Laura Lewis' Fundraiser:

Team Rett Boston Marathon 2012

Laura's Photo

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$15,351

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

    $100

  • Debbie Shively

    $40

  • Dimple Patel

    $40

  • Vittoria Chesi and Lorenzo Ciccarelli

    $140

  • The Childs (Chris, Julie, Sophie &Bi...

    $100

  • CAPA Internat... Education

    $1,000

  • David Enda

    $100

  • Tara and Michael Rousseau

    $100

  • Jen S

    $20

  • Cindy Monteiro

    $100

  • Diana Morrissey

    $100

  • The Pfrang Family

    $50

  • Bobbie Pavlic

    $200

  • Kathy and Paul Fitzgerald

    $100

  • Kim Carlson

    $50

  • Paul Doherty

    $26

  • Maureen and Matt Barter

    $50

  • Ken and Emily Gardner

    $100

  • Kelly, Brian, Courtney, Kevin and Colin ...

    $100

  • The Lainers

    $50

  • Brian and Kaitlin Waterson

    $50

  • Lisa Gaydeski

    $50

  • Pat and Elisa Drake

    $50

  • Linda Andersen

    $10

  • Mollie, Michael and Ella Talmanson

    $100

  • Benjamin Wang DeRoche

    $50

  • John, Jackie and Graham

    $500

  • Erica and Avery!

    $40

  • Matt, Zhanna, Rachael & Jacob Ullman

    $100

  • TJX - Marketing Services

    $162

  • Catherine Colon

    $100

  • Peter, Leila & Sarah Milley

    $50

  • Chris Lewis

    $25

  • John Christian

    $250

  • Helene Delaunay

    $10

  • Thom and Carol Gilbert

    $100

  • Sharon and Dennis Burke

    $100

  • Anonymous

    $100

  • Stacia and Wyatt Biel

    $50

  • Kata Franczyk and David Baker

    $50

  • Hugh Barnes

    $100

  • Chris & Peggy Lee

    $130

  • Bruce & Alison Gagnon

    $100

  • Barbara Christen...

    $25

  • Agnes Smejkal

    $100

  • The Myers Family - Mark, Amy, Olivia, &a...

    $50

  • Eddie and Olga Ramos

    $100

  • Amanda and Dan Morgado

    $50

  • Angi Yucas

    $100

  • Bill and Debbie Brown

    $100

  • Deb Buhler

    $50

  • Joni C

    $25

  • Jodi, Bappu, and Kiran

    $100

  • Jen, Jonny, and Madeline

    $100

  • Philip Reeves

     

  • Krista & Ryan Boyle

    $50

  • Michelle Benoit

    $100

  • Suzanne R

    $30

  • Franklin Physical Therapy

    $200

  • Laura Hansen

    $25

  • Dan and Kathleen Hynes

    $100

  • Dan and Kathleen Hynes

    $100

  • Shirley Chantler

    $50

  • Debbie Coburn

    $50

  • A Friend of Meredith's

    $127

  • Mike & Maggie Raftus

    $100

  • Rich and Ally Mancuso

    $100

  • Ann Marie, Christop... and Maegen Englis...

    $100

  • Jamie Sibulkin

    $50

  • Dave Binette

    $100

  • the Galbraiths

    $50

  • Emily Gardner and Sonia Cuoto - Jewelry ...

    $120

  • Elizabeth Little

    $25

  • Maureen and Matt Barter Justgive...

    $20

  • Jen (Suwalski) Golden

    $100

  • Kim Seaberg

    $50

  • Jean Fast

    $100

  • Candy Kasser

    $30

  • Anonymous

    $200

  • Lynn and Charles Clarke

    $50

  • An admirer of marvelous MerBear

    $105

  • Tom Black

    $100

  • Jen Pitts

    $50

  • Sean and Lisa (Thornton) Hennessy

    $50

  • Laura Payne

    $50

  • The Guzzi-Ba... Family

     

  • Kathy Smith

    $75

  • Chip Fleming

    $25

  • MJ LaPlante

    $100

  • the Flowers (in Vermont)

    $50

  • Meredith Horan

    $25

  • Chickie Lemay

    $25

  • The Leidner Family

    $50

  • Pat Hegarty San Francisco Ca

    $100

  • The Dowds'

    $100

  • Mary LaPlante

    $100

  • Madeline and Moe LaPlante

    $100

  • John and Patricia Holiver

    $250

  • KinderCare - Franklin (Silent Auction)

    $601

  • Elizabeth Sheen

    $50

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised:

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised:

$9,752

 

195% Raised of $5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised:

$8,250

Fundraiser Title

christina oliver

Amount Raised:

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised:

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised:

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised:

$6,500

Fundraiser Title

Courtney Railton

Amount Raised:

$6,225

Donor Comments

The Dowds'

The Dowds'

DONATION: $100

2 years ago

Pat Hegarty San Francisco Ca

Pat Hegarty San Francisco Ca

DONATION: $100

2 years ago

The Leidner Family

The Leidner Family

DONATION: $50

2 years ago

Chickie Lemay

Chickie Lemay

DONATION: $25

2 years ago

Meredith Horan

Meredith Horan

DONATION: $25

2 years ago