Kathleen Twible's Fundraiser:

Team JGSF NYC Half Marathon 2012

Kathleen's Photo
Kathleen's Photo
Kathleen's Photo
Kathleen's Photo

Kathleen

Thank you for all of your support. Every dollar makes a difference. Together we can find a cure for this horrible disease. Love You All!!

via Crowdrise 2 years ago

BENEFITING: JACKSON GABRIEL SILVER FOUNDATION INC

ORGANIZER: JACKSON GABRIEL SILVER FOUNDATION INC

EVENT: NYC Half 2012

EVENT DATE: Mar 18, 2012

THE STORY:

Dear Family and Friends,

On Sunday, March 18, 2012, I will be running the NYC Half Marathon in honor of my son Robert John Twible.  I will be a member of the Jackson Gabriel Silver Foundation team.  My friends Alex and Jamie are proud parents of Jackson who, like Robert, suffers from Epidermolysis Bullosa. They have established this non for profit organization determined to find a cure for this devastating disease.  They have given our family so much hope as progress is being made.  I am honored to be apart of this team and raise funds solely for the purpose of research. 

 Robert suffers everyday from EB.  He often wakes up in the middle of the night in pain from blistering and the lack of skin on his legs.  He endures a two hour bath and bandage change everyday in order to prevent infection.  Moving from place to place is a challenge that he must face everyday.  Everyday things such as putting on clothes and zippering a jacket are difficult for him.  Eating is also difficult and to aid in his nutrition he is hooked up to a feeding tube every night.   Definitely not things that are typical in the life of a nine year old boy.  

With all that he goes through, Robert continues to fight the fight.  He gets up for school everyday, puts on his sneakers and gets on the bus.  He is a smart boy who loves to sing and to perform on stage.  I am in awe of him. He is in pain and rarely lets you know it. He loves to make people laugh and makes me smile everyday.  I am honored to be his mother.

Please join me in an effort to find a cure for Robert.  He is my life and I run so that one day he will walk without bandages on his legs and blisters on his feet.  With your help I know that we will be closer to a cure!!!

Much love,

Kathy xoxoxoxox 

DONATE

To This Fundraiser

$7,216

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Colleen Martin

    $20

  • Elizabeth Cox

    $20

  • Barbara Manzi Harkins

    $20

  • Leslie Busch

    $50

  • Jeanne & Brian

    $500

  • John, Annie, Andrew and Chris

    $100

  • Tommy, Kerri, Thomas, Sean and John

    $100

  • Shane and Librania

    $75

  • Lauren & Kyle

    $50

  • Chris Goode

    $20

  • EBBU Team

    $150

  • Andrea Gerstenb...

    $100

  • Tom and Sharon

    $40

  • Laura Goldstein

     

  • Lauren Rook

    $40

  • Dori Yakuel

     

  • Gayle Ulmann

    $100

  • Donna & John Profeta

    $100

  • Jim, Michele and Lauren Foote

    $75

  • Erin

    $100

  • Uncle Tom & Aunt Nora

    $150

  • Chris & Maura

    $50

  • The Sporton's

    $50

  • Keelin Reilly

    $100

  • Thanh Le

    $200

  • Melissa

     

  • Andrea and Kevin Kohlmier

    $100

  • Lois Stergiop...

    $50

  • robbies nana

    $500

  • Anna Reda and Family

    $200

  • Harry and Sharon Fryer

    $50

  • Liz and Bill Neumeister

    $25

  • Melanie Petrone Andersen

    $20

  • Samantha and Michael

    $50

  • Deirdre and Mike Kenny

    $200

  • Poppy Bob Twible

    $50

  • Bobby and Heather Evers

    $100

  • Trish & Guy Fruda

    $100

  • The D'Egidio Family

    $25

  • Amanda Gomez

    $20

  • Anonymous

    $20

  • Aunt Debbie, Uncl Andrew, Danielle Nicol...

     

  • finkel family

     

  • Linda, Sarah and all the McElroys

    $20

  • Liz, Mark, Heather, Matt, Dani and Laura...

    $100

  • Shari Rich

     

  • Kevin, Dawn, Jenna, Kristen & TJ Cox

    $25

  • Chrissy Strohmeier and family

    $20

  • Joanne & Frank Russo

    $50

  • Liz Cox

    $25

  • Patty, Kevin, Kelsey & Kevin McCabe

    $25

  • Maddy Constant...

    $50

  • Carol Ann and the Shelmet Family

    $260

  • Denise Sampogne

     

  • Nicole and Cristina

    $100

  • Ivy Miller

    $25

  • Amy Vogel

     

  • The Kaufman Family

    $100

  • Amy Kubel

     

  • Amy, Lee, and Sammy

    $25

  • Mike,Pau... & Shannon

    $50

  • Margaret and Paul Battaglia

    $50

  • JFK Sunshine Club

    $100

  • Margaret Korcynski

    $25

  • Lisa Iuculano

    $25

  • Regina Savarese

    $50

  • Barbara & Mike Eisenberg and Ellie

    $100

  • Nora & Michael Braito

    $100

  • Ellen Hersh

    $25

  • Jay, Monisha, Jasmine & Jaiden Berge...

    $100

  • Velez Terry Family

    $200

  • Michelle Charlesw... and kids

    $340

  • Leslie Simon

    $100

  • The Kerrane Family

     

  • Anonymous

    $50

  • Judy and Roy Viskupic

    $100

  • Karen Stracqua...

     

  • Troy Rambo

    $50

  • Anonymous

     

  • Jessica H

    $50

  • Erin Wilder

    $50

  • Annie Ugurlayan

    $25

  • jake, nick and dylan

    $500

  • Michele Disco

    $91

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $55,267 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Kathleen Twible

Amount Raised:

$7,216

Fundraiser Title

JACKSON GABRIEL SILVER FOUNDATION I...

Amount Raised:

$7,106

 

28% Raised of $25,000 Goal

Fundraiser Title

Faye Dilgen

Amount Raised:

$6,555

Fundraiser Title

Denise Summers

Amount Raised:

$5,875

 

196% Raised of $3,000 Goal

Fundraiser Title

elizabeth Morano

Amount Raised:

$3,048

 

203% Raised of $1,500 Goal

Fundraiser Title

Terasha Johnson

Amount Raised:

$3,005

Fundraiser Title

Tracy Katz

Amount Raised:

$2,795

 

140% Raised of $2,000 Goal

Fundraiser Title

KaDee Troop

Amount Raised:

$2,761

Donor Comments

Michele Disco

Michele Disco

DONATION: $91

1 year ago

jake, nick and dylan

jake, nick and dylan

DONATION: $500

2 years ago

Annie Ugurlayan

Annie Ugurlayan

DONATION: $25

2 years ago

Erin Wilder

Erin Wilder

DONATION: $50

2 years ago

Jessica H

Jessica H

DONATION: $50

2 years ago