THANK YOU SO MUCH!!!!
May 04, 2017
BENEFITING: CURE SANFILIPPO FOUNDATION
Everett is a happy, energetic boy who loves trucks and tractors. He has been such a blessing to our family. He is a bundle of joy and loves to cuddle with his new baby brother.
Earlier this year, we received devastating news when Everett was diagnosed with Sanfilippo Syndrome, also known as 'Childhood Alzheimer's'. It is a cruel disease and it takes your child away from you right in front of your eyes. Everett's 4th birthday is coming up on April 28th, and it will be a bittersweet day, because we know he is getting ever closer to the age when the disease begins to take hold. Without treatment his future will be inability to talk, a wheelchair, a feeding tube, and death usually in the teens. Everett and other kids like him need help NOW!
We fight for Everett and other Sanfilippo children and have decided to make a Birthday push to fund critical research for treatment options for children. There is promising research out there that shows that it can help this disease! We are hoping to raise $15,000 in just one week from April 21st until Everett's birthday on April 28th. His birthday gift of LIFE. Every dollar donated goes to a non-profit organization funding this very urgent research, the Cure Sanfilippo Foundation (more on the Foundation at www.CureSFF.org) Please help us reach our goal, please share, and give Everett and many other children the gift of life. Will you join us, #4Everett?
Follow our Efforts for Everett on Facebook at: https://www.facebook.com/effortsforeverett/