jonny lee miller's Fundraiser:

Jonah's Just Begun - Foundation to cure Sanfilippo

jonny lee's Photo
jonny lee's Photo

THE STORY:

We desperately need to find a cure for children suffering from Sanfilippo Syndrome.  This ultra rare disease leads children to suffer brain damage, bone deformities and organ failure, and eventually death, often by their teenage years.   People’s kindness is the only way to fund the search for a cure since Sanfilippo is not being paid attention to by big pharmaceutical companies.   On behalf of Jonah’s Just Begun, I ran my first 50-mile ultramarathon at Bear Mountain to bring awareness to this most urgent fight to help save kids like Jonah.  If everyone gives something today, then the research and studies can be done.  For more info go to www.jonahsjustbegun.org.  Do something amazing and help us help these kids!!  Donations are tax-deductible. Thank you!!!!!!!!!!

I am running ANOTHER 50 miles on sep 29th. Then the NYC marathon in november. I will continue to run for JJB until we reach our goal of a cure. PLEASE HELP US REACH THIS TARGET. WE ARE NEARLY THERE!!!! THANK YOU!!!!!

DONATE

To This Fundraiser

$172,355

MONEY RAISED
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  • Anonymous

    $50

  • John & Patricia Hoffman

    $30

  • Anonymous

    $25

  • Dennis Lysy

    $25

  • Anonymous

    $10

  • Cherie

    $15

  • Trudy & Steven Anolik

    $25

  • Chris Cantrell

    $10

  • David Monterosso

    $10

  • Anonymous

    $50

  • M3engine... Group PC

    $100

  • Sue Carswell

    $75

  • Anonymous

    $10

  • Anita Britch

    $250

  • Anonymous

    $10

  • Mlty Louise

    $20

  • Anonymous

    $10

  • Thelma L. Greaves & Rene Hawkins

    $100

  • Karen Heavener

    $15

  • angelina jolie

    $5,000

  • Jana Donnell-...

    $100

  • Susanne and Fred Hersh

    $20

  • Naomi Yoelin

    $100

  • Lisa Heerman

    $50

  • Anonymous

    $100

  • Anonymous

    $1,000

  • Rickie C Marecek

    $10

  • Karen Owens

    $30

  • Lauren & Walter

    $50

  • Jamie Mandelbaum

    $250

  • Kenzie Davis

    $50

  • Anonymous

    $1,500

  • Anonymous

     

  • Rob & Carl

    $500

  • Jonathan Filley

    $350

  • Katy Collett

    $50

  • Anna Bradley

    $520

  • Joelle Troisi

    $100

  • Anonymous

     

  • Costume Dept

    $50

  • Anonymous

    $50

  • Evelyn Schaffer

    $18

  • Anonymous

    $100

  • David Kuzia

    $25

  • Bob & Phyllis

    $50

  • Janet Royal

     

  • Flippet

     

  • Anonymous

    $25

  • Trish Giarraputo

    $25

  • Susan

    $450

  • Anonymous

    $25

  • Anonymous

    $10

  • Anon

    $50

  • Alison Jedan

    $25

  • Jill Footlick, Michael and Owen Shaw

    $100

  • Mike Stunts

    $100

  • Jeremy Specce

     

  • Catherine Cook

    $50

  • Sam Kronis

    $25

  • James P

     

  • Katherine May Williams

     

  • Jonah Weishaar

    $50

  • Captain Gregson

    $1,500

  • Catherine Cook

    $50

  • Criterion 508 Solutions, Inc.

    $1,370

  • Anonymous

    $10

  • MJ

    $25

  • Child Deirdre

    $20

  • Flippet

     

  • Flippet

     

  • Anonymous

    $10

  • Salvatore Sutera

    $180

  • Catherine Cook

    $50

  • Trudy and Joe Burger

    $50

  • Flippet

     

  • JONAHS JUST BEGUN-FO... TO CURE SANFILIP...

    $50

  • Glenn O'Neill

    $100

  • Evelyn Schaffer

    $15

  • Rick Delaney

    $20

  • Anonymous

    $20

  • Barbara Frey

    $25

  • Anonymous

    $30

  • Anonymous

    $250

  • Anonymous

    $50

  • Lisa and Erik Simshauser

    $25

  • Flippet

    $50

  • Mo

    $500

  • D. Campbell

    $20

  • Gay Watmore

    $50

  • Laurie/E...

     

  • Flippet

     

  • Anonymous

    $100

  • Ivan Semian

    $250

  • Jen K

    $25

  • Flippet

     

  • Rachael MacKinnon

     

  • Pamela Wong

    $100

  • Des Moines Hockey

    $50

  • Flippet

     

  • Scaccia Family

    $50

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108% Raised of $160,000 Goal

Donor Comments

Scaccia Family

Scaccia Family

DONATION: $50

1 week ago

Flippet

Flippet

Boom shack a lack indeed. Who knew that laughter could make a wallet fall open? 2 weeks ago

Des Moines Hockey

Des Moines Hockey

DONATION: $50

Des Moines Hockey: Jonah, Did you know your jersey number is one of the most penalized in the league! Wishing you well! 2 weeks ago

Pamela Wong

Pamela Wong

DONATION: $100

4 weeks ago

Rachael MacKinnon

Rachael MacKinnon

Silly "Stunt baby' bet aside...may Jonah and all those families and children fighting S.F.S. be the real winners... 1 month ago