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Samuel Eisenberg's Fundraiser:

2012 Jerusalem Marathon

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Samuel's Photo
Samuel Eisenberg

THE STORY:

 

UPDATE:

Finished the half marathon in 1:46.19! Thank You so much to all my sponsors!

I would like to publicly thank all my anonymous sponsors. I wish I would be able to thank you personally but I am unsure of who you are! Anyone who would like to donate for the first time or donate again, all contributions will still be accepted and greatly appreciated! Please help me reach $1000!

Thank You,

Shmuel

 

Hi,

I am spending the current year studying in Torat Shraga in Israel . While studying in Yeshiva, I met David Beiss, an 18 year old suffering from Epidermolysis Bullosa. EB as its known is currently incurable and leads to uncontrollable blistering from birth throughout the individuals often shortened life. David, manages to hide his pain and approaches EB without despair or complaining. He is very candid about his condition, and uses every opportunity as a platform to help raise awareness and funds for research towards finding a cure for EB. David single-handedly organized a team of over 30 members to participate in either a 10K or Half Marathon! I have committed to running the Half Marathon in the Jerusalem Marathon on March 16, 2012. The time and energy I have and continue to devote for the marathon doesn’t even pale in comparison to the daily struggle David endures. Please help support me in my quest, and partner with Team Butterfly. Your contribution may, G-d willing, lead to the first cure for EB, and will help improve the lives of my friend David, and the many other individuals suffering from EB! Thank You,

Shmuel Eisenberg

JACKSON GABRIEL SILVER FOUNDATION INC wrote -

The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

Practically speaking, an individual who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. 

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed.  Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

But, there is good news . . .  There is tremendously encouraging work underway, and a cure for EB could be within our grasp. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB.  In 2011, JGSF awarded $175,000 in research grants.  

The more funds we can raise, the more research we can fund and the more lives we can save. Within the foreseeable future, and even sooner with your support, children with EB can grow up to live full and pain-free lives.

Donations can be sent directly to the Jackson Gabriel Silver Foundation:

Jackson Gabriel Silver Foundation

1202 Lexington Avenue, 

Suite 202 New York, NY 10028 

Please include a paper that says Team Butterfly, Runner Samuel Eisenberg, and the amount enclosed. Also, please send me an Email at sameisen93@yahoo.com so I can include your contribution in offline donations!

Thank You,

Shmuel

DONATE

To This Fundraiser

$973

MONEY RAISED
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  • Anonymous

    $150

  • Most Family

    $36

  • Anonymous

    $54

  • ETE

    $150

  • Miriam and Doni Berger

    $75

  • Bentzi & Rachel Raice & kids

    $36

  • yonatan friedland

    $150

  • Apfel family

    $18

  • R' Apfel

    $36

  • George and Sandy Freud and family

    $150

  • Chanie and Steven Zimerman

    $100

  • Anonymous

    $18

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Fundraise for this Campaign

The Team: $42,825 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

David beiss

Amount Raised

$5,869

Fundraiser Title

Daniel Stroh

Amount Raised

$3,256

Fundraiser Title

Yoni Levine

Amount Raised

$2,555

Fundraiser Title

Rachel Motsenyat

Amount Raised

$1,954

Fundraiser Title

Joey Liberman

Amount Raised

$1,842

Fundraiser Title

Aliza Selter

Amount Raised

$1,528

Fundraiser Title

Jack Klein

Amount Raised

$1,420

Fundraiser Title

Alana Ebin

Amount Raised

$1,203

Donor Comments

Anonymous

ANONYMOUS

DONATION: $18

i'm proud of you shmuel. 6 years ago

Chanie and Steven Zimerman

Chanie and Steven Zimerman

DONATION: $100

6 years ago

George and Sandy Freud and family

George and Sandy Freud and family

DONATION: $150

6 years ago

R' Apfel

R' Apfel

DONATION: $36

6 years ago

Apfel family

Apfel family

DONATION: $18

תזכה למצוות 6 years ago

yonatan friedland

yonatan friedland

DONATION: $150

6 years ago

Bentzi & Rachel Raice & kids

Bentzi & Rachel Raice & kids

DONATION: $36

6 years ago

Miriam and Doni Berger

Miriam and Doni Berger

DONATION: $75

7 years ago

ETE

ETE

DONATION: $150

7 years ago

Anonymous

ANONYMOUS

DONATION: $54

7 years ago