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mike smith's Fundraiser:

2015 Ironman World Championship

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BENEFITING: National Niemann-Pick Disease Foundation (NNPDF)

ORGANIZER: THE IRONMAN FOUNDATION

EVENT: YOUR JOURNEY, YOUR CAUSE

mike smith

THE STORY:

After 18 triathlon seasons, 100+ races (15 at IRONMAN distance), I have finally gotten a Kona slot.  My journey to this point has been an investment of time and effort.  Happily, my wife and family have been supportive.  More than just being supportive, Anne is also involved.  She often trains and races with me.

In addition to the normal conflicts, pressures & difficulties encountered in training and racing, Anne has to deal with her genetic disorder, Niemann-Pick Disease (NPD Type B).  NPD is a lysosomal storage disease.  It is caused by a failure to produce the enzyme that breaks down aged cells.  These waste cells are stored in the spleen, liver, lungs and heart.  Anne has symptoms that make her life a challenge.  In Anne’s case, she has been able to deal with the symptoms of this disease and continue a fairly normal life.  Other affected people have varying degrees of health issues.  Those with NPD Type A do not create any of the enzymes.  They do not develop properly and live short lives, dying at 2 or 3 years of age.  There is currently no treatment and no cure.

The National NPD Foundation (NNPDF) does great work supporting NPD research and providing NPD affected families with information, comfort and support.  The NNPDF promotes the slogan: “Persevere” to give strength and hope to those with NPD and their families.  Through all these triathlon seasons, the training for the races and the race itself, I persevere.

You can learn more about the NNPDF at www.nnpdf.org

Thank you for supporting the NNPDF and the work they do.

$1,001

MONEY RAISED
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  • Anonymous

    $25

  • George & Rita Smith

    $100

  • Tom H.

    $50

  • Preston & Mary Edelstein

    $25

  • 714

    $100

  • Anonymous

    $50

  • Deb

    $30

  • Stockwell

    $50

  • Katie Smith

    $25

  • Mike Brown

    $50

  • Tawnie

    $25

  • Rowena & Andy Sommer

    $20

  • Lisa Saturday

    $50

  • Robin Moran

    $30

  • Go Mike Go

    $100

  • Mary

    $271

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100% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $130,332 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Dana Kennedy

Amount Raised

$30,242

 

101% Raised of $30,000 Goal

Fundraiser Title

Robert Mckeown

Amount Raised

$30,200

 

101% Raised of $30,000 Goal

Fundraiser Title

David Johnson

Amount Raised

$25,000

 

100% Raised of $25,000 Goal

Fundraiser Title

Phillip Jones

Amount Raised

$11,905

 

85% Raised of $14,060 Goal

Fundraiser Title

Richard Clark

Amount Raised

$8,200

 

55% Raised of $15,000 Goal

Fundraiser Title

Sandy Johnson

Amount Raised

$6,904

 

138% Raised of $5,000 Goal

Fundraiser Title

Kyrsten Sinema

Amount Raised

$5,025

 

50% Raised of $10,000 Goal

Fundraiser Title

Edward Ignacio

Amount Raised

$3,180

 

13% Raised of $25,000 Goal

Donor Comments

Mary

Mary

DONATION: $271

You're an awesome team! Thanks for everything you and Anne do to beat NPD. 2 years ago

Go Mike Go

Go Mike Go

DONATION: $100

2 years ago

Robin Moran

Robin Moran

DONATION: $30

2 years ago

Lisa Saturday

Lisa Saturday

DONATION: $50

2 years ago

Rowena & Andy Sommer

Rowena & Andy Sommer

DONATION: $20

2 years ago

Tawnie

Tawnie

DONATION: $25

2 years ago

Mike Brown

Mike Brown

DONATION: $50

2 years ago

Katie Smith

Katie Smith

DONATION: $25

2 years ago

Stockwell

Stockwell

DONATION: $50

2 years ago

Deb

Deb

DONATION: $30

Thanks Mike for all you are doing for Anne and NP. Love you guys! Deb 2 years ago