BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: Oct 17, 2015
Once again, we are running a 5k to honor the memory of our son, Alex, and to continue to support families and individuals living with Cornelia de Lange Syndrome (CdLS). For 22 years, the CdLS Foundation was a lifeline for our family to assist our son with complex support needs. We wish, in return, to give hope by raising research dollars.
Team CdLS runners take on the challenge to better the lives of people with the syndrome—There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country.
Thank you for any tax deductible contribution amount or well wishes you can provide!
Garth & Molly Black