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Greater Chicago Fragile X's Fundraiser:

Xtra Milers running for Fragile X

Greater Chicago's Photo

BENEFITING: National Fragile X Foundation

EVENT DATE: Nov 10, 2013

Greater Chicago Fragile X

THE STORY:

November 10, 2013 our incredible team will run the Inaugural Naperville Half/Marathon to benefit the Fragile X LINKS Group of Greater Chicago and the National Fragile X Foundation. Including our very own Fragile X Xpert, Dr. Elizabeth Berry-Kravis!

Fragile X is a family of disorders, including Fragile X Syndrome, FXTAS, and FXPOI.

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Fragile X is the leading cause of inherited mental impairment and the leading known genetic cause of Autism. As many as 1:130 women are carriers of Fragile X. 1:3600-4000 boys /1:4000-6000 girls are born with Fragile X Syndrome.

FXTAS(Fragile X Associated Tremor/Ataxia Syndrome) affects those with the pre-mutation. It is an “adult onset” neurodegenerative disorder, occurring more commonly in males than females. Onset is usually over 50 years of age, and most individuals had no related medical, developmental or neurological problems prior to the appearance of FXTAS symptoms. Females comprise only a small part of the FXTAS population, and their symptoms tend to be less severe.

FXPOI(Fragile X Associate Primary Ovarian Insufficiency)affects pre-mutation females. They may experience infertility and pre-mature menopause.

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality.

Your donation will help support local events as well as support the National Fragile X Foundation in support of their mission.

The Mission of the National Fragile X Foundation:

The National Fragile X Foundation unites the Fragile X community to
◦Enrich lives through educational and emotional support
◦Promote public and professional awareness
◦Advance research toward improved treatments and a cure for Fragile X

Thank you for your support!

DONATE

To This Fundraiser

$12,714

MONEY RAISED
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  • Matt & Colleen Maloney

    $25

  • Matt and Kathy Furjanic

    $25

  • Vernon Stipp

    $25

  • Maura Doyle

    $25

  • Mick & Laura Kelly

    $50

  • Anthony Family

    $100

  • Horn Family

    $50

  • Patrick and family

    $10

  • Bill & Linda Escobar

    $100

  • Colleen, Emma and Kate Zolecki

    $30

  • Jen Grosskopf

    $50

  • Anonymous

    $50

  • Stephanie Harvell

    $50

  • The Rolland Family

    $50

  • Sam and Charlie Judge

    $50

  • Elizabeth Halemba

    $100

  • Harold and Veronica

     

  • Jim, Robyn & Glenn Sheldon

    $50

  • Jack DiPietro

    $50

  • Steve and Carol Burton

    $20

  • anne borg

    $50

  • Alan Mansfield - Diamond Blade Warehouse

     

  • Linda and Leonard Owens

    $100

  • eric herscovitch

    $50

  • Martha Fox

    $50

  • Ed, Jean & Chris Cholewa

    $25

  • Ed, Jean & Chris Cholewa

    $25

  • Amy Cullnan

    $25

  • JG

     

  • Scott & Diana Bieniasz

    $25

  • Ethel Lofquist

    $25

  • Anonymous

    $18

  • Maureen

    $25

  • Anonymous

    $100

  • Jean King

    $25

  • Northwestern

    $100

  • Jamie

    $50

  • ML

    $100

  • Kathy Fadden

    $20

  • Mom

    $110

  • Christine

    $15

  • Michael Bradford

    $10

  • Jane

    $25

  • Chris Javor

    $20

  • Atseff Family

    $25

  • Jeffrey Cohen

    $25

  • The Cotter Family

    $50

  • Kim and Bob

    $30

  • Allen and Sue

    $25

  • Kathy Orr

    $50

  • Michael and Lisa Kelley

    $50

  • jay and anne souder

    $100

  • Shari and Brian Silver

    $100

  • Mike Makris

    $25

  • Toman Family

    $25

  • Sue Ellen Krause

    $100

  • The Graysons

     

  • Jennifer and Kimball Silverton

    $50

  • Mike, Ally, & Lilly

    $100

  • Sean Lyons and Kelly Regan

    $25

  • The Schuman Family

    $50

  • Dave, Joy, Jack, and Tyler Justus

    $100

  • emmanuel "big daddy" harris

    $100

  • Tracy & Scoop Jackson

    $25

  • Daniel Morris

    $50

  • Jimi, Buffy, Georgia and Jimmo Grande

    $100

  • David, Sharon, Ethan, Seth Tortal

     

  • Patricia Pollard

    $50

  • Lambur Family

    $35

  • Betsy Doll

    $25

  • Tom & Jennifer

    $300

  • The VanderBergs

    $50

  • Kevin, Julie, and Colin Peters

    $100

  • Kelly Benford

     

  • Deborah Hall

    $100

  • The Lovejoy Family

    $50

  • mooch

    $100

  • Emily Biang

    $25

  • Scott & Coleen Logan & Morgan

    $50

  • Salty & Jake!

     

  • The Heaney Family

    $50

  • Donnelly's

    $50

  • Anonymous

    $25

  • Verno and Katy Roche

    $50

  • Weezy

    $25

  • Rachel Lambur

    $10

  • LAREN :-)

    $40

  • Jorie & Max

    $25

  • Dianne Osborn

    $25

  • McNicholas Family

    $50

  • Bob and Kim Brunner

    $250

  • Rebecca & Ira & Ethan Fishman

    $50

  • Colin and Keira

    $50

  • Anonymous

    $25

  • S,T,J,S,and R

    $205

  • The Dunham Family

    $25

  • Mom & Dad

    $50

  • Jessica Klusek

    $10

  • Linda Painter

    $25

  • Adam and Shelly Frederick

    $100

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127% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $12,714 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Elizabeth Berry-Kravis

Amount Raised

$2,790

 

558% Raised of $500 Goal

Fundraiser Title

Rick Williams

Amount Raised

$2,538

Fundraiser Title

Laura Kunzie

Amount Raised

$1,550

 

155% Raised of $1,000 Goal

Fundraiser Title

mike sawicki

Amount Raised

$1,425

 

143% Raised of $1,000 Goal

Fundraiser Title

Anne Hoffmann

Amount Raised

$875

Fundraiser Title

Brian Zolecki

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Michael Carlson

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Matt Hoffmann

Amount Raised

$726

Donor Comments

Adam and Shelly Frederick

Adam and Shelly Frederick

DONATION: $100

Thank you for all you do! 4 years ago

Linda Painter

Linda Painter

DONATION: $25

4 years ago

Jessica Klusek

Jessica Klusek

DONATION: $10

4 years ago

Mom & Dad

Mom & Dad

DONATION: $50

Love you! 4 years ago

The Dunham Family

The Dunham Family

DONATION: $25

4 years ago

S,T,J,S,and R

S,T,J,S,and R

DONATION: $205

4 years ago

Anonymous

ANONYMOUS

DONATION: $25

In Memory of K Wade Cook 4 years ago

Colin and Keira

Colin and Keira

DONATION: $50

Sean you rock! 4 years ago

Rebecca & Ira & Ethan Fishman

Rebecca & Ira & Ethan Fishman

DONATION: $50

4 years ago

Bob and Kim Brunner

Bob and Kim Brunner

DONATION: $250

We are proud of you Laura! With the ITW Foundation 3 for 1 matching, this donation will end up totaling $1,000.00. 4 years ago