Team Jack -- Ironman Wisconsin
Organized by: Amy Pellettieri
EVENT DATE Sep 07, 2014
Jack Fowler is a 6 year old little boy who is happy, silly, kind, and thoughtful. He has a wonderful sense of humor and spreads love and joy to those around him. Jack comes from an amazing family full of hope, support, and love. He couldn't have been blessed with more incredible parents (Jamie and Jason) and a little sister, Juliet. At the age of 16 months, Jack was diagnosed with an ultra rare disease called Hunter Syndrome (MPS II). Jack's mom (an unbelievably inspirational woman), Jamie, has created a blog that I strongly encourage you to follow at www.heresjack.com . Jack's blog shares his journey, struggles and triumphs as well as provides a better understanding of the rare disease he fights each day. Jack's mom quotes that Jack's 'life has been eventful – filled with surgeries, infusions, trials, and therapies. Through it all he still continues to smile.' Please refer to Jack's blog as understanding Jack's emotional journey will change your life.
It is safe to say that as Jack's teacher, Jack has changed my life and the lives of our students and the teachers he encounters forever. Jack teaches us more than anything I am capable of. Jack has taught us how to be compassionate, how to love, how to cherish each moment, and how to laugh. He has taught me not to rush through life and has reminded us the importance of taking moments to laugh, to cherish each other, and to realize what is important in life.
September 7th, 2014 is a very special day. This day marks Jack's 7th birthday. For a little guy who loves "birfdays" :), tackling an Ironman in support of Jack couldn't be a better way for me to celebrate him. I couldn't be more proud of the little man he has become. I chose an Ironman to support Jack because this journey requires both physical and mental toughness that of which is not even close to the physical and mental toughness Jack expresses each day, but to understand that I have a choice, unlike Jack, it is plenty of motivation to tackle this challenge while also trying to be a better person for Jack.
My hopes for tackling Ironman Wisconsin is to help support Jack and his family financially and to raise awareness for other children tackling Hunter Syndrome. If possible, please help support Jack's present and future needs by supporting this fundraiser. If you are unable to donate, please use this page to raise awareness for children with Hunter Syndrome and use Jack's perseverance to motivate you to live a better life helping others. Thank you for taking the time to learn more about this little guy and for your continued support. It means the world to us.
The joy Jack spreads has changed our lives for the better... He deserves the same. :)