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14th International Fragile X Conference/Newsome

Organized by: Pierre Newsome

Pierre's Photo

EVENT DATE Jul 16, 2014

THE STORY:

As most of you know our little Audric was diagnosed with Fragile X Syndrome in December of 2010. This was a life changing event to say the least, and trying to grieve, learn about and cope with this diagnosis was a struggle. We really appreciate all the love and support we got from family and friends. We are proud to say that only through the grace of God we are in a much better place 3 1/2 years later :)

In continuation of our education on this syndrome we would really love to attend the conference in July since it is in our hometown! Unfortunately the cost is substantial ($450 each) and with us choosing for Jen to become a stay home mother and dedicate all her time to Audric, we need your help. We realize how valuable your money and time are and would appreciate any contribution that would help us reach our goal. If you can not do a monetary contribution we are also looking for volunteers to help our local Fragile X Association as they are helping host this huge event. Again we appreciate anything you can do or simply your love and prayers. Love you all!


About the Conference:

The National Fragile X Foundation’s biennial international conference presents a unique opportunity where researchers and parents can interact throughout the conference. Many researchers have commented on the experience of socializing with the parents of children with Fragile X, and how the experience has motivated them or reinvigorated their enthusiasm to make a difference in the lives of persons with this disability. The majority of the conference sessions are “Family-Friendly” and cover all three Fragile X-associated Disorders (FXS, FXTAS, FXPOI), with the greatest number of sessions focusing on FXS. In addition to the family-friendly sessions there are many scientific and technical sessions.

Some of the benefits from attending include:

* Discover the latest research by some of the world’s leading Fragile X experts. * Learn new techniques, behavioral interventions and coping strategies. * Connect with researchers, clinicians, educators, psychologists and parents.
* Get the support you need.
* Start new lifelong friendship and reconnect with old friends. -

See more at: http://www.fragilex.org/community/international-fragile-x-conference/#sthash.lLsYdWxV.dpuf

DONATE

To This Fundraiser

$930

 

101% Raised of $925 Goal

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  • Radigans

     

  • The Heritages

     

  • Isaiah and Shannon

     

  • Jacque and Michele

     

  • The Rosas Fam

     

  • Tori Sperber

     

  • Kevin Jones & Katie Flynn

     

  • Carisa

     

  • Anonymous

     

  • Todd Sperber

     

  • Steady Freddy & the Fam

     

  • Grandpa

     

  • Anonymous

     

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Organized by

Pierre Newsome

This is a direct to organizer fundraiser.

Donor Comments

Anonymous

ANONYMOUS

Audric you rock! 3 years ago

Grandpa

Grandpa

You guys are the best. 3 years ago

Steady Freddy & the Fam

Steady Freddy & the Fam

Good luck guys! Happy to help out an old homie. We have a niece and nephew that are autistic and know that any little bit helps. 3 years ago

Todd Sperber

Todd Sperber

3 years ago

Anonymous

ANONYMOUS

3 years ago

Carisa

Carisa

3 years ago

Kevin Jones & Katie Flynn

Kevin Jones & Katie Flynn

Best of luck! 3 years ago

Tori Sperber

Tori Sperber

Love and miss you guys! 3 years ago

The Rosas Fam

The Rosas Fam

We love you Audric so so much!! Jen and Pete you continue to amaze and inspire us to be the best parents and know everything we can for our kids! Can't wait to see all the info you collect! Love you three!! 3 years ago

Jacque and Michele

Jacque and Michele

Love you guys!! 3 years ago

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