Kathleen Twible's Fundraiser:

Team JGSF NYC Marathon 2013

Kathleen's Photo
Kathleen's Photo
Kathleen's Photo
Kathleen's Photo
Kathleen's Photo

THE STORY:

 

Dear Family and friends,

So yes, I am stll running....

On November 3, 2013, I will be running the 2013 NYC marathon in honor of my son Robert John Twible.  I will be running with team JGSF in order to find a cure for EB. Today we are closer to a cure than ever before.  

Robert continues to fight the fight everyday- he has recently graduated from Elementary School and will be heading off to Middle School in September.  This year he had an amazing time in 5th grade as he was able to be a part of his school play Aladdin.(Yeah Ms. A and Ms. H !!)  He loved being on stage with his friends. Robbie gets up everyday and works through the pain and blistering.  Lately, walking has become more difficult for him and his mobility is limited- but he never gives up- and continues to teach us all- Through him I have learned how precious life is and how not to sweat the small stuff.

Finding a cure for this awful disease is a must.  As his mommy, I refuse to sit and watch as EB takes over his body- so yes I am still running and will continue to fight to end his pain.  Please join me in my efforts in finding a cure for EB- I want Robbie to live this life pain free-able to do all of the things he loves-  Together we can make a difference and be closer to a cure!!  To learn more about EB and JGSF visit www.jgsf.org.

 

Much love,

Kathy 

 

The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB").  EB is a devastating and life-threatening skin condition that affects children from birth.  Individuals with EB lack a critical protein that binds the layers of skin together.  Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.  

The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota.  In three short years, JGSF has raised over $1.5 million and has made a significant difference in the field of EB research and the pursuit of a cure.  

Thank you all for your support in continuing our mission!

DONATE

To This Fundraiser

$5,070

MONEY RAISED
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  • Carrie Atchison

    $200

  • Ivy Miller

    $25

  • Michele Garbien

     

  • Jessica Citrin

     

  • Thomas, Sean and John

    $100

  • Maureen, Mike, Samantha & Michael

    $100

  • Andrea Gerstenb...

    $100

  • Savarese Family

    $100

  • Karen & Vinny Stracqua...

    $50

  • Profeta family

    $100

  • Sammy and Amy and Lee

    $50

  • Lauren Rook

    $50

  • Mindy Hoffman

     

  • Ulmann family

    $100

  • Shari Rich

     

  • Susan Hyde

     

  • Amy Vogel

     

  • Michael & Danielle Balestra and Fami...

    $50

  • Ellie Gordon

    $25

  • Helene Scharf

     

  • LG

     

  • Hot Chocolate for Robbie

    $600

  • Marie McCarthy

    $40

  • Barbara Eisenberg

    $100

  • The Floridia Family

    $100

  • The O'Connells

    $25

  • Anonymous

    $20

  • Orla Bowie

    $25

  • Bobby and Heather Evers

    $50

  • The McElroys

    $20

  • Mary Hauck (Searing... School)

    $25

  • amy kubel

     

  • Tom and Sharon Murphy

    $100

  • Aiello Family

    $50

  • Stephanie Aiello

    $25

  • in memory of Nate Caruso (JEB-her...

    $250

  • Jaclyn Carlo

    $20

  • Erin Wilder

    $100

  • Patti Russo

     

  • Brian & Jeanne Murphy

    $250

  • Grace Murphy

    $50

  • John & Larisa Murphy

    $250

  • Misisco

    $500

  • Andrea Somma

    $25

  • Brian Kiernan

    $100

  • The Constant... Family

    $50

  • The Korman Family

    $100

  • Erin, Max and Abby Dunlap

    $50

  • The Margolnick Family

    $30

  • The Kaufman Family

    $150

  • Jamie Kaufman

     

  • Searingt... friends

    $35

  • Charlotte and Ryan Kenny

    $200

  • The Kern Family

    $20

  • Frank, Ginny, Frankie, and Henry Murphy

    $50

  • Anna and Richie D'Egidio

    $25

  • Terriann, Michael, Jack & Meghan But...

    $50

  • Jodie Ruggiano

    $25

  • Patricia Fruda

    $25

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Fundraise for this Campaign

The Team: $52,478 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Tavani

Amount Raised:

$10,225

 

409% Raised of $2,500 Goal

Fundraiser Title

Siofra Potash

Amount Raised:

$7,202

 

144% Raised of $5,000 Goal

Fundraiser Title

Kathleen Twible

Amount Raised:

$5,070

Fundraiser Title

Drew DeMasters

Amount Raised:

$4,185

 

140% Raised of $3,000 Goal

Fundraiser Title

kate riivald

Amount Raised:

$4,060

 

81% Raised of $5,000 Goal

Fundraiser Title

Kara McGann

Amount Raised:

$4,045

 

162% Raised of $2,500 Goal

Fundraiser Title

Jason Koenig

Amount Raised:

$3,347

 

112% Raised of $3,000 Goal

Fundraiser Title

Benjamin Wegman

Amount Raised:

$3,045

 

122% Raised of $2,500 Goal

Donor Comments

Patricia Fruda

Patricia Fruda

DONATION: $25

5 months ago

Jodie Ruggiano

Jodie Ruggiano

DONATION: $25

5 months ago

Terriann, Michael, Jack & Meghan Butler

Terriann, Michael, Jack & Meghan Butler

DONATION: $50

5 months ago

Anna and Richie D'Egidio

Anna and Richie D'Egidio

DONATION: $25

5 months ago

Frank, Ginny, Frankie, and Henry Murphy

Frank, Ginny, Frankie, and Henry Murphy

DONATION: $50

5 months ago