Team Rett Boston Marathon 2012

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Jeanne Troy's Fundraiser:

Jeanne

My daughter Charlotte has Rett Syndrome. Please help the researchers to find a cure for this terrible disease that robbed her of so much.

via Crowdrise 2 years ago

BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS

ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS

EVENT: 2012 Boston Marathon

EVENT DATE: Apr 16, 2012

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

DONATE

To This Fundraiser

$6,501

MONEY RAISED

Norris family

$50
Meredith's Grandma

$50
Anonymous

$100
christine farrell-...

$100
Missy Dee

$50
The Gallagher Family

$50
The Lundt Family

$100
The Knox Family

$100
Liz Frawley

$50
Anne Falvey

$50
Jack O Bocchino

$15
Cathy McAuliffe

$25
Scott & Amy Osband

$50
Paola Lloyd
Mary Joyce Griffin

$25
Karen Benjamin

$100
Lori Puglisi

$25
Eric Marhafer

$50
Mike Yaffe

$25
Alex Horan

$20
Natalie Pace

$25
Brandi & Ben

$100
Carrie Strasser

$25
Rita Troy

$100
Kris & Scott H

$80
Jeff & Rita

$100
Kris & Scott Heavner

$100
Leah Sturtevant
Ann and John McManus

$50
Ilene Feldman
Charlottes #1 FAN!

$100
Monica B

$30
The morrisons

$50
Peter Burdick

$100
J & M Brezinski

$50
The harringt...

$100
K Murphy

$50
Devyn

$40
Kelly S

$50
Sara, Jane & Rob Bullen

$50
Patrick & Trina Kandianis

$250
Nancy & John Pino

$50
Troy Family Charity Event

$3,281
Nicole Piotrowicz

$20
The Spiewako...

$100
Marcia Hudgins

$25
Jeanne Higgins

$50
Kristen McGilliv...

$50
Cassandra Tower

$20
Dan Buckley

$50
Susan & Robert Bullen

$10
Dawn Nee & Family

$50
The Gomes Family

$100
Jim Daniel

$50

SET UP YOUR FUNDRAISER

The Team: $116,345 TOTAL RAISED SO FAR

Laura Lewis

Amount Raised:

$15,351

Courtney Bonzey

Amount Raised:

$9,752

195% Raised of $5,000 Goal

Megan Kolendrianos

Amount Raised:

$8,250

christina oliver

Amount Raised:

$7,765

Kathryn Decelles

Amount Raised:

$7,549

Jeanne Troy

Amount Raised:

$6,501

Geoff Gillard

Amount Raised:

$6,500

Courtney Railton

Amount Raised:

$6,225

SHOW ALL

DONORS

Kelly S

DONATION: $50

1 year ago

Devyn

DONATION: $40

1 year ago

K Murphy

DONATION: $50

1 year ago

The harringtons

DONATION: $100

1 year ago

J & M Brezinski

DONATION: $50

For Charlotte. Run Jeannie! 1 year ago

See all Donations

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