I'm running for all the kids that have EB! So that they may get the break through treatments that will allow them to enjoy the childhood experiences I never was able to have. To live without fear of another wound care treatment, bath, bandage change and surgical procedure.
To do this, I need your help! Even a few dollars can go a long way! 100% of my fundraising for this run goes to EB Research!
I Run for: Mikey, Casey, Jackson, Robbie, Euan, Clara, Teodora, John Hudson, Bee, Garrett, Ryan, Charley, Charlie, Savvy, Christian, Rafi, Blake, Joey, Easton, Hanna, Asa, Sarah, Catt, Naomi, Ben Jr., Antonio, Ella, Ellie, Ashley, Brody, All the little Troops <3, Lilah, Jax, Kiira, Mahi, Daisy, Katie, Heather, Kendall, Abbie, Mal-mal, Lauren, Eli & more.
I Run for my Crazy Campers like: Tony, Hayley, Ariana, Estreya, Miranda, Lucy, Rachel, Matthew AKA "Hunter Pew Pew", Anna, Zack, Katie, Faith, Chris, Dillan, Brandi, & more.
I Run for those who are fighting EB constantly against all odds: My Brother Brian, Paul, Sandra, Julianne, Rachel, Jenn, James, Chelsey, Novelette, Monsie aka "Valentine", Monique, Jenna, Jennifer, Samantha, George, Derra, Matt, Jamie, Taylor, Cindy, Beth, Ally, Tasha, Harlee, Ramone, Vinnie, Shardai, Melissa, Melanie, Phyllis & more.
I Run for those who we lost to this terrible condition but will NEVER forget like: Michaela, Cat & Sam, Kristen, Abigail, Anton, Jamie, Jessica, Bruce, Bella, Raul, Dennis, Molly, Cody, Lauren, Alex, Eric, Mihai & too many more.
And last but not least, I run for the families & caregivers of all of those who have EB because it doesn't just effect the individual; The whole family is affected by this horrible condition.
Please help me achieve this huge goal of mine. All my doctors think I’m crazy, but I’m determined help get kids like Mikey their magic potion needed to ultimately #HealEB!