BENEFITING: EB HOPE FOUNDATION
Carson and Kolbe Kissell, sons of Kristy & David, were born with a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings.
Inspired by these little boy so full of life, family and friends started the Walk for EB in 2008 with the hopes of making a positive impact on awareness, efforts to find a cure, and support for EB families.
Donations to the walk will benefit the EB Hope Foundation, a 501C3 non-profit organization. The EB Hope Foundation works to spread EB awareness and support organizations committed to helping EB families and funding research efforts to find a cure.
This year's Walk for EB is taking place on Saturday, May 13 at Miami Whitewater Forest in Cincinnati, Ohio. Activities and registration begin at 9:00 a.m. with the walk starting at 10:00 a.m.
We hope you will invite your family and friends, and be a part of this year’s Walk for EB.
Visit www.WalkforEB.org to learn more.