Team Rett Boston Marathon 2012

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christina oliver's Fundraiser:

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BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS

ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS

EVENT: 2012 Boston Marathon

EVENT DATE: Apr 16, 2012

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

DONATE

To This Fundraiser

$7,765

MONEY RAISED

In memory of Patti McCarthy

$500
Anonymous

$250
Tim and Sonya Medlin

$100
Anonymous

$4,500
holly

$100
Drs. Althouse, Carroll, and Alperin Ltd.

$25
Steve Matson

$250
Lisa Nilsson

$200
Dan, Jo Anne and Lia Redfern

$40
M&M

$50
garage sale

$500
cookie party

$125
hagan family

$25
Graham family

$100
natalie

$50
Deanne Borst

$100
The Giometti Family

$500
A.R. Mays Construc...

$50
Siddha love!!!

$50
Anna Stordahl

$100
Mary Matychak

$50
Leo

$50
Jon Garcia

$50

SET UP YOUR FUNDRAISER

The Team: $116,345 TOTAL RAISED SO FAR

Laura Lewis

Amount Raised:

$15,351

Courtney Bonzey

Amount Raised:

$9,752

195% Raised of $5,000 Goal

Megan Kolendrianos

Amount Raised:

$8,250

christina oliver

Amount Raised:

$7,765

Kathryn Decelles

Amount Raised:

$7,549

Jeanne Troy

Amount Raised:

$6,501

Geoff Gillard

Amount Raised:

$6,500

Courtney Railton

Amount Raised:

$6,225

SHOW ALL

DONORS

Tim and Sonya Medlin

DONATION: $100

for Evelyn 1 year ago

ANONYMOUS

DONATION: $250

We are blesses to have our niece Evelyn in our lives and hope they continue to have successful research so they someday soon reverse Rett Syndrome. We are proud of Laurie and Christina running in the Boston Marathon and will be cheering you on with lots of positive energy and love from Virginia. GO TEAM RETT xoxxooo 1 year ago

In memory of Patti McCarthy

DONATION: $500

1 year ago

See all Donations

192.168.100.108

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