The Will-Cure Team is proud to be participating in the 2017 Bank of America Chicago Marathon. We welcome you to join and support our amazing Will-Cure Team as we raise awareness and funds for Myotubular Myopathy.
Where There’s a Will There’s a Cure (Will-Cure) is a 501(c)(3) charitable organization with the sole purpose of raising funds to support medical research for Myotubular Myopathy.
Myotubular Myopathy is a rare genetic disease with clinical manifestations of severe muscle weakness. Although there are variants, most children affected will never crawl or walk and will require breathing assistance. MTM children may not have the muscle strength to run in a marathon, but like those running for Will-Cure, they have extreme stamina and are not afraid of challenges.
Our dream is to find a cure and we need your help. Any support you can provide can truly make a difference. Researchers have conducted promising pre-clinical trials research for potential treatments for Myotubular Myopathy. Your donation will go toward the funding needed to advance this medical research. We are excited to be at the doorstep of new hope for our children and families affected by this disease. But your help is crucial. We invite you to join in our efforts and contribute in any way possible.
Go Team Will-Cure!