Rachel Rothschild's Fundraiser:

Team Zoe Half Marathon for Rett Syndrome

Rachel's Photo
Rachel's Photo

BENEFITING: Rett Syndrome Research Trust

EVENT DATE: Jun 26, 2011

THE STORY:

Dear Friends and Family,



On April 22, 2005 our amazing, beautiful, precocious Zoe was born. On April 22, 2008, on her 3rd birthday, our greatest fear was realized. A blood test confirmed that our little Zoe had Rett Syndrome. That day was one of the worst days of our lives. For the past 3 years a cure for Rett Syndrome is the first thing we think about when we wake up in the morning and the last before we go to sleep.



Rett Syndrome is a childhood neurological disorder that affects 1 in every 10,000 girls. Most girls live in wheelchairs, have seizures, almost no purposeful use of their hands, are unable to speak, and have feeding tubes. They live their lives bound and gagged. It is the painful, turn your head, too hard to look at truth.



Zoe is considered one of the 'lucky ones". She currently walks, and has some use of her hands. Her biggest challenge is that she is unable to speak. For someone who is 6 years old this is a tremendous handicap. Zoe cannot express what she is feeling, cannot tell us when she is in pain, what she wants to eat, drink, play with or watch on tv. It pains us to imagine how isolated she must feel. Zoe is unable to do any self care and requires 24hr assistance.



As her mom I am constantly amazed at Zoe's strength and perseverance, I know that my goal of running a 1/2 marathon pales in comparison to Zoe's daily life challenges.  Some of the best friends anyone could ask for will be running for Team Zoe on June 26th and Zoe will be at the finish cheering them on!!!



So now for some good news.....Rett Syndrome has been reversed in a mouse model. Scientists are making amazing strides in their research and we truly believe Rett Syndrome will become the first reversible neurological disorder. Rett Syndrome is grossly underfunded. The charity I am running for is Rett Syndrome Research Trust - www.RSRT.org. 96% of every dollar donated goes directly towards researching a cure for my Zoe and the thousands of other girls who suffer from Rett Syndrome each day.



Many thanks for your support and don’t forget to forward this to anyone who might want to support Team Zoe.

DONATE

To This Fundraiser

$15,253

MONEY RAISED
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  • Kim, Blake, Sky & Brooke

    $150

  • susan saraf

    $50

  • Scott L. Braziller

    $25

  • Jen and Tommy Lopez

    $36

  • Figueiredo Family

    $50

  • renee o'brien

    $100

  • Doi Curry family

    $50

  • Diane Tenerell...

    $25

  • The Outcault

    $50

  • Anonymous

    $100

  • Matt and Clay

    $100

  • Debbie Pappas

    $50

  • paul,mar... and madison barr longmeadow ...

    $25

  • Jennifer DeSimone

    $20

  • Krasnigor Family

    $100

  • John Gregory

    $100

  • Kelly & Anthony Burton

    $25

  • Harry & Judy Sharlach

    $100

  • Lauren Giugliano

    $100

  • Michelle Dauchy

    $20

  • Tim Brennan & Janine Earhardt

    $100

  • Liz Durand

    $200

  • 100

    $100

  • Missy, Roo & Will

    $100

  • The Dennis Family

    $200

  • Jordan Family

    $30

  • Maureen Levelis

    $50

  • Nancy and Kevin Lawe

    $50

  • Courtney Robins

    $100

  • Lisa Buzin

    $10

  • Grey, Ford + Loewe Epstein

    $50

  • Neil & Jenny Giardino

    $100

  • Chet and Beverly Forman

    $250

  • Ben & Vanessa Loh

    $20

  • Duncan Brown

    $200

  • John Cannon

    $50

  • Kathianne Robins & Dennis Stern

    $100

  • Craig, Wendy and Cameron McRobb

    $100

  • Grands in PA

    $50

  • Alex & Beth deLarich...

    $50

  • Charlotte and Fin

    $200

  • Kelly and Ed McCarthy

    $75

  • Jim and Kristen Horn

    $50

  • Geeta & Naresh Motiani

    $50

  • Marc, Jill, Andrew & Hilary

    $150

  • The Westover Family

    $250

  • The Puga Family

    $100

  • Hal and Tara Newell

    $100

  • Kara and John Torre

    $50

  • Melissa, Chris & Alexandro

    $25

  • Anonymous

    $100

  • Anonymous

    $50

  • Jon Brooks

    $50

  • Robyn Rosenblum

    $50

  • Lynn

    $100

  • Lori Rassas

    $50

  • Anonymous

    $50

  • Hassan

    $100

  • Alec Farr

    $100

  • Michelle

    $100

  • Denise Quattrochi

    $50

  • Bill Hibsher

    $50

  • Kerryanne & David Terry

    $50

  • Anonymous

    $250

  • Angus

    $20

  • jill

    $100

  • Shima

    $50

  • Jennifer Jackson

    $100

  • McCloskey Lee Family

    $100

  • Diana and Lawrence Barber

    $50

  • Eric Cobb

    $150

  • Lorraine

    $50

  • Ann Burdick

    $50

  • Robert and Maya Palmer

    $50

  • Anonymous

    $50

  • Amy Rothschild

    $36

  • Randy

    $50

  • The Ginchansky Family

    $54

  • Stacy Schiller

    $36

  • The Garvin Family

    $150

  • Grey & Tracie

    $100

  • Anonymous

    $50

  • Charity Morris

    $50

  • Brian Turoff

    $36

  • Anonymous

    $150

  • St. Martin's Press

    $250

  • Elisabeth

    $50

  • Molly

    $100

  • Mary Karen & Dave O'Shaugh...

    $150

  • aliza and ari cohen

    $25

  • Mary Karen O'Shaugh...

    $150

  • Lara Feoktist...

    $20

  • Steve & Denise Sweeney

    $100

  • Catherine Bertoldi

    $25

  • Erin Ormond

    $20

  • Gary Bab

    $35

  • MC

    $500

  • Chaeri

    $50

  • Deborah Hoffman Toffler

    $25

  • Rachel & JP Bolen

    $100

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Fundraise for this Campaign

The Team: $15,253 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rachel Rothschild

Amount Raised:

$6,627

Fundraiser Title

anne mitchell

Amount Raised:

$3,620

Fundraiser Title

Hope Goldstein

Amount Raised:

$2,821

Fundraiser Title

Jill Yusko

Amount Raised:

$1,325

Fundraiser Title

Courtney Robins

Amount Raised:

$580

Fundraiser Title

Laura Chang

Amount Raised:

$100

Fundraiser Title

Marc Kitay

Amount Raised:

$100

Fundraiser Title

susan saraf

Amount Raised:

$50

Donor Comments

Angela Proske and Ted Burns

Angela Proske and Ted Burns

DONATION: $100

3 years ago

Karen Kiyak

Karen Kiyak

DONATION: $100

3 years ago

Marsha and Paul Rothschild

Marsha and Paul Rothschild

DONATION: $250

In honor of Zoe and Cooper's birthdays. 3 years ago

Rebecca Rakowitz

Rebecca Rakowitz

DONATION: $25

I love being Zoe's friend! 3 years ago

Big Buddha

Big Buddha

DONATION: $50

3 years ago