Anthony Zarrella's Fundraiser:
Team JGSF NYC Half Marathon 2012
Anthony...
I am honored to be running for Jackson Gabriel Silver and John Hudson Dilgen and to be part of the JGSF Team.
via Crowdrise 4 months ago
Team Member:
Anthony
Anthony
BENEFITING: JACKSON GABRIEL SILVER FOUNDATION INC
ORGANIZER: JACKSON GABRIEL SILVER FOUNDATION INC
EVENT: NYC Half 2012
EVENT DATE: Mar 18, 2012
HERE'S THE STORY:
ORGANIZER: JACKSON GABRIEL SILVER FOUNDATION INC
EVENT: NYC Half 2012
EVENT DATE: Mar 18, 2012
HERE'S THE STORY:
JACKSON GABRIEL SILVER FOUNDATION INC wrote -
The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.
Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.
Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed. Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life.
But, there is good news . . . There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB.
The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.
DONATE
JOIN THE TEAM
$2,340
RAISED
DONATIONS
| Anthony Zarrella | |
| Team Zarrella | $100 |
| Vicino Family | $25 |
| Jackie and Julie Moses | $25 |
| Karen Parker | |
| Laura Valentine | $25 |
| Franz/Hv... Family | $25 |
| Lend Lease (US) Construc... LMB Inc. | $1,000 |
| Joe, Theresa, Matt & Melissa Zarrella | $200 |
| Mom and Dad Zarrella | $50 |
| Troxell Family | $50 |
| Debbie and John | $50 |
| Kathy Caria & Family | $25 |
| The Chipura Family | $50 |
| Anonymous | $50 |
| The Kehoe family | $40 |
| Alan, Christine and Giana | $100 |
| rich murphy | $25 |
| Brian | |
| Kershaw Family | $50 |
| The Pantaleone family | $50 |
| The Mattei Family | $150 |
DONOR:
close
close
DONATION: $150