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Samantha Bennett's Fundraiser:

2015 United Airlines NYC Half Marathon

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 United Airlines NYC Half

EVENT DATE: Mar 15, 2015

Samantha Bennett

THE STORY:

Earlier this year, I attended a fundraising event to raise funds for EB Research Partnership, a nonprofit organization committed to advancing treatments and finding a cure for children with EB.  Knowing very little about this disorder, I began to research and I learned how painful it is to live each day with an incurable blistering disorder.  No child should ever have to endure this devastating pain and live everyday with this burden, not understanding why it had to happen to them and why they cannot play outside or participate in numerous activities like other children.  Daily tasks that so many take for granted require an immense amount of effort and strength.  EB Research Partnership aims to find a cure so children with EB can live pain free and full lives.

I am fortunate enough to be a part of a team running the 2015 NYC half marathon to raise funds for EB Research Partnership.  Completing a half marathon will be no easy task but I am welcoming and looking forward to training for this event.  Please take a few minutes to watch the posted video of John Hudson Dilgen.  His story is inspiring and I am honored to be running to support him and all children with EB.  

Any donation is greatly appreciated and no donation is too small.  Thank you so much for all your support.

Love

Sam 

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EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

http://www.thedoctorstv.com/videolib/init/10096

 

 

$1,500

MONEY RAISED
  • Offline Donations

    $1,500

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100% Raised of $1,500 Goal

Fundraise for this Campaign

The Team: $51,753 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Patty and Keith Bevacqui

Amount Raised

$9,430

Fundraiser Title

Jeff and Maureen Berger

Amount Raised

$3,436

Fundraiser Title

Judy Bomback

Amount Raised

$3,335

 

93% Raised of $3,600 Goal

Fundraiser Title

kalilla dilgen

Amount Raised

$3,050

 

203% Raised of $1,500 Goal

Fundraiser Title

Cortney Cooper

Amount Raised

$2,570

 

171% Raised of $1,500 Goal

Fundraiser Title

Lucy Schwarz

Amount Raised

$2,500

Fundraiser Title

Mary Ellen Scott

Amount Raised

$2,300

Fundraiser Title

Robin Ellenberg

Amount Raised

$2,135

Donor Comments

Offline Donations

Offline Donations

DONATION: $1,500

4 years ago