In 2014 Bob Satko ran 250 miles in 73 hours for his grandson, Blake. Blake has a rare genetic disease called, Fanconi Anemia and is in bone marrow failure. Bob raised over $11,000 for the Fanconi Anemia Research Fund (FARF) that weekend.
In 2015 Bob had open heart surgery and has been told that he cannot run. It kills him that he cannot run anymore. This year he wants you to get out there and run in his place, for Blake. Last year Blake and Bob's friends, family and community collectively ran over 270 miles and raised $3,200 for FARF.
On May 26-27 run solo, or get your running group together and run a loop or two of Lake Youngs (about 9 miles). Or just come out and run a half lap, all miles count! If you can't run, help us meet our goal by donating. All donations will go to FARF to fund research, find effective treatments and hopefully a cure!
FANCONI ANEMIA RESEARCH FUND INC wrote -
May 1, 2017 is the 8th Annual International Fanconi Anemia Day.
Fanconi anemia is an inherited life-threatening disease. Bone marrow failure in childhood is often the fate of Fanconi anemia patients as well as cancer in early adulthood. Friends and families participate in various activities during the Spring to raise awareness and fundraise. Donations support the Fanconi Anemia Research Fund whose mission is to "find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide".
Dedicated to loved ones no longer with us, those we cherish today and our future heroes.