BENEFITING: WHERE THERES A WILL THERES A CURE
EVENT DATE: Nov 01, 2015
WHERE THERE’S A WILL THERE’S A CURE IS DEDICATED TO RAISING FUNDS FOR THE PURPOSE OF SUPPORTING SCIENTIFIC RESEARCH THAT IS ACTIVELY PURSUING CURES AND/OR TREATMENTS FOR THOSE AFFECTED WITH MYOTUBULAR MYOPATHY.
Where There’s A Will There’s A Cure was founded by the family and friends of William Richard Whiston. Our organization is a not-for-profit 501(c)(3) charitable organization with the purpose of funding research for treatments of Myotubular Myopathy (MTM). (http://www.will-cure.org/)
On Nov 1st I will be running my first marathon and I will be running for Ragnar! My friend Pernilla lost her son Ragnar to Myotubular Myopathy. No parent should ever have to bury their child!