Lorenzo's Oil, after the movie

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Bradley Gillespie's Fundraiser:

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@Gillespiebk

@JMHaughey thanks, much. I know you are busy (and that is good!). Have a lovely weekend.

via Twitter for iPhone 3 years ago

BENEFITING: KENNEDY KRIEGER FOUNDATION INC

THE STORY:

Some of the old timers may well remember the film Lorenzo’s Oil. While most of the movie is authentic, the happy ending, frolicking boys free of disease may be a bit of an exaggeration. Nevertheless, published research (Moser HW, Raymond RV, Lu SE, et al. Follow-up of 89 asymptomatic patients with adrenoleukodystrophy treated with lorenzo’s oil. Arch Neurol. 2005;62:1073-80) suggested that the Oil may be beneficial for pre-symptomatic boys. So, while not proven, it is generally accepted that all boys testing positive for the gene mutation should be getting Lorenzo's Oil. Some of these guys will most certainly die. While we don't know for sure that the oil will keep them alive, we think it is a good thing, and is definitely better than what is in second place.

Problem is, the only access to the Oil is through a study, at the Kennedy-Krieger Institute (http://www.kennedykrieger.org/). Like most of us these days, they are low on cash- they have a number of boys waiting to go on the trial, but there is not enough funding to get it done. I have set out to try and get some money for this important cause. So far, pretty good, as soon as I begin talking about the boys, most immediately open their checkbook. Really amazing and makes me want to give them a hug.

If anyone wants to discuss the project, feel free to contact me at bradleykgillespie@yahoo.com.

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To This Fundraiser

$8,279

MONEY RAISED

Bradley Gillespie

$100
Brad Gillespie

$10
Mike Dobbles

$100
Anonymous

$50
Susie Sylvester Duggal

$100
Anonymous

$500
Michelle and Dan

$100
Wayne and JoAnne Jacobsen

$100
Jeann Gillespie

$100
The Richter Family

$50
Anonymous

$50
Bruce

$100
The Schwallie Family

$100
Gretchen

$100
Robbin and Don Close

$50
The Vaccaro Family

$50
Fazilat and Shahrukh Jumani

$100
Ha Family

$100
Stephanie Park

$200
Anonymous

$25
Raymond, Adrienne, Alanah, and Alex Hahn

$100
Najia Arrihani

$10
Dilley Family

$50
Ron Gillespie

$50
Eva

$10
The Johnson Family

$100
G, C & A

$125
Adrianne Wonnacott

$99
Dr. Bradley Gillespie, Featured Human Pe...

$25
Mary Frank

$15
Sandy

$200
Margo

$50
Ken & Gerry Gillespie

$100
Dev Technology group, Inc.

$500
Patrick Webb

$10
Ledell, Inc

$600
Trisha Doyle

$100
Offline Donations

$4,025
Sheryl Hoskins

$25

8% Raised of $100,000 Goal

SET UP YOUR FUNDRAISER

The Team: $8,279 TOTAL RAISED SO FAR

JOIN THE TEAM

Bradley Gillespie

Amount Raised:

$8,279

8% Raised of $100,000 Goal

Susie Duggal

Amount Raised:

$0

April Winter-Bruno

Amount Raised:

$0

DONORS

Jeann Gillespie

DONATION: $100

Hi sweetie. Working on making my own page for you. The boys are lucky to have you. 3 years ago

Wayne and JoAnne Jacobsen

DONATION: $100

3 years ago

Michelle and Dan

DONATION: $100

3 years ago

ANONYMOUS

DONATION: $500

Thanks for being there Bradley. Uncle Tom 3 years ago

Susie Sylvester Duggal

DONATION: $100

3 years ago

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192.168.100.192

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Bradley Gillespie's Fundraiser: