Team Rett Boston Marathon 2012

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Jim Dowd's Fundraiser:

Jim

To donate offline, please mail checks payable to Rett Syndrome Association of MA (RSAM) Mail to me at: 15 Middle Ave. Tiverton RI 02878

via Crowdrise 12 months ago

BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS

ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS

EVENT: 2012 Boston Marathon

EVENT DATE: Apr 16, 2012

Mileage Tracker: 55

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

DONATE

To This Fundraiser

$5,245

MONEY RAISED

Anonymous

$100
Angela W

$25
maureen bonazoli

$100
Patricia Dowd

$50
Roo

$100
Dennisons

$50
Sandi

$100
Dad & Glo

$250
Michael Roseberry

$100
Lisa & Randy

$50
Peter N
jenna goldberg

$25
Chihiro Makio

$20
Liz Ryan

$40
Tanya and Chris Carchidi

$100
John and Mary Beth Dowd

$250
Brian Murphy and Randall Darwall

$50
Jill Schwartz

$20
Jenn Bell

$20
Steve Thompson

$20
Patricia Dowd

$50
Rick Ruggles

$10
Serena K

$20
Derek and Logan
Tanya Alsberg + Jen Armstrong

$50
Craig Butzbach

$50
Sheila McGehee

$15
Rachel Gottlieb

$25
Neil, Martha and Lindsay

$50
Dec & Troy
Pauline Dowd

$500
Doug & Mike

$100
Michael & Greg

$50
Skip & Liz

$50
Jason & Ilira

$50
Joseph Kolasinski

$25
Todd Rowell

$50
Fire Opal

$50
Justin & Terrence

$25
Laura Garrison
Avery Tilker

$50
Shara Porter

$20
Kim + Phil
Skip & Liz

$45
Patrick, Stephanie & Ryan Dowd

$100
Mary & AJ

$25
jules o'quinn

$25
Marjorie Fischer

$25
Tia Bullard

$25
Gina and Marissa Nolan

$25
Connie Verrusio

$40
anonymous

$200
Pat Wilkinson

$100
Uri Maranhas

$50
anonymous

$30
Kim A. Santos

$25
Jim Rice

$100
Derek, Trish, and Henry
Jennifer & Brendan

$25
Wendy Stevens

$100
John Vasconce... and William Barr
Anonymous

$25
Tiffany Peay

$50
Lil JC

$60
jasmine

$20
John Townley

$50
Nick Kekic

$25
dianne and joost
Heather + Ryan
Johnny Jimenez

$50
Chris and Dan
Jenifer Green

$25

105% Raised of $5,000 Goal

SET UP YOUR FUNDRAISER

The Team: $116,345 TOTAL RAISED SO FAR

Laura Lewis

Amount Raised:

$15,351

Courtney Bonzey

Amount Raised:

$9,752

195% Raised of $5,000 Goal

Megan Kolendrianos

Amount Raised:

$8,250

christina oliver

Amount Raised:

$7,765

Kathryn Decelles

Amount Raised:

$7,549

Jeanne Troy

Amount Raised:

$6,501

Geoff Gillard

Amount Raised:

$6,500

Courtney Railton

Amount Raised:

$6,225

SHOW ALL

DONORS

Jenifer Green

DONATION: $25

1 year ago

Chris and Dan

1 year ago

Johnny Jimenez

DONATION: $50

1 year ago

Heather + Ryan

1 year ago

dianne and joost

great cause jim! 1 year ago

See all Donations

192.168.100.192

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