Skip to content
andreataylor12's profile image - click for profile

Andrea Taylor's Fundraiser:

2017 International arterial tortuosity syndrome Clinic/Conference

Andrea's Photo
Andrea Taylor

THE STORY:

A Twist of Fate-ATS (ATOF) is the international 501c3/patient group for a very rare disease, arterial tortuosity syndrome. We are fundraising to help with costs to start the 1st International ATS/Carrier Clinic to start in Belgium, August 2017. We have successfully started the 1st ATS/Carrier Clinic at Arkansas Children's Hospital in Little Rock, AR this past June 2016, but we are not able to easily see our International patients there. ATOF has partnered with Dr. Bert Callewaert at Gent University, in Gent Belgium to host and head the multidisciplinary clinic to offer our European patients access to the same care that we are able to offer here in the United States. Without this specialty clinic in Belgium, we are researching only part of our patient group. That means it will take longer to find the "cure" for this very rare syndrome. We need your help and your support to fund this once in a life time opportunity for those that suffer with ATS. There is no time to waste, we must keep moving at an aggressive pace to help our children. Please consider helping support a wonderful organization who is changing the world for a rare group of mostly children and young adults. Help US find a CURE!

The Team: $0 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Be the first to Donate to Andrea and 2017 International arterial tortuosity syndrome Clinic/Conference.