BENEFITING: EB HOPE FOUNDATION
EVENT DATE: May 25, 2016
In addition to this year's Walk for EB that was held on May 7, there is another opportunity to support the EB Hope Foundation through the 2016 Spring Ensemble Performance, presented by ETBMusic and Fine Arts Center. It will take place on Wednesday, May 25th 7:00pm at Faith Fellowship Church on Bridgetown Rd.
Carson will be participating in this event! He has been playing piano since he was seven. He also has experience playing the drums. Recently, he wrote two original musical compositions dedicated to each of his brothers. In addition, he has taken various art classes through ETBMusic and Fine Arts Center. In honor of his love for music and art, we hope to come together as a fine arts community to raise money to support Carson (and Kolbe) and other children like them. We hope to see you at the performance!
About the Walk for EB
Carson and Kolbe Kissell, sons of Kristy & David, were born with a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. Living with EB requires extensive daily dressing changes to help heal wounds and protect from further damage. On average, a dressing change takes three to four hours to complete. People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings. Currently, there is no cure for EB.
Family and friends of the Kissell Family started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families. Inspired by these two little boys who are so full of life, the Walk for EB is the major initiative put on each year by the EB Hope Foundation, a 501C3 non-profit organization.
Proceeds from the Walk for EB are used to support organizations committed to providing care for EB families and/or funding research efforts to find a cure.
This year's Walk for EB is taking place on Saturday, May 7 at Miami Whitewater Forest in Cincinnati, Ohio. Activities and registration begins at 9:00 a.m. with the walk starting at 10:00 a.m.
We hope you will invite your family and friends, and be a part of this year’s Walk for EB.
Visit www.WalkforEB.org to learn more.