Kathryn Decelles' Fundraiser:

Team Rett Boston Marathon 2012

Kathryn's Photo
Kathryn's Photo
Kathryn's Photo
Kathryn's Photo
Kathryn's Photo
Kathryn's Photo
Kathryn's Photo

Kathryn

When the world says, Give Up," Hope whispers, "Try it one more time." Believe!!!

via Crowdrise 2 years ago

THE STORY:

My niece Caroline Joyce and her family have been fighting a battle for eleven years.  The battle is called Rett Syndrome, a rare neurological disorder that primarily affects little girls.

Because of the rarity of this disorder, it has not been given adequate attention by the pharmaceutical and biotech industries.  Instead it is an academic challenge.  Over the past three years, through the hard work and dedication of many, much progress has been made in the way of research.    I wish I could articulate the support my family has received from its friends. And it has made a difference.  So I am reaching out to you to support this effort and continue making progress to find a cure.

Running the Boston Marathon has been on my “To Do” list for a long time.  Over the years I have cheered on runners and felt a lump in my throat witnessing the causes that drive many of them.  Training for such a strenuous event requires motivation, dedication and a cause.  And I wasn’t sure I would ever have that until now.  And I couldn’t have a cause dearer to my heart than my niece Caroline.

On April 16, 2012, I will be lacing up my sneakers and crossing this event off my “To Do” list for the cause of Rett Syndrome and Caroline.

Caroline’s parents Mike are Jane are special people.  They are always helping others and it is very difficult for others to reciprocate.  If you would like to give back to a family that does so much for others, please support me in the 116th running of the BM.

My word for 2012 is “Believe.”  My children say: “If you believe, you will achieve!” This spirit will get me across the finish line and help us take one more step closer to finding a cure. 

 This one’s for the Girls!!!  Thank you for your friendship and your support.

  

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$7,549

MONEY RAISED
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  • Caroline

    $250

  • Caroline

    $200

  • Karen Borden

    $50

  • Falvey

    $50

  • John and Susanne Joyce & kids

    $500

  • Hillary Woodyatt

    $50

  • Karen Breen

    $50

  • Sorgi and family

    $250

  • The Lawn Family

    $25

  • The Buckeridge Family

    $50

  • The Schiffmann Family

    $250

  • Tom & Leigh Kelly

    $100

  • John and Ashley Kelly

    $100

  • The Flibotte Family

    $100

  • The LaMotte family

    $300

  • Rita & Gene Kelly

    $500

  • Janet Peterson

    $50

  • Nancy Pastore

    $100

  • The Pinarchick Family

    $100

  • Frazer Family

    $100

  • The Croteau Family

    $300

  • The Daly, Mulhern and Hurley families

    $300

  • The Bochman Family

    $100

  • Lewis and Mary Aries

    $500

  • The Mann Family

    $100

  • The Bettenco... Family

    $200

  • The Roof Family

    $100

  • Terri and Jonathan Humphrey

    $50

  • Rosemarie Foley

     

  • The Salvon Family : )

    $100

  • Maureen Finn

    $100

  • Miller family

    $250

  • Susan and Mike Manning

    $100

  • The LaVallee Family

    $100

  • Anonymous

     

  • The Rizzo Family

     

  • Michael, Nicole Tyler and Zachary Swift

    $250

  • fundraiser at J boston

    $287

  • Nanny

    $150

  • fundraiser at J boston

    $287

  • Nanny

    $150

  • William Swift

    $50

  • Dan Decelles

    $200

  • Dan & Patty DeMarco

    $200

  • The Maguire Family

     

  • The Silva's

    $100

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Fundraise for this Campaign

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised:

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised:

$9,752

 

195% Raised of $5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised:

$8,250

Fundraiser Title

christina oliver

Amount Raised:

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised:

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised:

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised:

$6,500

Fundraiser Title

Courtney Railton

Amount Raised:

$6,225

Donor Comments

Hillary Woodyatt

Hillary Woodyatt

DONATION: $50

2 years ago

John and Susanne Joyce & kids

John and Susanne Joyce & kids

DONATION: $500

We love you Caroline! Can't wait to cheer on Auntie Kathy with you. BELIEVE!!! 2 years ago

Falvey

Falvey

DONATION: $50

Good luck Kat! You'll do great! 2 years ago

Karen Borden

Karen Borden

DONATION: $50

You go girl!!! Can't wait to cheer you on....from the sidelines! Happy training. 2 years ago

Caroline

Caroline

DONATION: $200

You can do it MOM! 2 years ago