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DO AWAY WITH SMA's Fundraiser:

500 Miles for SMA

DO AWAY WITH SMA's Photo
DO AWAY WITH SMA's Photo

BENEFITING: DO AWAY WITH SMA

EVENT DATE: Aug 18, 2015

THE STORY:

Spinal Muscular Atrophy (SMA) is the number one genetic killer of children in the world. One in every six to ten thousand Americans is a carrier of SMA. Do Away with SMA, a non-profit that has been a part of the continuous battle against this disease, is going to launch a unique campaign. Joseph Kolinsky, a Board Member of Do Away With SMA (a 501(c)(3) non-profit charity), is going to attempt to run a multi-day solo endurance event. He will start his run on August 18th 2015 near the front steps of the Walt Disney Family Museum in San Francisco. He will run approximately 28 miles a day, and is scheduled to finish this run on September 3rd 2105 at the front gate of Disneyland in Anaheim. Joe is running this multi-day event in order to raise awareness and donations for Do Away with SMA. Do Away with SMA (or “DAWS”), has been working as a team to raise awareness about SMA. Joe Kolinsky, the President and one of the board members, has already run over 30 marathons, and he plans to embark many more endurance events. Other members are also very active when it comes to taking initiatives. Amy Pease, Brian Johnson, Mitch Brannen, Robyn Engel are some of the board members who have had similar running experiences as Joe. Joe Kolinsky was recently quoted as saying that he lost his two brothers at a very early age as SMA Type 1 claimed both of their lives. He said, “Running and touching people’s lives means a lot to me. I want to reach out each and every person along the course so they know what kind of disease it is and how it can become terminal in due course. My primary aim is to raise awareness, though I also plan to give them the contacts of local specialists and health care centres. We simply want to help as many people as we can, and play a part in defeating this disease. When I run, I always remember the faces of my younger brothers.” About the Company Do Away with SMA is a non-profit public charity that works towards raising the awareness about SMA. To learn more, or to make a tax-deductible donation to the charity please go to http://www.doawaywithsma.org/ Follow on Facebook for daily updates and photos of Joe’s journey: https://www.facebook.com/pages/500-Miles-for-SMA, https://www.facebook.com/runningcoasttocoast For more information, visit: https://www.crowdrise.com/doawaywithsma

DONATE

To This Fundraiser

$8,980

MONEY RAISED
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  • JUDY MEKUS

    $50

  • sue rugala

    $25

  • Vilma Villavicencio

    $25

  • Kiki Delk

    $50

  • Joan Quagliata

    $100

  • Elizabeth Scott

    $50

  • Robert Kahwaty

    $50

  • Dick and Nikki Hendricks

    $100

  • Angie and John

    $60

  • Melinda Armenti

     

  • Aimbo

    $15

  • Ann VanEtten

    $200

  • Katie McNamara

    $50

  • Mr & Mrs Michael McNamara

    $100

  • Diane Peters

    $25

  • Lori Burke

    $100

  • Eddie McCoy

    $50

  • Lou & Deanna Mongello

     

  • Joy Hargraves

    $25

  • Laura Hoffman

     

  • Anonymous

    $1,000

  • Jill Long

     

  • Scott and Kelly Orr

    $50

  • Beatrice Feeney

    $50

  • Kathy Lee

    $40

  • The Garfinkel's (Brad, Cindy, Julia)

    $50

  • CWiseman

     

  • Valerie & Steve Drew

     

  • Russell and Donna Milligan

     

  • Anonymous

    $5,000

  • Anonymous

    $500

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90% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $8,980 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

DO AWAY WITH SMA

Amount Raised

$8,905

 

89% Raised of $10,000 Goal

Fundraiser Title

Robert Kahwaty

Amount Raised

$50

Donor Comments

Anonymous

Anonymous

DONATION: $5,000

3 years ago

Anonymous

Anonymous

DONATION: $500

3 years ago

Russell and Donna Milligan

Russell and Donna Milligan

This is such an awesome thing you are doing! Finish strong! 3 years ago

Valerie & Steve Drew

Valerie & Steve Drew

Joe, you are an awesome person with a big heart and the drive to match! As always, you can count on us to have your back. We are humbled by your accomplishments and are proud to call you friend.Congratulations on closing in on the end of this amazing journey. GO JOE!!!! 3 years ago

CWiseman

CWiseman

Brave run Joseph and sidekick Robyn! Almost done! 3 years ago

The Garfinkel's (Brad, Cindy, Julia)

The Garfinkel's (Brad, Cindy, Julia)

DONATION: $50

Amazing effort for something incredibly important. Run safe. 3 years ago

Kathy Lee

Kathy Lee

DONATION: $40

3 years ago

Beatrice Feeney

Beatrice Feeney

DONATION: $50

3 years ago

Scott and Kelly Orr

Scott and Kelly Orr

DONATION: $50

What an inspiration ! Loved listening to you on mickey miles podcast ! 3 years ago

Jill Long

Jill Long

Well done.... your an inspiration! 3 years ago