2% away from our goal! We need your help!
December 02, 2016
BENEFITING: BLOOM'S SYNDROME ASSOCIATION
EVENT DATE: May 22, 2016
PLEASE HELP MAKE A DIFFERENCE in the lives of the CHILDREN, TEENS, and YOUNG ADULTS born with BLOOM'S SYNDROME by making a 100% TAX DEDUCTIBLE DONATION today. Want to take it a step further? Then PLEASE JOIN OUR FUNDRAISING TEAM! Having more team members will only increase our chances of hitting this year's goal and will help spread awareness to a larger network of people!
Vanessa’s Story and Bloom’s Syndrome
Vanessa Bianco was born with a rare genetic disorder called Bloom’s Syndrome which is characterized by short stature, increased sensitivity to light, immune deficiency (leading to increased susceptibility to infections), patchy facial skin colorations, and worst of all an extraordinarily high risk to develop many cancers and leukemia, at early ages. Vanessa was diagnosed with cancer at age 30. She died at age 31. Although Vanessa had many challenges in her youth, she never lived with trepidation, and was not deterred by obstacles. She may have been small in stature, but she had a huge personality. She was creative and beautiful. She designed jewelry, wrote poetry, made bold fashion statements (before they were vogue), loved music, movies and dancing. To the end she never lost the will to live and never stopped fighting. She would be thrilled to know her legacy would be helping others with Bloom’s and their families.
Where Your Donations Are Going
Your donations will go directly to the Bloom’s Syndrome Association. The BSA is an international family support and patient advocacy organization for persons affected by Bloom's syndrome. The Association comprises persons known to have a diagnosis of Bloom's syndrome, their families and friends, medical and scientific researchers, healthcare professionals, educators, and other supporters. The mission of the Association is to foster interactions among its members, so that they might learn from and support one another; to raise funds for research to advance treatments and a cure for Bloom’s syndrome; and to raise public awareness about the syndrome and its importance to worldwide cancer research. For more information visit: http://www.bloomssyndromeassociation.org/
BLOOM'S SYNDROME ASSOCIATION is a 501-(c)-(3) not-for-profit organization and contributions are 100% tax deductible. PLEASE ask your employers if they match donations, it’s a tax write off for them too!
Why share this campaign on social media?
This is a rare genetic disorder and doesn't always get the attention it deserves. Please join us to help raise awareness by sharing this fundraiser on social media. Together we can give families and individuals born with Bloom’s a fighting chance to see more advancement in therapies for Bloom’s Syndrome.
The Walk and other inquiries:
Our team will be walking on May 22nd in Brooklyn, NY to raise awareness! To learn how you can further support this worthy cause or for press inquiries please contact us at VanessaBiancoFoundation@gmail.com