RETT SYNDROME ASSN OF MASSACHUSETTS' Fundraiser:

Team Rett Boston Marathon 2012

RETT SYNDROME ASSN OF MASSACHUSETTS' Photo

BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS

EVENT: 2012 Boston Marathon

EVENT DATE: Apr 16, 2012

THE STORY:

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

DONATE

To This Fundraiser

$116,345

MONEY RAISED
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  • Luptakova family

    $100

  • Maureen Holden

    $50

  • Dea-Dee Phinney

     

  • The Maguire Family

     

  • Valente family

    $50

  • Dawn Nee & Family

    $50

  • Joseph l Bragdon jr

    $100

  • Phil & Christine Gendron

    $25

  • The Gomes Family

    $100

  • Johnny Jimenez

    $50

  • Anna Brodziak

    $50

  • Michelle, Michael, Anna and Elsa Huber

    $25

  • Chris, Fenway and Franklin

    $50

  • Dionne Christie...

    $50

  • The Leidner Family

    $50

  • The Kimmel-G... Crew

     

  • Kathy Lovejoy

    $30

  • Dan & Barb Hebert

    $50

  • Thank you to everyone on Team Rett! Love...

    $250

  • Leev & Grace

    $50

  • Fuchs Family

    $50

  • Jane, Guillaume & Eliott

    $50

  • Caroline Keene

    $35

  • Pat Hegarty San Francisco Ca

    $100

  • Loretta Wieczner

    $30

  • Devaney Kids

     

  • Tracy Boardman & Adam Way

     

  • Laurie and Scott Blizard

    $100

  • Katie and Matt Penny

    $50

  • Matt Johnson

    $30

  • Liz Mayer

    $25

  • Eric Jones's friend, Linda

     

  • Chris Linde

    $25

  • Brian Moy

    $15

  • Jim Daniel

    $50

  • Tiffany Puliafico

    $25

  • Jennifer traino

    $20

  • Jordan Fallon

    $50

  • Paula, Chris & Ashtyn Daniels

    $25

  • The Dowds'

    $100

  • The Santees

     

  • Bob & Becky Branch

    $75

  • The Vanis Family

    $50

  • Mark Junkans

    $50

  • Elaine and John Costello

    $100

  • Leo

    $50

  • Kathy and Tony Schoener

    $262

  • The Silva's

    $100

  • Jon Garcia

    $50

  • Jessica Stamp-Hi...

    $50

  • The Kogon Family

    $100

  • Lucille Brown

    $50

  • Anonymous

    $100

  • Nicole Zinni

    $50

  • Ron and Linda Ludvigsen

    $50

  • Anonymous

    $200

  • Chris and Dan

     

  • Peter and Kay Hoban

    $200

  • Dale hutchins

    $100

  • Nancy Brown

    $100

  • Terry and Marguerite Brown

    $100

  • Mary LaPlante

    $100

  • Madeline and Moe LaPlante

    $100

  • North Shore Grill

    $75

  • costleys raffle

    $2,455

  • John and Patricia Holiver

    $250

  • David & Noreen Murphy

    $20

  • Jim & Terry Murphy

    $250

  • Jenifer Green

    $25

  • Anonymous

     

  • Carlton and Mary Rose

    $20

  • Thomas and Michelle Colucci

    $300

  • Nancy Somers

    $25

  • Levon and Selma Margosian

    $50

  • Joanne Ewing

    $50

  • KinderCare - Franklin (Silent Auction)

    $601

  • Kevin and Linda McQuaid

    $500

  • Patrick and Wheaton Hinchion

    $120

  • P.J Canny

    $30

  • Francis Madison

    $55

  • Dorothy Gordon

    $25

  • Susan Brancato

    $20

  • Meghan McDowell

    $50

  • susan alperen

    $50

  • ed and lee kouyoumd...

    $70

  • joanne lennon

    $30

  • john mcquaid

    $100

  • maureen canney

    $100

  • jessica coombes

    $300

  • maria valdez

    $25

  • Anderson...

    $1,500

  • james and amanda vincent

    $800

  • blooming...

    $800

  • Dr. Althause

    $50

  • Ann Sancus

    $25

  • pauline timmons

    $100

  • patricia shediac

    $50

  • katherine winters

    $50

  • Bill Young

    $20

  • Elizabeth Sheen

    $50

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Fundraise for this Campaign

The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised:

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised:

$9,752

 

195% Raised of $5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised:

$8,250

Fundraiser Title

christina oliver

Amount Raised:

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised:

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised:

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised:

$6,500

Fundraiser Title

Courtney Railton

Amount Raised:

$6,225

Donor Comments

Grandma and Budda

Grandma and Budda

DONATION: $300

2 years ago

The Byrne's

The Byrne's

DONATION: $100

Together we can make a difference! 2 years ago

JP & Karen Benoit

JP & Karen Benoit

DONATION: $25

2 years ago

Shannon, Rob & William

Shannon, Rob & William

DONATION: $50

Go Laura!! 2 years ago

Melissa Hilperts

Melissa Hilperts

DONATION: $30

Hi Laura, Thank you for sharing your story, I never knew about Meredith's struggles. I just knew that you had a beautiful baby girl. Best of luck to you and your family! Melissa 2 years ago