that day forward, we have spent nearly every day finding ways to promote awareness and acceptance of Tourette Syndrome and those affected by it.

In May 2010 we stumbled accross Crowdrise and never imagined the impact starting a project here would have.  We have been able to reach so many and more important, we have felt the love and acceptance and understanding right back.  Jamison is now in a comfortable place with his TS and will openly discuss it and is no longer ashamed or embaressed, uncomfortable at times, yes but proud of who he is.   I will continue to advocate for JJ and for others with Tourette Syndrome until he can advocate right along side me.  X0X0

 

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We may all know what Tourette Syndrome sounds like but What does Tourette Syndrome Look like?  Tourette Syndrome is a Neurological Disorder classified, but not limited to, motor and verbal "tics." There are NO clear physical signs of TS.  What tics today may be gone tomorrow, only to return next month. 

When JJ was just 4 years old we received the initial diagnosis of Tourette Syndrome. At the time, the only thing I knew about Tourette's was from what I have seen on TV and in the movies. Jamison had all the signs/symptoms: only living with TS is not as funny as they TRY to portray it.
Unfortunately, JJ suffers from Coprolalia and Echolalia, both which are present in very little % of people diagnosed with Tourette Syndrome, but is Most misrepresented in Hollywood.
Since being diagnosed, I have made it a point to talk TS with anyone/everyone who will listen, and repeat it to those who won't. 

We have embraced TS in our life and have made many wonderful connections through the TSA.  To us, we know know other way of life, so we take each tic as it comes.  When the tics are not present, we don't wait for them to come back.  New tics come and old return, but we deal with it minute by minute.  We understand this may be a life long struggle, and JJ often wonders when/if it will stop but we try to make the best of it all.  Luckily, JJ is very willing and able to communicate and educate about his TS. 

We found the platform of Crowdrise in 2010 and thought it a perfect place to share information, spread the word, raise awareness and most of all bust all the myths about Tourette Syndrome.

Since joining we have reached accross the globe, spreading awareness and tolerance to this misunderstood disorder.  We have also put a face on Tourette's

We are very open about our life with TS and JJ has slowly become his own advocate!
Researcher's are closer to finding genetic links as to a possible "cause" and we don't worry about a "cure" we learn to live with TS. This is what we know and this is what we'll teach.The TSA has supported much research and education on and about the subject
for more information on the Tourette Syndrome Association visit www.tsa-usa-org
The TSA also recognizes and Thanks all of you AND crowdrise for your donations and support.

As a Thank You for your donations, send us your mailing info to ndimas78@gmail.com and we will send you a TSA "inspire" wristband.

www.tsa-usa.org 

DONATE

To This Fundraiser

$1,650

MONEY RAISED
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  • Tina Dalgren

    $5

  • Mary Frank

    $10

  • Edward Norton

    $50

  • Amanda Darby

    $15

  • Jaime Haughey

    $9

  • Amanda Darby

    $9

  • Angelique Joniaux

    $12

  • Amanda Darby

    $9

  • Amanda Darby

    $10

  • Jaime Haughey

    $9

  • Quintas

    $9

  • Michele Cwiertny

    $9

  • Mary Frank

    $9

  • Jaime Haughey

    $25

  • Maximus

    $10

  • Katie Rose Sessa

    $25

  • Amanda Darby

    $15

  • Amanda Darby

    $9

  • Tsar Jaime Jamesovna

    $7

  • Jaimes Thorpe

    $9

  • Eva Paradissi

    $9

  • Brienne Erb

    $10

  • lauren higgins

    $10

  • Michele Cwiertny

    $10

  • Jaime Haughey

    $9

  • L. Brachio

    $10

  • Jasmin Henke

    $5

  • Amanda Darby

    $11

  • Patrick Webb

    $10

  • Michele and Eric Cwiertny

    $51

  • Amanda Darby

    $99

  • Adrianne Wonnacott

    $99

  • jerome james sacher

    $20

  • Nicole and JJ

    $10

  • Adrianne Wonnacott

    $10

  • Michele and Eric Cwiertny

    $11

  • Adrianne Wonnacott

    $11

  • Offline Donations

    $15

  • Maria Ploth

    $10

  • Yoda

    $50

  • Jessica Humbert

    $10

  • Dr. Nicole & JJ (Phys. Assist) Dimas

    $26

  • Elise Marie Myrvang Eikeland

    $15

  • Tiffany Lowe

    $10

  • Patricia and Riley Harrington

    $10

  • Carlo Garcia

    $10

  • Donna Valenti

    $30

  • Marc Viloria

    $40

  • Susanne B.

    $10

  • Bala Kolluru

    $10

  • Aunt Joann and Family

    $25

  • Tara, Barrett and Gracie

    $30

  • Jaimes Thorpe

    $11

  • Adrianne Wonnacott

    $20

  • Michele and Eric Cwiertny

    $10

  • Mary Frank

    $16

  • Patricia and Riley Harrington

    $11

  • Jasmin H

    $30

  • Jerome Van Husen

    $50

  • Adrianne Wonnacott

    $20

  • Katherine Schmerzler

    $25

  • Judy Ahmuty

    $100

  • Adrianne Wonnacott

    $50

  • Barbara Brown

    $10

  • Isabella Dimas

    $50

  • Michele

    $28

  • Jaimes Thorpe

    $15

  • Ana Sabino

    $12

  • Michele

    $11

  • Amanda Darby

    $15

  • Jerome Van Husen

    $100

  • Amanda Darby

    $12

  • Anonymous

    $15

  • Nicole & JJ

    $10

  • Bala Kolluru

    $10

  • Michele

    $11

  • Vine Multimedia LLC

    $17

  • Matt Roberts

    $10

  • Jerome Van Husen

    $20

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55% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $1,650 TOTAL RAISED SO FAR

Fundraiser Title

Nicole & JJ

Amount Raised:

$1,234

 

41% Raised of $3,000 Goal

Fundraiser Title

Adrianne W

Amount Raised:

$250

Fundraiser Title

Catherine Newland

Amount Raised:

$50

Fundraiser Title

Amanda Darby

Amount Raised:

$49

Fundraiser Title

LINDA DIMAS

Amount Raised:

$47

Fundraiser Title

Patricia and Riley Harrington

Amount Raised:

$20

Fundraiser Title

Ayesha Ghazanfar

Amount Raised:

$0

Fundraiser Title

Kristin Harrison

Amount Raised:

$0

Donor Comments

Nicole & JJ

Nicole & JJ

DONATION: $10

For My JJ! Love You XOXO 3 years ago

Anonymous

ANONYMOUS

DONATION: $15

:D 3 years ago

Amanda Darby

Amanda Darby

DONATION: $12

Sending a hug to you both! xo 3 years ago

Jerome Van Husen

Jerome Van Husen

DONATION: $100

Congrats to JJ for being on the cover. I hope all is well. 3 years ago

Amanda Darby

Amanda Darby

DONATION: $15

Happy Birthday JJ!!!! Hope you have a wonderful day with lots of cake! Sending you a big hug from England xoxo 3 years ago