14th International Fragile X Conference/Newsome
Organized by: Pierre Newsome
EVENT DATE Jul 16, 2014
As most of you know our little Audric was diagnosed with Fragile X Syndrome in December of 2010. This was a life changing event to say the least, and trying to grieve, learn about and cope with this diagnosis was a struggle. We really appreciate all the love and support we got from family and friends. We are proud to say that only through the grace of God we are in a much better place 3 1/2 years later :)
In continuation of our education on this syndrome we would really love to attend the conference in July since it is in our hometown! Unfortunately the cost is substantial ($450 each) and with us choosing for Jen to become a stay home mother and dedicate all her time to Audric, we need your help. We realize how valuable your money and time are and would appreciate any contribution that would help us reach our goal. If you can not do a monetary contribution we are also looking for volunteers to help our local Fragile X Association as they are helping host this huge event. Again we appreciate anything you can do or simply your love and prayers. Love you all!
About the Conference:
The National Fragile X Foundation’s biennial international conference presents a unique opportunity where researchers and parents can interact throughout the conference. Many researchers have commented on the experience of socializing with the parents of children with Fragile X, and how the experience has motivated them or reinvigorated their enthusiasm to make a difference in the lives of persons with this disability. The majority of the conference sessions are “Family-Friendly” and cover all three Fragile X-associated Disorders (FXS, FXTAS, FXPOI), with the greatest number of sessions focusing on FXS. In addition to the family-friendly sessions there are many scientific and technical sessions.
Some of the benefits from attending include:
* Discover the latest research by some of the world’s leading Fragile X experts. * Learn new techniques, behavioral interventions and coping strategies. * Connect with researchers, clinicians, educators, psychologists and parents.
* Get the support you need.
* Start new lifelong friendship and reconnect with old friends. -
See more at: http://www.fragilex.org/community/international-fragile-x-conference/#sthash.lLsYdWxV.dpuf