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Bianco Family's Fundraiser:

2016 Vanessa Bianco Memorial Walk & Fundraiser for Bloom's Syndrome Awareness

Bianco's Photo
 

2% away from our goal! We need your help!
December 02, 2016

We have reached 98% of our 2016 fundraising goal to help children, teens, and young adults with Bloom's Syndrome! We are doing one last end of  See more

BENEFITING: BLOOM'S SYNDROME ASSOCIATION

EVENT DATE: May 22, 2016

Bianco Family

THE STORY:

PLEASE HELP MAKE A DIFFERENCE in the lives of the CHILDREN, TEENS, and YOUNG ADULTS born with BLOOM'S SYNDROME by making a 100% TAX DEDUCTIBLE DONATION today. Want to take it a step further? Then PLEASE JOIN OUR FUNDRAISING TEAM! Having more team members will only increase our chances of hitting this year's goal and will help spread awareness to a larger network of people!

Vanessa’s Story and Bloom’s Syndrome

Vanessa Bianco was born with a rare genetic disorder called Bloom’s Syndrome which is characterized by short stature, increased sensitivity to light, immune deficiency (leading to increased susceptibility to infections), patchy facial skin colorations, and worst of all an extraordinarily high risk to develop many cancers and leukemia, at early ages. Vanessa was diagnosed with cancer at age 30. She died at age 31. Although Vanessa had many challenges in her youth, she never lived with trepidation, and was not deterred by obstacles. She may have been small in stature, but she had a huge personality. She was creative and beautiful. She designed jewelry, wrote poetry, made bold fashion statements (before they were vogue), loved music, movies and dancing. To the end she never lost the will to live and never stopped fighting. She would be thrilled to know her legacy would be helping others with Bloom’s and their families.

Where Your Donations Are Going

Your donations will go directly to the Bloom’s Syndrome Association. The BSA is an international family support and patient advocacy organization for persons affected by Bloom's syndrome. The Association comprises persons known to have a diagnosis of Bloom's syndrome, their families and friends, medical and scientific researchers, healthcare professionals, educators, and other supporters. The mission of the Association is to foster interactions among its members, so that they might learn from and support one another; to raise funds for research to advance treatments and a cure for Bloom’s syndrome; and to raise public awareness about the syndrome and its importance to worldwide cancer research. For more information visit: http://www.bloomssyndromeassociation.org/

BLOOM'S SYNDROME ASSOCIATION is a 501-(c)-(3) not-for-profit organization and contributions are 100% tax deductible. PLEASE ask your employers if they match donations, it’s a tax write off for them too!

Why share this campaign on social media?

This is a rare genetic disorder and doesn't always get the attention it deserves. Please join us to help raise awareness by sharing this fundraiser on social media. Together we can give families and individuals born with Bloom’s a fighting chance to see more advancement in therapies for Bloom’s Syndrome.

The Walk and other inquiries:

Our team will be walking on May 22nd in Brooklyn, NY to raise awareness! To learn how you can further support this worthy cause or for press inquiries please contact us at VanessaBiancoFoundation@gmail.com

DONATE

To This Fundraiser

$18,207

MONEY RAISED
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  • Le Cut Hair Salon

    $100

  • Lillian Baron

    $50

  • Good luck Susan!

    $100

  • Georgette Hegarty

    $50

  • Maryann DeSalvo

    $25

  • Patricia Ferris

     

  • Roger and Judith Sanders

    $150

  • Chris and Ana

    $50

  • Michele Bianco

    $618

  • Gerard Bianco Jr.

    $300

  • Michele Mostacci

     

  • Debra Wassum and John Brady

     

  • ToniAnn, Shane and Francesca

     

  • Aida Eng

    $25

  • The Kiersh Family

    $25

  • The Collins Family

    $25

  • Greg Bowman

    $100

  • Sabrina & Joseph Serpe

    $25

  • Eloise Wagner Pannell

    $100

  • Ellen and Richard Farren

    $100

  • DAVID SINCLAIR

    $50

  • Suzie Wallach

    $20

  • Robert and Jeanne Bianco and family

    $100

  • Anne Hill

    $25

  • Chris Scutari

     

  • Irene Georgiadis

    $50

  • Michele and Alain

    $50

  • Maryanne Schwaller

    $50

  • Anthony Ricetti

    $100

  • Daisy Joy Rodrigo

     

  • The Hernández Family

     

  • Team Vanessa

    $25

  • Qualita

    $100

  • Phyllis Stigliano

    $150

  • Nkenge Hewitt-Castro

     

  • Outflation

    $50

  • Debra Imbriale

    $50

  • Sheila Miller

    $25

  • Actor Mike Vezza

    $119.77

  • Kathleen Boddington

    $50

  • Jill Skop & Family

    $100

  • City Chiropractic & Wellness

    $100

  • Frank Modena

    $25

  • Susan and Cynthia Cabbad

     

  • Antoinette Psilos

    $50

  • Vin Gurrieri

    $100

  • Barbara Valente

    $25

  • Frank Valdinoto

    $100

  • Al Palazzolo - Krispy Pizza

    $50

  • Rob,Christina,Nicholas

    $100

  • Jennifer Anderson-Garrett

    $50

  • Donna Perkins

    $25

  • Anonymous

     

  • Lois & Richard Libretti

    $200

  • Maria Coen

    $100

  • Mark & Anastasia

    $50

  • Joanne & Doc Bonomolo

    $100

  • Sylvester Sichenze

    $200

  • Linda Esposito

    $50

  • Thomasina Gelshion

    $50

  • Celeste Casolaro

    $100

  • Anonymous

    $50

  • Angela & Gregg Caserta

    $100

  • Scott & Becky

     

  • Alyssa Merkle

    $50

  • Peter Tsekouras

    $40

  • Cordi Family

    $25

  • Claire Curlis

    $100

  • Pat Mendez

    $25

  • Anonymous

     

  • Laurie, Seth, & Sadie

    $25

  • Jana Cohen

    $50

  • Dana Melichar

     

  • Bobby and Cynthia Cerrito

    $100

  • Renee Hudak

    $25

  • Stacy Georgalas

    $50

  • Rowe Family

    $40

  • Garifalia Anagnostou

     

  • Cynthia Bianco

    $100

  • Marilyn Martinez

    $50

  • Angel

    $40

  • Leslie Schock

    $100

  • Anonymous

     

  • Ella and Heather

    $110

  • Jim Moore

    $25

  • Aimee D.

    $50

  • Marcia Swanson

    $100

  • Angelo and Roseann Giugliano

    $100

  • Brian & Georgia Enright

    $100

  • Bloom's Syndrome Awareness Bracelets

    $645

  • NJ Play Sports

    $100

  • Cornelia and Richard Anderson

    $100

  • Jebaily family

    $250

  • Robert Gwyther

    $31.84

  • Georgette Hegarty

    $50

  • Mary Ellen Jacobi

    $25

  • Randazzo Family

    $50

  • Anonymous

    $50

  • The Holmes Family

     

  • Helene Tobin

    $100

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101% Raised of $18,000 Goal

Fundraise for this Campaign

The Team: $18,207 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Bianco Family

Amount Raised

$11,674

 

65% Raised of $18,000 Goal

Fundraiser Title

Vivian Pappas

Amount Raised

$2,468

Fundraiser Title

Nikki Farren

Amount Raised

$1,005

Fundraiser Title

Joseph Pallonetti

Amount Raised

$600

Fundraiser Title

Susan Maria

Amount Raised

$550

Fundraiser Title

Anastasia Pappas-Disla

Amount Raised

$400

Fundraiser Title

Maria Georgiadis

Amount Raised

$375

Fundraiser Title

Marie Parise

Amount Raised

$365

Donor Comments

Helene Tobin

Helene Tobin

DONATION: $100

In memory of Vanessa Bianco 6 months ago

The Holmes Family

The Holmes Family

7 months ago

Anonymous

ANONYMOUS

DONATION: $50

7 months ago

Randazzo Family

Randazzo Family

DONATION: $50

In loving memory. 7 months ago

Mary Ellen Jacobi

Mary Ellen Jacobi

DONATION: $25

7 months ago

Georgette Hegarty

Georgette Hegarty

DONATION: $50

7 months ago

Robert Gwyther

Robert Gwyther

DONATION: $31.84

7 months ago

Jebaily family

Jebaily family

DONATION: $250

7 months ago

Cornelia and Richard Anderson

Cornelia and Richard Anderson

DONATION: $100

7 months ago

NJ Play Sports

NJ Play Sports

DONATION: $100

7 months ago