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Nell Maltman's Fundraiser:

Xtra Milers running for Fragile X

Nell's Photo

BENEFITING: National Fragile X Foundation

ORGANIZER: Greater Chicago

EVENT DATE: Nov 10, 2013

Nell Maltman

THE STORY:

Missy Zolecki wrote -

November 10, 2013 our incredible team will run the Inaugural Naperville Half/Marathon to benefit the Fragile X LINKS Group of Greater Chicago and the National Fragile X Foundation. Including our very own Fragile X Xpert, Dr. Elizabeth Berry-Kravis!

Fragile X is a family of disorders, including Fragile X Syndrome, FXTAS, and FXPOI.

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Fragile X is the leading cause of inherited mental impairment and the leading known genetic cause of Autism. As many as 1:130 women are carriers of Fragile X. 1:3600-4000 boys /1:4000-6000 girls are born with Fragile X Syndrome.

FXTAS(Fragile X Associated Tremor/Ataxia Syndrome) affects those with the pre-mutation. It is an “adult onset” neurodegenerative disorder, occurring more commonly in males than females. Onset is usually over 50 years of age, and most individuals had no related medical, developmental or neurological problems prior to the appearance of FXTAS symptoms. Females comprise only a small part of the FXTAS population, and their symptoms tend to be less severe.

FXPOI(Fragile X Associate Primary Ovarian Insufficiency)affects pre-mutation females. They may experience infertility and pre-mature menopause.

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality.

Your donation will help support local events as well as support the National Fragile X Foundation in support of their mission.

The Mission of the National Fragile X Foundation:

The National Fragile X Foundation unites the Fragile X community to
◦Enrich lives through educational and emotional support
◦Promote public and professional awareness
◦Advance research toward improved treatments and a cure for Fragile X

Thank you for your support!

DONATE

To This Fundraiser

$660

MONEY RAISED
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  • Sara O'Rourke

    $15

  • Gary Martin

    $50

  • Shannon

    $50

  • Brynn

    $25

  • Northwestern

    $100

  • Jamie

    $50

  • ML

    $100

  • Mom

    $110

  • Christine

    $15

  • Michael Bradford

    $10

  • Jane

    $25

  • The VanderBergs

    $50

  • Anonymous

    $25

  • Anonymous

    $25

  • Jessica Klusek

    $10

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132% Raised of $500 Goal

Fundraise for this Campaign

The Team: $12,714 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Elizabeth Berry-Kravis

Amount Raised

$2,790

 

558% Raised of $500 Goal

Fundraiser Title

Rick Williams

Amount Raised

$2,538

Fundraiser Title

Laura Kunzie

Amount Raised

$1,550

 

155% Raised of $1,000 Goal

Fundraiser Title

mike sawicki

Amount Raised

$1,425

 

143% Raised of $1,000 Goal

Fundraiser Title

Anne Hoffmann

Amount Raised

$875

Fundraiser Title

Brian Zolecki

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Michael Carlson

Amount Raised

$745

 

149% Raised of $500 Goal

Fundraiser Title

Matt Hoffmann

Amount Raised

$726

Donor Comments

Jessica Klusek

Jessica Klusek

DONATION: $10

5 years ago

Anonymous

ANONYMOUS

DONATION: $25

In Memory of K Wade Cook 5 years ago

Anonymous

ANONYMOUS

DONATION: $25

=) 5 years ago

The VanderBergs

The VanderBergs

DONATION: $50

Auntie Mo, you are awesome, go get 'em! 5 years ago

Jane

Jane

DONATION: $25

5 years ago

Michael Bradford

Michael Bradford

DONATION: $10

Congrats on reaching your goal! 5 years ago

Christine

Christine

DONATION: $15

5 years ago

Mom

Mom

DONATION: $110

5 years ago

ML

ML

DONATION: $100

Go Nell! 5 years ago

Jamie

Jamie

DONATION: $50

5 years ago