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David, Kristy, Carson, Charlie, and Kolbe Kissell's Fundraiser:

2016 Walk for EB

David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo
David, Kristy, Carson, Charlie, and Kolbe's Photo

BENEFITING: EB HOPE FOUNDATION

ORGANIZER: EB HOPE FOUNDATION

EVENT DATE: May 25, 2016

David, Kristy, Carson, Charlie, and Kolbe Kissell

THE STORY:

EB HOPE FOUNDATION wrote -

Carson and Kolbe Kissell, sons of Kristy & David, were born with a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. Living with EB requires extensive daily dressing changes to help heal wounds and protect from further damage. On average, a dressing change takes three to four hours to complete. People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings. Currently, there is no cure for EB.

Family and friends of the Kissell Family started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families. Inspired by these two little boys who are so full of life, the Walk for EB is the major initiative put on each year by the EB Hope Foundation, a 501C3 non-profit organization.

Proceeds from the Walk for EB are used to support organizations committed to providing care for EB families and/or funding research efforts to find a cure.

This year's Walk for EB is taking place on Saturday, May 7 at Miami Whitewater Forest in Cincinnati, Ohio. Activities and registration begins at 9:00 a.m. with the walk starting at 10:00 a.m.

We hope you will invite your family and friends, and be a part of this year’s Walk for EB.

Visit www.WalkforEB.org to learn more.

DONATE

To This Fundraiser

$45

MONEY RAISED
  • Mike & Bev Jostworth

    $45

  •  
  •  
  •  
 

5% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $375 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

ETBMusic and Fine Arts Center

Amount Raised

$230

 

23% Raised of $1,000 Goal

Fundraiser Title

EB HOPE FOUNDATION

Amount Raised

$100

 

1% Raised of $10,000 Goal

Fundraiser Title

David, Kristy, Carson, Charlie, and...

Amount Raised

$45

 

5% Raised of $1,000 Goal

Donor Comments

Mike & Bev Jostworth

Mike & Bev Jostworth

DONATION: $45

In honor of my hero and friend, Carson Kissel 1 year ago