Finished the half marathon in 1:46.19! Thank You so much to all my sponsors!
I would like to publicly thank all my anonymous sponsors. I wish I would be able to thank you personally but I am unsure of who you are! Anyone who would like to donate for the first time or donate again, all contributions will still be accepted and greatly appreciated! Please help me reach $1000!
I am spending the current year studying in Torat Shraga in Israel . While studying in Yeshiva, I met David Beiss, an 18 year old suffering from Epidermolysis Bullosa. EB as its known is currently incurable and leads to uncontrollable blistering from birth throughout the individuals often shortened life. David, manages to hide his pain and approaches EB without despair or complaining. He is very candid about his condition, and uses every opportunity as a platform to help raise awareness and funds for research towards finding a cure for EB. David single-handedly organized a team of over 30 members to participate in either a 10K or Half Marathon! I have committed to running the Half Marathon in the Jerusalem Marathon on March 16, 2012. The time and energy I have and continue to devote for the marathon doesn’t even pale in comparison to the daily struggle David endures. Please help support me in my quest, and partner with Team Butterfly. Your contribution may, G-d willing, lead to the first cure for EB, and will help improve the lives of my friend David, and the many other individuals suffering from EB! Thank You,
JACKSON GABRIEL SILVER FOUNDATION INC wrote -
The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.
Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body.
Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed. Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life.
But, there is good news . . . There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB. In 2011, JGSF awarded $175,000 in research grants.
The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.
Donations can be sent directly to the Jackson Gabriel Silver Foundation:
Jackson Gabriel Silver Foundation
1202 Lexington Avenue,
Suite 202 New York, NY 10028
Please include a paper that says Team Butterfly, Runner Samuel Eisenberg, and the amount enclosed. Also, please send me an Email at firstname.lastname@example.org so I can include your contribution in offline donations!