Talia Boati's Fundraiser:

Running for Tripp and EB Awareness

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Talia

Tripp is a precious Angel who changed my life. Let's help Scott in his fight vs EB so that no more children or adults will have to suffer

via Crowdrise 2 years ago

BENEFITING: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

ORGANIZER: Scott

EVENT DATE: Mar 04, 2012

THE STORY:

Scott Walker wrote -

Up next: The Crescent City Classic! Team Tripp will hit the streets of New Orleans once again on April 7th.

On March 4th, I ran the Rock 'n' Roll Half Marathon in New Orleans in memory of Tripp Roth, to heighten EB awareness and to raise money for DebRA of America - the Dystrophic Epidermolysis Bullosa Research Association. 

Please help bring me bring attention to this horrible disease.

Tripp was born May 14, 2009. He died on January 14, 2012.

Tripp, who lived with his mother in Ponchatoula, was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin caused painful blisters. Doctors said he wouldn't live to be a year old. He made it two-and-a-half years before losing his long, brave battle.

But the fight in his honor continues.

You can read more about Tripp's journey here: http://www.randycourtneytripproth.blogspot.com. 

The Team: $45,350 TOTAL RAISED SO FAR

Fundraiser Title

Scott Walker

Amount Raised:

$34,508

 

115% Raised of $30,000 Goal

Fundraiser Title

Chris Audler

Amount Raised:

$1,855

 

37% Raised of $5,000 Goal

Fundraiser Title

Ethan Murray

Amount Raised:

$1,405

Fundraiser Title

Melanie Foster

Amount Raised:

$1,075

 

72% Raised of $1,500 Goal

Fundraiser Title

DIANNE COTHERN

Amount Raised:

$755

Fundraiser Title

Sarah Hammell

Amount Raised:

$560

 

56% Raised of $1,000 Goal

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Susan James

Amount Raised:

$500

Fundraiser Title

Jenny Finnerman

Amount Raised:

$400

Donor Comments

Talia

Talia

DONATION: $300

In loving memory of Tripp Roth. 2 years ago