International Essential Trem...

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The International Essential Tremor Foundation (IETF)
Founded in 1988 as a 501(c)(3) non-profit membership organization, the IETF is guided by an executive board of directors, a medical advisory board and an executive director with a staff of four. The organization's membership consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.

Our Mission
To provide global educational information, services and support to those affected by essential tremor (ET), and to health care providers, while promoting and funding ET research.

Awareness and Support
The IETF mails or emails a free information packet about ET upon request, maintains an updated listing of physicians specializing in ET, and assists with forming and maintaining ET support groups. In addition, the IETF conducts several free educational events in cities across the United States annually, and an annual research and awareness campaign that runs in conjunction with the organization's largest fundraising activity, Tulips for Tremors, and additional specialized awareness campaigns.

Research
Every year, the IETF also funds basic research into the cause(s) of ET. Grants are awarded to established scientists whose primary interest is tremor disorders. The IETF funds this program in the hope that these scientists will collect sufficient published data to help them qualify for future federal funding that will lead to better treatments and a cure.

Resources
IETF members receive two issues per year of the member magazine, Tremor Talk and three issues of the research newsletter, The Scoop on Tremor. Articles in both publications are written for non-medically trained persons and discuss recent advances in research, coping techniques and topics of general interest to those with ET. Medical and research articles are written by physicians and researchers who work with patients with ET and/or study ET in laboratories.