Deborah Pfann's Fundraiser:

Team RDS Runners San Francisco Marathon 2012

Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo
Deborah's Photo

THE STORY:

My adorable niece, Avery Grace Gordon, was born on September 26, 2010 with Trisomy 21 - more commonly known as Down Syndrome.  She has triumphed through a miriad of health challenges, including heart surgery at 2 mos old that had complications.  It resulted in breathing difficulties and ultimately needing a trach to survive.  During these first 21 months, she has not allowed her health challenges slow her down, managing to learn sign language (currently ~100 signs), start potty training and to consistantly learn new things from her amazing parents.  I'm running the 1/2 marathon in honor of Avery and to fundraise for Research Down Syndrome (RDS) which helps research safe and effective therapies to improve learning and memory in persons with Down Syndrome.    

07/06/2012: A wonderful update to Avery's story:  she was able to have her trach removed this week!  While there are still potential issues associated with the complication during surgery, this was a huge step forward for both her and her parents.  This has provided further inspiration towards my goal of finding ways to help her and others with Downs Syndrome, people that should never be underestimated in what they can accomplish!!

Thank you, Avery, for being such a wonderful, smart and adorable motivator!!!

You can read more of her story at:

http://www.caringbridge.org/visit/averygordon

(note - you may be required to set up an account with Caringbridge if you don't already have one) Thank you!!!

DONATE

To This Fundraiser

$1,500

MONEY RAISED
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  • Me

    $100

  • Jeanne and Bob Bucci

    $150

  • JMS

    $50

  • TJG

    $100

  • Denise McCurry

    $100

  • Mary OConnor

    $50

  • Turla Tribe

    $10

  • Gurvinder Bahra

    $20

  • Nana and Papa

    $500

  • Carolyn Negrin

    $30

  • Ron Carino

    $50

  • The Down Syndrome Connection of the Bay ...

    $340

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100% Raised of $1,500 Goal

Fundraise for this Campaign

The Team: $8,202 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Melanie Beiling

Amount Raised:

$2,040

Fundraiser Title

megan mozart

Amount Raised:

$1,630

 

163% Raised of $1,000 Goal

Fundraiser Title

Deborah Pfann

Amount Raised:

$1,500

 

100% Raised of $1,500 Goal

Fundraiser Title

Andy Cyr

Amount Raised:

$1,495

Fundraiser Title

Hannah Ehrenhardt

Amount Raised:

$1,181

Fundraiser Title

Leticia Meraz

Amount Raised:

$306

Fundraiser Title

Aretha Chandler

Amount Raised:

$25

Fundraiser Title

Gabby Trejo

Amount Raised:

$25

Donor Comments

The Down Syndrome Connection of the Bay Area

The Down Syndrome Connection of the Bay Area

DONATION: $340

In honor of sweet Avery who we have been blessed to watch grow and gain her independence without a trach. Thank you for running for Avery!! 2 years ago

Ron Carino

Ron Carino

DONATION: $50

2 years ago

Carolyn Negrin

Carolyn Negrin

DONATION: $30

2 years ago

Nana and Papa

Nana and Papa

DONATION: $500

2 years ago

Gurvinder Bahra

Gurvinder Bahra

DONATION: $20

Goodluck Deborah. A great cause. 2 years ago