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EB Research Partnership's Fundraiser:

2012 Jerusalem Marathon

EB Research Partnership's Photo

THE STORY:

 


The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. 

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed.  Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

But, there is good news . . .  There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB.  In 2011, JGSF awarded $175,000 in research grants.  

The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.

DONATE

To This Fundraiser

$42,825

MONEY RAISED
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  • Simi & Beth Chigger

    $100

  • Herbert & Ruchama Seliger

    $54

  • David & Andrea Sanders

    $100

  • Apfel family

    $18

  • R' Apfel

    $36

  • Anonymous

    $130

  • Steven and Lisa Winfield

    $100

  • Aunt Suzie Perton

    $25

  • Sharron and Adam Cohen

    $180

  • Ronnie & Edward Grossmann

    $180

  • Dov Greenstone

    $36

  • Amanda and Susan Edwards

    $360

  • JBASME

    $236

  • The Major Family

    $36

  • Anonymous

    $1,180

  • AKIVA, CHAYA & KAZ ISENBERG

    $36

  • Zahava Zimmermann

     

  • Felise & Peter Katz and Family

    $100

  • A Good Jew

     

  • Moshe Zisman

    $27

  • Aaron Cohen

    $10

  • the Shoens

    $50

  • maralyn and jerry berkowitz

    $18

  • Fraidy & David Belsky

    $36

  • Saralyn Hartman

    $50

  • Akiva Gottlieb

    $71

  • Rachel Gottlieb

    $30

  • Bruce & Sohayla Zivari

    $54

  • Robyn and Jeff Perlman

    $100

  • Orin and Debbie Golubtchik

    $36

  • Anonymous

     

  • Marcella Berman

    $18

  • Janet Osen

    $18

  • George and Sandy Freud and family

    $150

  • Randi & Karen

    $36

  • Sar & Henri Winter

    $54

  • Moshe Deutsch

    $36

  • David& Susan Rosenbaum

    $54

  • Anonymous

    $18

  • Shmuel eisenberg 2

    $25

  • The Finkelstein Family, West Hempstead, NY

    $36

  • Pearl Seiden

    $118

  • Eric Bressman

    $18

  • Laura and Lawrence Ben-David

    $10

  • Chanie and Steven Zimerman

    $100

  • Ephraim & Lisa Miller & Family

    $50

  • Robyn & Stuart Saltzman

    $100

  • Hani & Ariel Sterngold

    $118

  • Grateful Imma

    $100

  • esther and joel bock

    $72

  • Grandma Bubbie and Zeidy

    $18

  • Leff

    $25

  • Mindy Gottlieb

    $54

  • Mommy and Abba

    $130

  • Eliana and Chaim Rotenberg

    $36

  • Yanky and Adina Deutsch

    $36

  • tehilla and chaim

    $100

  • Sari and Stuart Apfel

    $100

  • Tema & Mark Bomback

    $180

  • Anonymous

    $360

  • Anonymous

    $250

  • Anonymous

    $250

  • Riki & Red

    $50

  • Melanie's Parents

    $100

  • Cindy & Keith Hamada

    $36

  • Mom and Dad

     

  • Anonymous

    $18

  • Gabe & Laura Ruben

    $18

  • Jeremy & Ruth Shebson

    $50

  • The Barels

    $54

  • Anonymous

    $600

  • -Shaina S.

    $36

  • Stephen, Melissa & Miriam Sauer

    $50

  • Greenberg 718 Cousins

    $36

  • Safta & Papa, Uncle Brian, Aunt Karen & Kayla

    $120

  • Anonymous

    $36

  • Anonymous

    $36

  • Robin and Josh Rochlin

    $50

  • Naomi Alfaks

    $50

  • Henry and Bobbi Mayerfeld

    $54

  • Moishe and Evelyn Kranzler

    $50

  • Marcie Kalinsky

    $10

  • The Capozzoli Capozzoli

    $100

  • Avi Tokayer

    $100

  • Aunt Sharon & Aviva

    $180

  • Safta & Beeba

    $120

  • RAMZAG

     

  • Mr. and Mrs. Y Weglein

     

  • Dr. and Mrs. Goldstein

     

  • Mr. and Mrs. Weglein

     

  • Rabbi and Mrs. Kwalwasser

     

  • Mamale and Papagawea

    $180

  • Alison Gross

    $50

  • Klinger family

    $120

  • Carrey Family

    $100

  • Aunt Margot, Aunt Miriam, Aryeh, Samm & Raffi

    $72

  • Shoshana Somer

    $200

  • Shayna and Brad Somer

    $200

  • Eric and Adina Hagege

    $54

  • Charles & Rosalie Rothenberg

    $100

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Fundraise for this Campaign

The Team: $42,825 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David beiss

Amount Raised

$5,869

Fundraiser Title

Daniel Stroh

Amount Raised

$3,256

Fundraiser Title

Yoni Levine

Amount Raised

$2,555

Fundraiser Title

Rachel Motsenyat

Amount Raised

$1,954

Fundraiser Title

Joey Liberman

Amount Raised

$1,842

Fundraiser Title

Aliza Selter

Amount Raised

$1,528

Fundraiser Title

Jack Klein

Amount Raised

$1,420

Fundraiser Title

Alana Ebin

Amount Raised

$1,203

Donor Comments

Charles & Rosalie Rothenberg

Charles & Rosalie Rothenberg

DONATION: $100

4 years ago

Eric and Adina Hagege

Eric and Adina Hagege

DONATION: $54

5 years ago

Shayna and Brad Somer

Shayna and Brad Somer

DONATION: $200

We are so proud of you! 5 years ago

Shoshana Somer

Shoshana Somer

DONATION: $200

5 years ago

Aunt Margot, Aunt Miriam, Aryeh, Samm & Raffi

Aunt Margot, Aunt Miriam, Aryeh, Samm & Raffi

DONATION: $72

5 years ago

Carrey Family

Carrey Family

DONATION: $100

Great job! You're becoming an international marathon runner. What country's next? Shout out to David Beiss for organizing, arranging, and RUNNING the marathon!! 5 years ago

Klinger family

Klinger family

DONATION: $120

We are so proud of you!!! 5 years ago

Alison Gross

Alison Gross

DONATION: $50

5 years ago

Mamale and Papagawea

Mamale and Papagawea

DONATION: $180

5 years ago

Dr. and Mrs. Goldstein

Dr. and Mrs. Goldstein

5 years ago