Helen Dennis' Fundraiser:

Team JGSF NYC Half Marathon 2012

Helen's Primary Photo
Team JGSF NYC Half Marathon 2012 Photo Team JGSF NYC Half Marathon 2012 Photo Team JGSF NYC Half Marathon 2012 Photo Team JGSF NYC Half Marathon 2012 Photo
Helen...
A long run planned this weekend with teammate Sarah! And only a few limited edition artworks left for donations of $40 & up, so donate! asap
via Crowdrise 3 months ago
Project Owner, Helen's Photo
Team Member:
Helen


BENEFITING: JACKSON GABRIEL SILVER FOUNDATION INC
ORGANIZER: JACKSON GABRIEL SILVER FOUNDATION INC
EVENT: NYC Half 2012
EVENT DATE: Mar 18, 2012
AMOUNT RAISED OFFLINE: $50.00
HERE'S THE STORY:

JACKSON GABRIEL SILVER FOUNDATION INC wrote -

 

The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. 

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed.  Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

But, there is good news . . .  There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB. 

The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.

 
  DONATE  

$2,125

RAISED
DONATIONS
Helen Dennis $50
Brian Dennis $50
Andrea Wiskin $15
Mrs F-T $15
Mark & Tema Bomback $150
Anonymous $100
Jennifer Klaus & Justin Wallentin $50
Lauren Stanley & Jon Fidge $50
Aaron Etra $50
Jackson $50
keri patton $50
Frederic Ozaneaux $100
Virginia Cheng $100
Jen Maufrais Kelly $50
Susanna $20
Scott and Miwa Murphy $60
The Beaumonts $50
Dave Ryder $100
Sarah Perry $40
Yanis Ben Amor $50
A&M&a $40
Michael Gersh $50
Dean Camper $40
Dave MacKay $40
Yumiko Higaki $40
Annette Dennis $50
Euan Harvey $100
MargeryN... $40
Lily D $50
amy $40
Mrs F-T  
Ayelet Danielle Aldouby $50
Anne M $40
Katherine Newbegin $25
Joseph C $50
Win and Joy $30
Mary Kinsella $50
Imke & Karsten $50
tom & ro $50
steven $40
  JOIN THE TEAM  
TOTAL RAISED SO FAR

 $54,976

Faye Dilgen's Photo
Faye Dilgen $6,355

DONORS

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Jackson DONOR: Jackson
DONATION: $50

Thank for you for honoring Jackson and celebrating his love of trains (steams and subways alike)
3 months ago
Aaron Etra DONOR: Aaron Etra
DONATION: $50

In support of one who brings the best of values and talents to all she does.
3 months ago
Lauren Stanley & Jon Fidge DONOR: Lauren Stanley & Jon Fidge
DONATION: $50

3 months ago
Jennifer Klaus & Justin Wallentin DONOR: Jennifer Klaus & Justin Wallentin
DONATION: $50

3 months ago
Anonymous DONOR: ANONYMOUS
DONATION: $100

Helen, I'm so sorry the pain your friends must endure a daily basis. Thank You for bringing this to my attention. Kathy
3 months ago
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