Tonya Williams' Fundraiser:
Running for Tripp and EB Awareness
BENEFITING: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
ORGANIZER: Scott
EVENT DATE: Mar 04, 2012
THE STORY:
Scott Walker wrote -
**IF ANYONE ELSE WOULD LIKE TO JOIN MY TEAM AND RAISE MONEY FOR TRIPP AND EB AWARENESS, EMAIL ME AT SCOTTWALKER@HEARST.COM. **
Tripp Roth was born May 14, 2009. He was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin causes painful blisters. Doctors said he wouldn't live to be a year old, but Tripp is still fighting.
Every day for Tripp is a miracle. He lost eyesight and speech from scarring, breathes with the help of a tracheal tube and takes sedatives to get through the three hours it takes to bathe him every other day. His entire body is wrapped in protective bandages.
Tripp hasn't played outside in more than a year. His mom Courtney spends her days inside their Ponchatoula home, holding him in a rocking chair.
The hospital trips are frequent. The antibiotics work until they stop. The infections are constant and there is no cure.
I'm running to raise money for Tripp's mounting medical expenses and to donate money to DebRA of America - Dystrophic Epidermolysis Bullosa Research Association.
Please help bring attention to this horrible disease.
You can read more about Tripp at: http://www.randycourtneytripproth.blogspot.com
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