4 Matthieu/ Cindy N.
I want you to meet my son Matthieu. Matt is now 14 yrs. old and in 2007 I experienced the most terrifying and frustrating time as doctors could not figure out what Matthieu's symtoms were being caused by. My son is already diagnosed with Fragile X Syndrome and then having to have him in the hospital a week and not being sure what was happening was hard. As his skin, eyes, nails, mouth, and just overall body was having this unknown reaction was heart wrenching for my family. It was difficult to disgnose Matthieu with Kawasaki Disease due to the symptomatology, but also because he did not fit the "normal" age range of being under the age of 5. About 80% of kids who suffer from Kawasaki Disease are under the age of 5, so older is uncommon. It was the tenth day, he was diagnosed and was started on blood thinners and watched very carefully. Still today it is scary as Matt has heart pains and as in the picture above we run to ER worried that his heart is okay and not having an early heart attack. Thankfully Matt had the best, Dr. Mason at Children's Hospital LA. I am forever greatful. I want other kids to be lucky and have better chances with this test that can make that happen,so Lets Do This!!!
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